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Mrs. Burschman

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Everything posted by Mrs. Burschman

  1. I speak for many others when I say, "We're here for you!" I guess maybe one "benefit" of dysautonomia is that we're all survivors. You'll get through this. I believe in you! I find that Midrin works best for my migraines, but it's so individual. At least there are a lot of options. Let's hope that once things settle down, so will your aching head! Amy
  2. UGH! That sounds HORRIBLE! I don't remember exactly how long my TTT was, and they didn't do the injection, but I know for sure it wasn't that long! Amy
  3. 15% to 20% of the bill is standard in restaurants. I don't know about airport help. If they accept tips, a couple dollars would be good. Have a good time! There's lots to see and do. Amy
  4. Healing to your family. That's really awful! I hope Mack feels better soon -- and nobody else gets sick! Amy
  5. I take an SSRI (Paxil) for this. I really hate taking medication, but on it, I'm a functional human being. Off of it, not so much. I was getting these type of surges nearly nonstop. Ugh! I dont' think there's anything worse! Amy
  6. Not strictly a POTS tip, but a lot of us need to carry pills. Midrin is my migraine drug of choice, but it comes in big capsules, which can't be tucked away very easily without getting smooshed. I hate to carry a purse, so I devised a way to always have some pills in my wallet. I bought a refill pack of the erasers for mechanical pencils. I threw away the erasers, and three pills fit perfectly in the little plastic tube with a lid. It fits right where the wallet folds. Presto! It's there when I need it quick. Amy
  7. If your family gets too cranky, tell them you've developed a sudden allergy to THEM ... and go do something fun! (Just kidding. Families can be trying at times, however.) Amy
  8. I have nothing technical to add to the discussion, but I just wanted to wish you luck in sorting through everything. Big decisions are hard! Also, I haven't seen you around "these parts" before. Welcome! We're happy to have you on board. Amy
  9. Wow. That has to be the fastest-ever dysautonomia diagnosis in the history of mankind! Congratulations! That's crummy about the drug allergies. A lot of us here have problems with drug reactions of all sorts, so you're in good company. They sometimes prescribe Effexor for migraines. I couldn't take it because it TRIGGERED daily migraines. Go figure! Anyway, welcome aboard! Mrs. Burschman
  10. I really haven't. I do know that a lot of studies have found that people with fibromyalgia-type pain have autonomic issues. I wouldn't be surprised at all if it goes the other way, too -- that people with POTS can also have some pain issues kind of like what fibromyalgia patients have. That's just a guess, however. I'm not a doctor, though sometimes I think it would be really handy if I was!
  11. I had a (sortof) similar experience once with Herbal Essences shampoo. I used a trial of it, and my head immediately got really itchy and my throat felt like it was closing up. I must have been really allergic to something in it. Needless to say, I stuck with my good, old, cheap Suave for years after that!
  12. That's really interesting. I might have to try it! Amy
  13. Hello! Welcome! Sorry you're here (in the most friendly way, of course!) Amy
  14. I used to take Imitrex, but I actually have better luck with Midrin. It's an old, cheap remedy that's a combo pain reliever, vasoconstrictor and slight sedative. I have no idea if that's what someone recommended, but that is an alternative for migraine headaches. If I take it right away when I notice an aura, I often avoid the headache all together, which is AWESOME. I've always been thankful that I get auras for that reason!
  15. For some reason, klonopin, Xanax and sleeping pills do NOTHING for me. My doc and I think that I might be lacking the receptors that those drugs work on. Or something. Very weird.
  16. Yeah, I've had lucid dreams before. I've determined while I was dreaming that my dream was too scary and I should change the story, or I'd get freaked out! I don't believe it has anything to do with dysautonomia. I remember reading about it in my psychology 101 course in college. Amy
  17. I'm sorry Nina. That's tough. My dad died of cancer when I was only 23, so I understand how tough it is. Take care of yourself! Amy
  18. Just because it's sound doesn't mean it's not gross.
  19. I'm annoyed right now at Campbell's Soup. I keep seeing ads that they've swapped in sea salt for regular salt in their tomato soup to lower the sodium content. I keep yelling at the TV: "No! Keep the sodium in there!"
  20. I LOVE footy pajamas! I want some! Right now in the winter, I just wear soccer socks to bed. They're so long that even if my pant legs creep up, my legs don't have to touch the cold sheets!
  21. Oooh. I don't do well in heat. How about an Alaskan cruise?
  22. Hi Emma! I'm glad you found this forum. It's extremely comforting to know that you're not the only one coping with these issues -- and that you're not crazy! Welcome aboard! Amy
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