Bigskyfam

Yikes. Hope all goes well.

Makes sense. Pupil dilation /constriction is involuntary (automatic) why one eye and not the other... Hmmm

Nortera?

Yup, my eyes and cheeks appear different, bloated belly while everything else is thin... Skin included

Hi guys! I know it's not Thanksgiving yet... But Christmas is popping up everywhere. Beside a functioning autonomic system... What's on your wish list???

I use iv therapy in a pinch... It helps curb crashes. (If I'm nauseated or sick or it's hot and humid.)Also I've learned when I don't need it and to trust my body. If you are hydrated and receive it... You feel worse. Just my opinion. Sometimes I only get half a bag has been helpful before monthly cycles

I left the back office at two days a week and am in med recs four days a week on a good week. The write up was never followed thru. So I've let it go. Manager has been different with me.i am able to contribute more to work and home. We will see.

Raynouds has flared. More mini pots flares. Below zero temps

My old cardiologist said to me after I tried a bb and my BP crashed and I lost my vision temporarily.. Now you are going to take midodrine and add a bb. I said I'd like to wait and do the lifestyle changes and recover from this bad experience she said well if you ever want to work and live again you have to follow the plan. Note... I'm the first pots pt in my neck of the woods. I will not feel bullied to start any medication I'm back to work modified and my life modified from being bedbound. Knowing any moment that can change. Maybe meds in the future. But now the side effects might be worse than the daily grind I experience. How are things now pumpkin?

Same thing happened to me tonight for first time. Heart rate dropped to 60s and BP was high 140/90s... I had just clocked out from work. Hubby picked me up and I came home to sleep.started with Vertigo, I've had pots for one year and I've learned not one of us is the same... And our symptoms aren't even consistent. I'm glad you got checked out and I wish there was monitoring for us to help us and the research in the wonderful world of dysautonomia I'm chalking my episode to the fact that it's below freezing here. Although I was inside and warm. Maybe I got too hot. Sigh... Feel better!

Lol god love him

I have yet to be on meds... I tried a bb and it didn't go well. I'm seeing the most benefit from PT... But cycle weeks are the worst!

Being female and having bloating is driving me bonkers. I've upped my fluids and salt, eating more protein, less carbs... Seriously considering maternity clothing. I'm so disproportionate. Tiny arms and legs and a round belly. Tried gf.. No such luck...thoughts?

Tilt training? Do tell!

Pink Himalayan salt absorbs better I do v8, powerade zero and broths. Yay for cooler weatger to drink soup

I'm glad you are in the hospital setting. I have no real been there done that with what yiu are going through ... Sorry ! I hope you get answers.. Good vibes are yours

Word for word.. Things I find that help... Don't shower a few hours before hand... Have plenty of powerade zero , keep the room cool, take it slow. Normally ours is around the weekend when I can rest a bit more

I've come close many times and out just a handful... I end up going to the floor first before I crash, or up against something and slide down

Pt has been the only new outside the box thing I've tried and iv fluids as needed. Pt has helped

Slow capillary response points to eds

I have it

Breathe! Accept and fight. Dinet has been helpful, specialist appt and I've done 2 weeks of PT and that's been a good start so far... On top of the standard fluids rest salt etc

I'll get the link....

October slide. Cardiology document I read talks about this

It's a warm pool not a hot tub