lnc

Thanks for the welcome this week... I have increasingly had problems with constipation. I tried fiber supplements and lotsof water/exercise. I ended up with an impaction. So, I tried daily miralax but still don't go regularly. The only thing that works is milk of magnesia. Do you think a 2 t. dose of epsom salts stirred in a glass of water every morning would be harmful if I keep up with my fluids?

Four years ago, I had a positive tilt table test while hospitalized for a week for fainting/tachycardia. During the test, I fainted and my heart beat stopped for about 20 seconds. I was placed on a beta blocker at the time. I have switched around bc I don't like being tired and tend to gain weight on the beta blocker. I also continue to have a lot of extra beats and flutters which showed up a lot on a holter monitor done by an electrophysiologist. I'm ready to get back to the cardiologist (who did the tilt table in the hospital - was really nice) or the electrophysiologist (who was extremely alarmed at my family history, somewhat condescending that I must be a stress case, and recommended I go to a teaching hospital which I can't do right now). I was diagnosed with myasthenia gravis at 20 -I am 37 now. I took mestinon for 10 years. I had a thymectomy at 23. I also was diagnosed with anti cardiolin antibody miscarriages and took prednisone for 1 baby and ivig for my other two. My oldest son has a mitochondrial disorder that has been severely progressive. He is 11, profoundly mentally and physically disabled and very medically fragile. So, I have a history of mitochondrial disorders and autoimmune disorders - both of which I have read implicated in pots. My youngest also was recently diagnosed with type 1 diabetes (autoimmune). So, to complicate matters, 4 years ago I had an emg for myasthenia at a teaching hospital - I wanted to clarify if my muscle weakness truly was myasthenia since my son's geneticists were concerned I had a mito disorder. I had a borderline emg. I went of the mestinon. That is when my fainting started up and I got the tachycardia -- resting heart rate continually in the 100's. Now, I'm reading people actually taking mestinon for dysautonomia! I want to go back on it. My medical history now is so convoluted I don't know where to turn. Should I go to the cardiologist who is helpful, or to the electrophysiologist who was not so great? I can't really afford to go to a teaching hospital for a big work up - my oldest son's medical expenses are astronomical and we're saving for an insulin pump asap. Thanks for reading and any advice!!