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About YolaInBlue

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    Advanced Member

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  • Location
    Florida, US
  • Interests
    travel, fitness, organic gardening

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  1. I've built up exercise to 2 miles walking and 4 miles on recumbent bike on most days. On bad days I reduce or skip walking. I do light free weights and ab exercises twice a week. I used to work as a fitness instructor and did aerial silks before dysautonomia. I used to feel great after exercise. It's frustrating that I can do so little now and I feel so bad after my walks. My blood pressure drops, I always have to lie down. I was bedridden for over 3 months: from September until about Christmas of last year.
  2. With the onset of POTS I lost 10 lbs. in two weeks. I was constantly hungry and eating more than usual, and still loosing weight. I also developed anemia. I've gained 14 lbs since then, due to Florinef and not enough activity (I'm working on that). I noticed that I loose 3-4 lb. when I have several bad days in a row. Now I'm at 122lbs. I'm 5'4". Ideally, I would like to be at my pre-POTS weight, at 118lbs.
  3. I'm one of those people that can't push through symptoms with exercise. If I do, the next day I can't get out of bed at all. I realize the importance of exercise, I'm a certified fitness instructor (though I haven't been working in that field for 2 years), and I was in great shape when dysautonomia hit me. I especially miss aerial acrobatics that I've been doing for 7 years. Sometimes I look at my silks and cry. I lost a lot of muscle initially (3 months bedridden). Doctor that diagnosed me at the hospital (nephrologist) asked me if I was deconditioned prior to my illness. I showed him my aeri
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