Dawg Tired

If you need more I have some I would be happy to send, just PM your address....

And just in case you need more cats.... I really need to find a home for these! They are now 6 months old, neutered, litter trained, spoiled.... I just can't handle 4 cats in the house! As you can see... these 2 little brothers are so close I really would like for them to be able to stay together.... See their Catster page: http://www.catster.com/pet_page.php?j=t&i=324933

You need a neuro to "manage" your case. Your PCP is the "gatekeeper".... did you ask them for a referral to a neuro? Or, call the prescribing drs and ask for a local referral. No, he isn't legally obligated to refill prescriptions he did not prescribe to begin with, and he knows he does not know enough about your condition to manage it himself.

Could it be that we started the "Chit-Chat" forum after she stopped coming here? Maybe she missed this whole section....

The pictures are stunning - and I am SO happy you are managing to stay on so much longer than you had first anticipated. Sorry, no suggestions on the meds - but you have already overcome a lot and I have faith that you will be able to continue!

I don't understand why the social worker told you that. We qualified for Medicaid amd food stamps until our disability was approved... Those are determined by income and since we had no income we qualified. They DID have the restriction that we had to file for SSDI/SSI first - then, when the state determined we were disabled it went right through. I was pretty much determined to be disabled (by the state) immediately - hubby (head injury) we had to appeal. It only took me 2 weeks to qualify. Medicaid paid for all but $2 on my meds each month.

I got it to work by clicking on the mp3 link...

Why... yes... they changed the page on me!! I asked why... it seems they don't archive all of them. Umm.. I've been archived!!!! Hee hee hee!!! (That doesn't make me older or anything - does it??)

here is the link... click on the one that has a "12" at the end and you can listen to it. Gayla's Podcast

It is a broadcast like on the radio but it is on the internet so it is available worldwide. It can be listened to any time after it is posted, and even downloaded to an ipod or saved on your computer. She just wanted a general overview of me and the book this time but she wants to interview me again in the future. She said the podcast would be ready tomorrow after Noon EST, I will send you a link as soon as I get one - I did give DINET a plug.... she is listing it as a site of interest for those who want to know more about my condition! YAY!!

I, too have had multiple breast surgeries and cysts...... even the estrogen has not seemed to make things on that end better or worse. It is about the same as it has always been.

The interview is today and the podcast is tomorrow. I'm kinda nervous because I've never done anything like this before... But I know and really like the lady who is the host so I'll do okay. It is going to be about my book, I don't know if this is going to be about writing a memoir or about my illness.... she said she love the book and we will probably do more than one. Wish me luck!!!

Okay... it's a family thing with us. Oldest sister had her uterus out (cancer) they left her ovaries because she was convinced that if they did that she would not need hormones. I told her that her ovaries would probably quit functioning within 2 years if she left them in after the uterus came out. But... since she is the BIG sister she left them in and, 18 months later, they quit working and she went on HRT... and she felt WORLDS better. Second sister.... Same experience... Me... I told them to take out everything. I had a history of cysts and WE have a family history of ovarian cancer. I did have about a year of re-adjustment, but it was nothing compared to the problems I had with the constant bleeding, cramping, disabling days I had. I have known women who left the ovaries in and supported them with progesterone creams and kept things going longer. I take a plant-based estrogen, and, 10 years after the Hysterectomy, I have NO regrets. I felt so much better the morning after the surgery I did not even need pain meds.... I had been in SO much pain for SO many years that I was just used to that level of pain.

Ah ha! Mine was drawn in the afternoon, sitting up.... no wonder the lab tech was upset!

When I forst got sick I was going to a doctor who was doing a lot of testing and, at one time tested my Cortisol level.... no prep, just drew it. The lab tech told me as he was drawing the blood that the doctor was not doing this right, he said something about a steroid injection beforehand or something... He called the doctor and told him that the results would not be right - on the speakerphone - and the doctors response was, "well, I know this won't be accurate, but if it looks like something is wrong we'll do it right." The tech was quite upset but went ahead and drew it. it came back with a "normal" result and nothing more was done. Anyone know anything about this test???

I saw that! And more realistic than the House episode....

So sorry Nina, I have been out of town since last Thursday and am just now catching up. I know how difficult this was and how brave you had to be to do this. Peace be with you my friend!

I am planning to get the flu shot this year, probably in the next month or so. I am going to check it out and see if Medicare will cover the nasal mist flu vaccine - it is supposed to provide longer lasting coverage than the injection.

I questioned my PCP (yes, corina... dear Dr Cobble!) about that. He said he could send me into the urologist and I could have all the tests.... but, at the end of the day... it is another thing that comes with NCS.... Um... watch out - fecal incontinence does too! (Can I say... THAT'S even more embarrasing?) I just wear a pad and go about my business.... Dr did do a urinalysis and a culture but nothing grew out.

I also do better in the cool months. Heat... Makes me SO much worse!

Yes!!! Only thing I have found is Xanax.... If I give in to it and do what I feel like it will literally take me weeks to recover... and if I have the episodes too close together and don't slow down I end up in bed for weeks.

Tough question...... I know there are a few neuros that treat dysautonomia, but mostly electrophysiologists do this. In my case, a pulmonologist found my problem - the neuro I was sent to said flat out that I was nuts! I think on the main website here is a list of doctors - I don't know where you live but maybe you could at least talk to the office of one of them and see if you can get a recommendation.

My cat wakes me up once in a while. I am gasping for air and my heart is racinh. Once He was plastered on my chest purring loudly and licking my nose, sometimes he is just licking my nose. He usually doesn't sleep on the bed but I know they are sensitive to "their" humans breathing patterns.... So, I wonder if he senses when I quit breathing and wakes me up.

So sorry, I, too have been there. I lost 3 babies.... my 14 year old I consider to be a Miracle Child. Please take care of yourself during this time.

I wore contacts for 17 years - no problem... then I got this stuff and it was like overnight I couldn't wear them!