bttrflyamby1981

I've never had an ear infection so I don't know how they feel..........that's got to be awful to have them all the time. My husband was in so much pain he cried. (My husband doesn't cry) I couldn't even bare to think what your going through. Sorry I wasn't much help Amber

That's great Amy, I'm happy for you . Amber

Welcome, This forum has really helped me, I hope it does the same for you "both". Amber

Hi, Thanks for your thought. Yes I have had my hormones checked and everything else you could think of too. Everything has come back normal. (anyone, please feel free to give me more possible reasons on what could be causing these darn things) The neuro I was seeing said that he thought that the migraines were caused by too much meds. My body's way to keep me taking the meds was to create the migrane. The medication he put me on was Propranolol, which made me have more potsy episodes. So my Cardio took me off that and put me on Toprol XL for the high heart rate and said that it should help with the migranes as well. It helped a little I guess but I have good weeks without meds too? Just frustrated.... Thanks for listening, I feel better now that I vented. Amber

Hi everyone, Just wanted to vent a little, hope you don't mind. I've had migranes from the time I was 19. At first it was off and on. They came when I found out I was pregnant with my first child. My GYN said that if they didn't get better that he wanted to run some tests. It didn't come to that though because they went just as fast as they came?? I was fine up untill my daughter was about 14 months old. They weren't too bad but enough so that they were getting in the way of work and family. They came and went, I would have them once or twice a week for a few months, then when I thought I figured them out, they would go away. I kept diaries and food logs I even got glasses. But nothing made any sense? I couldn't find the answers. Then they went away again, I was just happy...... didn't care why they went away just glad they did. When my daughter was 2.5 I started getting them again.........I was pregnant with my second child. It went down hill from there. I was getting migranes about 4-5 times a week and on top of that I had really bad morning sickness. That may have caused some of the migranes I sopose. At about 7 months pregnant I started getting dizzy and feeling faint........ My doctor said it was the pregnancy and that I wasn't getting enough fluids. ( I was drinking a gallon of water a day) ??? He didn't believe me of course. Anyway, I delivered a healthy baby 3 months later and to this day I still have the migranes and the dizziness and faintness. My youngest is now 2.5 and I feel worse some days. Better on others. I've had so many tests and no answers. The CT scans were normal........in fact most of the tests I've had were normal. The only test that showed anything at all was the holter moniter. I'm tierd of feeling tierd and being in pain and feeling sick.......I should be gratefull that I've had a good few weeks but sometimes I feel worse when I have had a good stretch....I don't know if that makes sense, it's hard to put in words. I guess it's just my turn to feel blah and I know I asked for it because I wanted others to feel better......and if that's the case then I wont complain too much but man...........do I have to feel this bad? I guess it's easy to forget how bad you can feel when you are having a good day and your only truely gratefull for those good days if you have the bad days too. Sorry if I confuse anyone........my head hurts so much that I'm not sure what I'm saying myself. I'm babysitting today and trying to pass the time..........I should have called his parents to come get him early, but I have my own kids anyway so nothing much I could do if he did go early. I'm going to let everyone play outside now so I need to go supervise. Thanks for listening to me. Amber

That sounds scary..........your ears hurting doesn't sound good I don't have this? I have had ringing in the ears and even a pinching feeling but what you described sounded like what my husband went through when he had an ear infection and his eardrum burst. I wouldn't ignore it if it hurts this bad........ do you have fluid in your ears, or does it just feel like you do? I'm not a doctor, but that sounds like an ear infection. Along with the potsy stuff. I could always be wrong so don't quote me. Take care, Amber

ALL THE TIME I gained weight from it too. It's very frustrating and comes and goes for me. I have days that I eat everything in sight and find no end to the "sick" feeling. I eat and feel ok for a very short time. Not even 30 min. later and I start to feel sick again. When I eat or drink orange juice it seemed to help. So that's what I did.........about 30 pounds heavier and still have the problem. It's not fun and just wanted to let you know your not alone. Have you been tested for diabeties? It's good to find out if there's something else going on. For me it must be a potsy thing cause I had a few tests that came back normal. Good luck, Amber oh, I was told that if I cut out the sugar that the symptoms would improve........ it did help, so worth the try.

Hi, Comunication is key Not that I practice what I preach as much as I should. I tend to tell too much or too little and I just get people frustrated, so most of the time I hold back. (not good) But it goes both ways. If he's willing to do the give and take then your lucky. Good luck

Just wanted to welcome you and wish you luck. I would personally go with someone who has a good bedside manner, then again I still don't have a set dx so maybe that might not be the best choice. Good luck and I hope you find the strength you need. Amber

Thanks Dayna, I'll take a look at it tonight if I get a chance. Amber

I'm sorry your feeling so bad...........I'm here to listen anytime. I do stay home. I couldn't imagine going back to work, I know I wouldn't be very reliable. I hope things work out for the best. Amber

