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Bigskyfam

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Everything posted by Bigskyfam

  1. My friend has both pots and menieres. Talk about balance and struggle. She has to watch her sodium intake for it makes the vertigo worse
  2. Thank you guys. It was too hard and lonely without a furry companion. We were blessed to be asked to be a part of a new furry friends life. He is a two year old male terrier mix that was trained in the prison system in the states. He knows basic commands and is as loyal and helpful as they come. While he isn't a certified assisting dog, he is a smart intune little guy with lots of love and laughs to offer. Which was an easier process than obtaining a service dog and a rewarding one since he's touched so many lives in a positive way
  3. Thanks guys. I love the forums because we share. I enjoy reading it all. I've never been overseas so reading this is like a minivacation. Thanks for bday wishes. I had the day off after working straight. Laid down for a bit in my compression gear and the tables turned. Had to drive to hubby to get help picking up the kids. Nap then pizza and a movie at home I hope. I previously lived in az with same altitude. Previous to that... Coastal.
  4. Second trip to the coast to see my specialist and I felt better there than at home. 3000 feet here. Also interestingly... I lost 4# water weight once I got there and got it all back when I returned. Thoughts or similar experiences?
  5. Hello fabulous five! What a good place to learn, share and grow. 18 months strong.
  6. Early morning hello! Gotta love those middle of the night wide awake moments
  7. Thank you all so much. Everything has been so hard with my symptoms. Today was tough. Got through it. Msg soon
  8. I've had my dog longer than I've had my diagnosis of dysautonomia. Yet it feels like I've had dysautonomia longer. For 3 weeks we've watched our 5 year old dog deteriorate. Pain, not himself... While doctors were left scratching their heads for he didn't look like he was suffering. He took a turn overnight and we got the news that he had an aggressive cancer with no chance if survival. We said goodbye today. My heart hurts literally and figuratively. My companion on horizontal days is gone. While I lay here trying to compose my self and system, I'm reminded that I have an invisable illness and I do have limitations. The grief and stress is great. My vitals don't lie. What I am thankful for is my husband who helped me to the vet to the car and to my bed and who helped me tell our kiddos. He's a strong man. Fluids, rest and time.
  9. Hello everyone. Come on in the water is just right. Not too hot, not too cold. Hope everyone has a good start to their week
  10. Hit or miss. I've used some diluted topically and one drop in a diffuser as opposed to 4-6 drops. Trial and error.
  11. Apple juice, graham crackers and a ride home. You'll be in my thoughts
  12. Any experience guys? I bought a diffuser and some oils. Second time I've been in a flare and chest pain and tachy went away.
  13. My doc says it's common for those with autoimmune issues.
  14. 17 in dec... 24 today after 3 mos of 2000IU
  15. I've had a dog for 5 years, pots for 2 years. He's been a great joy and comfort and pushes me to move as I don't want to clean up an accident later. I do have support from family. I was his primary caretaker til I became ill. He is ill now and that is rough emotionally. The decision is yours. Thanks for asking us for input. I look to dinet family for been there done that expertise. Keep us posted.
  16. Welcome newest dinet dozen. Did I count right? It's been a long day. These eyes need to rest.
  17. Right back at ya. It takes a village. I know I have a soft place to land and a good sounding board here as well.
  18. Lips are always dry and get cracked and painful
  19. What a brave boy and mama. Reminds me of so many strong parents in Dinet land. Stay strong! Horizontal day :/
  20. http://m.today.com/health/miracle-moms-search-clues-helps-solve-boys-mystery-illness-2D80530274
  21. Water, Powerade zero,emergen-c packets for emergencies, dark choc, salty pretzels, BP wrist,cuff, cell phone, peppermint oil, gloves,knit beanie, Chapstick. All on a good day :/
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