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green

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About green

  • Rank
    Advanced Member

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  • Gender
    Male
  • Location
    St. Louis, Missouri
  • Interests
    Infrared light, vitamin C, to treat POTS.

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  1. Hello All, Recently I learned about square breathing, which involves matching inhalation time to exhalation time. I was advised to use square breathing for anxiety. I have had success at temporarily reducing my POTS symptoms by using square breathing. What I've found is that if I square breath for two - five minutes, then the weakness in my limbs, dizziness, and inability to focus, improves for up to an hour. This is just a very basic thing anyone can try without a doctor and it does not cost any money.
  2. I had a sinoplasty and turbinate redcation for a deviated septum and enlarged turbinates that were contributing to sleep apnea. I did not have any problems. I don't even remember the recovery, beyond that I was worried that it would be miserable to try to sleep with a stuffed nose filled with gauze, but it wasn't a big deal. I was afraid of the surgery and afraid of the effects of anesthesia, and afraid that I would not remember anything from just prior to losing consciousness and this would be evidence that I am disposed to dementia later in life. None of my worries turned out to have any validity - the surgery was fine, the drugs did not have terrible effects on me, and I remember clearly "holding on" to consciousness for an extended period of time after being given the sedating gas and reflecting that operating rooms are insanely sterile and inhuman places.
  3. A Scientific American article highlights the links between increased salt intake and cognitive dysfunction. Apparently salt has a major impact on the gut-brain axis. https://getpocket.com/explore/item/a-new-connection-between-the-gut-and-brain?utm_source=pocket-newtab
  4. He says nothing about the ACE issue. Am I the only person who has noticed that ACE (Angiotensin-converting enzyme) is implicated in both Covid and POTS? the coronavirus gains access to human cells by plugging its spike proteins into the ACE receptors. ACE receptors are particularly prevalent in the lungs. Well, POTS patients often have altered levels of ACE in their blood plasma. Do we also have higher or lower numbers of ACE receptors? I don't know, but it would seem like having more ACE receptors would make you more vulnerable to the virus and having less ACE receptors would make you less vulnerable to the virus. I am surprised no one else has commented on this yet on Dinet.
  5. Hello Ckitz (great name!), In reply to your inquiry: I have found the answer to be yes. I used to live in St. Louis, Missouri but moved to Connecticut for work in January 2019. I have a much better time in the spring and summer here than I did in St. Louis. The difference is quite striking - last spring I thought I was *cured* and quit taking my medication. By August I realized I was not cured and felt disappointed, but this spring I am again noticing how much better I feel. I live and work in the coastal climate zone. I literally am less than two miles from the ocean at both home and work. I've read that being close to the ocean has a moderating and stabilizing impact on barometric pressure and temperature and I suspect this plays a role in the benefits I'm experiencing. This experience has brought my attention to the significance of the winter as well: I feel about as bad during winters here in CT as I did in St. Louis. I notice less physical symptoms but significant cognitive impairment as the temperature drops below 32 degrees. I don't have a good explanation of why this is - I tried using humidifiers to keep the air from drying out, but this doesn't seem to fix it. I also have moderate sleep apnea and I know that sleep apnea is often worse in the winter, so that may explain it. It may also be worth noting that I have a mild case of POTS. I am 36 years old and have had symptoms since I was 18, but it does not stop me from exercising or walking around. I have never fainted. I am a college professor and I had some trouble as a graduate student standing up and lecturing, but that was before I began using medication and lifestyle interventions. I hope this helps! Very respectfully, Green
  6. Hello All, I am very interested in the idea that since the virus interacts with ACE inhibitors, and ACE inhibitors are suspected to be involved in some kinds of POTS, that the coronavirus will have unique effects in POTS patients. I am not saying for ill, necessarily. For all we know, Coronavirus could function as an "upgrade package" that updates the DNA of POTS patients, reducing the severity of their illness! Or we could just be immune to covid! Here is one study on POTS and ACE. I am just posting this to say that ACE is involved in POTS: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3050076/ Here is one a Youtube video saying that Coronavirus has something to do with ACE: https://jamanetwork.com/journals/jama/fullarticle/2763803 This is an important thing to watch! I believe there is a good chance we will learn something new about POTS from the way Covid and POTS interact. In the meantime, I have my own covid prophylactic treatment program of zinc, vitamin C, brocolli sprouts, sleep and regular walks in the sun! V/r, Green
