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babettess

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About babettess

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    Advanced Member

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  • Gender
    Female
  • Location
    In the country, MD
  • Interests
    Reading & hanging with my family are two of my interests that I can still enjoy. Gardening and outdoor activites are two of my passions but not too possible right now.

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  1. I have a Standard Poodle as my Service Dog. She is 2 and I have owner trained her. She alerts me when my heart rate is up which reminds me to slow down. She reminds me when I should go to bed. A few of her trained tasks include helping me when my balance is messed up because of the dizziness, getting my husband if I need him, and picking up things I drop. One of the really helpful things she is trained to do is to lay on top of me when my body is trembling. I have spells where I shake uncontrollably and my husband would wrap me in blankets and put heating pads on me to try to stop the shakes.
  2. You sent me a PM months ago and I just read it. Sorry! You asked if I knew of any doctors in Maryland. Yes, I go to Dr Ramesh Khurana in Colombia, MD. He is on the DINET list of doctors. Are you near Columbia? I travel 4 hours each way to see him. Hope this helps.

    Babette

  3. Maxine, You are in my thoughts and prayers. Hope you feel better quickly. Take care of yourself. Babette
  4. I have the same feelings. Very Strange!!! I think it must be what it feels like to be weightless. I always say I wish someone would stop the world and put it back on it's axis. Let us know if anyone figures out what this is and what we can all do about it. Babette
  5. 4everOptimistic, Thanks so much for letting me know how your appt. went. Were you already diagnosed with POTS or were you going to Cleveland to get your diagnosis? Also, if you don't mind me asking, what tests are they scheduling you to have? I already have a POTS diagnosis confirmed by a TTT, but I don't know what type I have. I'm just wondering what all tests they do and if they are to confirm POTS or maybe determine what type and what is causing it. Thanks so much! Please let me know how your testing goes. With smiles, Babette
  6. I have appts now at Cleveland Clinic and Columbia, MD both. I can get into Cleveland 2 months sooner than the doctor in Columbia so I don't know what to do or where to go. Input please. Thanks, Babette
  7. Thanks so much ptalaura! I am hoping to find a dr willing to at least listen to my concerns. His office said that a first appointment is 1 1/2 hours long. That's by far longer than any appt. I've had so far. I'm glad you are pleased with your treatments. Do you live in MD? I am from the "countryside" of Western MD. Babette
  8. I have been referred to the Cleveland Clinic for evaluation and management of POTS. Has anyone else been there and if so, what was your experience?? I already have an appointment scheduled with a doctor in Columbia, MD. John Hopkins doesn't treat POTS but gives this doctors name and phone number out if you call them for information on POTS doctors. I can't get in there until May. If I can get in earlier at Cleveland I will take that appointment. (Columbia is about 3 1/2 hours away and Cleveland is about 5 1/2. Either place will make for a long drive.) I would just like anybodys opinion on
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