Does it really feel that much better to have it cooler? Maybe that's been my problem. lol I live in the desert and I don't think it's hot in my home untill it hits 76-77. Unless I'm doing house work. Then 74 is ok. But then again, when you walk outside and it feels like an oven, anything would feel cooler then that. Thanks for the laugh. Amber

Good luck..........I'm happy you can get a retest I don't like to say this but hope you have a "little" bad day........just enough to give you the answers your looking for. Please forgive me for that, I've wished that for myself as well. Not "knowing" for sure is such a lonely feeling. Lots of ((((hugs)))) Amber If you don't need a bad day for the results you need, then I take it back.

so sorry you had to go through that. I don't know what's worse, the pain or the waiting for results. Amber

Claire, You are not alone! I still have not had a dx yet. They tell me they think I have bla bla bla. When I had my TTT the lights were bright and I remember talking with the nurse? But also was having a good day and was on meds too. Doesn't make any sense does it? I wish you luck and hope you get answers so you can finaly say "this is what I have " and so you can ease your mind. Amber

I know it can be hard to go with the flow, but life itself is never the way we would like it to be. I get frustrated over the silly things or things that should be cute and funny. Like when my two year old son desides he wants to change his own diaper and he's running around with it hanging off him.........that should be funny, but for me it's a mess I have to clean up. I'm thinking only about how tierd I am not about the stepping stones my children go through. The misstakes they make so they can learn and so on, can really be hard on my energy bank. I can look back after the fact and enjoy it, but while I'm dealing with it right then I forget to go with the flow. I guess what I'm trying to say is your not alone. I can be near tears most of the time because of the road blocks we get dropped in our laps. I'm usually ok if I'm not on a time limmit. If I am, nothing seems to go right. I'm not sure if this is how you feel, but I hope you feel calmer knowing your not the only one who gets anxious. Have you tried yoga? I find it calming and you can do what you feel comfortable with. I do have my dizzy spells every so often but not enough to stop me. I also count to 10, take deep breaths, go to my room for a time out "by myself". It doesen't make it go away, but It does make me feel better. Good luck and I'm sending you some calming vibes...........hope it helps Amber

I do too I agree with everyone It helps me to drink a glass of water so I don't over eat. Amber

Hi, Just wanted you to know that I understand how hard it is not to have the support you need at home and by someone you love. I'm sorry you are so bad and you have to struggle so hard each day. I don't have near the problems you do and if I could take just a little of your pain so you could live more of a normal life, I would. It doesn't help I know but I still wish I could. That goes for everyone here..........I feel bad that my symptoms are so manageable when there is so much suffering. Thank you for opening my eyes and letting me see that I should be greatful for even my bad days. Good luck and follow your heart. Amber

Yes............I feel the same way. Sometimes I wish I could sleep the whole day! Then when I get more then 8 hrs I feel worse. I noticed if I get 6 hrs of sleep and take a 1 hr nap when I start to feel yucky then I feel ok. The problem I have is not wanting to get out of bed. Mornings are hard on me. I never wake up feeling refreshed. I wonder if we all went to bed at 6 am and woke up around 2 pm if we would be better off? LOL it's a nice thought anyway. Amber

I get disturbed vision, but I'm not sure if I have had the strobe light affect. I think I have, but I tend to ignore things that are unpleasant. Sounds like something I would ignore too. As for telling your doctor, that's a choice you have to make. I myself get tierd of the "looks" I get when I add yet another complaint. Hopefully someone else can be of more help then me. Wish you luck. Amber

Me too, me too I started getting these episodes when I was 7 months pregnant. I thought I was just dehydrated and my doctor said that was what my problem was. So that's what I thought for two years. I breastfed for the first year and thought the baby was taking everything from me and this is why I always felt like I was. After I stopped breastfeeding however, I knew there was something wrong with me and went to the doctor. When I told the doctor my symptoms I must have really confused him because he wrote me a perscription for an antinausea medication. I finally decided to change doctors and when I called my insurance company, they told me there was a doctor who was both a family doctor/cardio. I made an apointment, and here I am. He listened to me and fought for answers. I haven't been dx as of yet, but I guess we are all at this end at one time or another. Thanks, Amber

I too deal with migranes on an everyday basis. I've had tests like you wouldn't believe and they don't know whats causing them. When I started Toprol XL I noticed I did't get as many. I went from 4-5 a week to 1-2 a week and sometimes I went a couple weeks without a migrane. They put me on the Toprol XL to lower my heart rate and it ended up helping with the migranes too, thankfully. It's a beta-blocker though so don't know if it can help you. I know some can't handle them. Have you tried a migrane diary and have they tried to find out what's causing them? Good luck and hope you find some answers. Amber

Hi Laura, I myself did just as you did. I jumped right in and I'm glad I did. It's such a comfort to know we are not alone, welcome aboard . Amber

I welcome you too! Good luck

I too get really bad when my monthly little friend come for a visit. I also get bad pains in the back of my legs during this time and can barely stand. It gets really bad almost like a charlie horse but doesn't go away for about 2-3 days. It doesn't happen on every period, just the ones that are heavy.