  7. Hello All, I have been experimenting with the racetams. These are a class of pharmaceuticals developed by the Soviet Union to treat cerebrovascular disorders. They available without a prescription in USA where they are considered supplements. The racetams are popular in USA as so-called "nootropics," alleged to improve cognition in normal people. I tried: piracetam, aniracetam, and oxiracetam. I can't speak with confidence about piracetam and aniracetam, but it is clear that oxiracetam improves my brain fog significantly. I am a big fan of this drug. I refuse to take it regularly, but only occasionally, because I don't want to become dependent. I take 1,500 mg in a day in a divided dose (two 750 mg pills). I became interested in the racetams after reading that they increased blood flow to the brain. I am convinced that my problem is that I don't get enough blood into my brain. In general, I have been doing a lot better lately. I don't engage in high impact cardio exercise anymore and I take mestinon. Mestinon is a huge booster for me and I would not compare the benefit from oxiracetam to mestinon. Mestinon is in another ballpark, although its benefits take a long time to build up. All I've noticed with oxiracetam is that I am a little brighter, perkier, and reaction time seems a bit faster. I would be interested in hearing from other people who have experimented with the racetams or have any knowledge as to why they have not been tried more with POTS patients.
  8. I found both the article and the original research paper to be misleading on this topic. The introduction to the research paper says: "The overall results support the existence of a link between reduction of exercise and muscle disuse and metabolism in the brain" There is an implication in the news article something about leg exercises is special, but we never see any explicit discussion of this in the original research paper. Of course, the leg muscles are key to a wide range of exercises such as running, walking, swimming. Of course, if you lose the ability to use your legs your options for exercising are greatly restricted, you will have atrophy. Of course, if you exercise less you will have a less healthy brain. Consequently, many people who lose the ability to use their legs as much as they used to, lose both some muscle mass and some brain health. But nothing I found in the research article indicated that you couldn't take care of your brain by exercising your non-leg muscles. I just comment on this because, for a long time, I was stuck on this idea that I HAD to exercise my way out of POTS or at least, I had to do intense cardio to keep myself from losing my cognitive abilities. It took a long time to realize that over-exertion played a role in keeping me perpetually feeling worse than I needed to be and that moderation was important. I am not saying you have made this same mistake I have, but just wanted to flag a particular mistaken way of interpreting science research on the relationship between exercise and being healthy, for the sake of others.
  9. I was reading recently that estrogen tends to have a vasodialatory effect. Testosterone has a more vasoconstrictive effect. I am always trying to raise my testosterone levels to get more vasoconstriction.
  10. lo Dizzygirls, Yes. Some seasonal effects. Here's an update: I was FLOORED earlier today by fatigue and a heart that was beating too fast! I'd been fatigued and dizzy for three days. But then I: a) took a nap (I work from home on Thursdays) b) ate some salty food c) drank a liter of ashwaganda tea. I feel scads better now! It occurs to me: I was drinking a liter of rhodiola rosea tea a day until Saturday and then I stopped abruptly. But, no ill effects until Tuesday. In any event, doing a lot better - finally got to work. Well... now I have to work late.
  11. Has anyone tried broccoli sprouts? I have been sprouting them in bulk and preparing them in a way that increases their sulforaphane content. My POTS symptoms abruptly worsened three days ago. It's very frustrating because 4-7 days ago I was doing better than usual. Now I am worse than usual. I wonder if broccoli sprouts are responsible for the decline in vigor. I started preparing them for their anti-inflammatory properties. I thought they might make me feel better, not worse.
  12. Hello All, I actually did OK. In the past six days I've exercised every day. I ran Friday, Sunday, Tuesday. I lifted weights at the gym on the other days. I can't do lower body weight lifting because of a leg injury. I'm feeling run down today, and I've felt run down in the past few days, but I also noticed that I've been pretty productive. I am going to take tomorrow off though - six days in a row straight exercise is too much. I'll take a break tomorrow and then run Friday morning again. Thank you for the advice and support!
  13. Pistol, Your hypothesis that POTS has been around at comparable levels of incidence in the population throughout the recent historical epoch, and is not, therefore, likely to be the result of some new toxin or pathogen being introduced into the environment, is intriguing! Do you have any evidence to support it? I am curious. Without more evidence, it seems just plain impossible to say. I see evidence of POTS in my Dad. I've talked to him about his exercise intolerance and told him "it sounds like you have a milder version of the autonomic dysfunction I have," but he doesn't seem interested. I've also seen it in my sister, plus my sister has a history of fainting from orthostatic stressors. Despite all this - you know there really isn't FAMILY history. I remember we all used to go to the park as kids and bike around. Every weekend for many years the whole family would be biking or roller-blading several miles. We didn't get sick back then. But, it is possible that it's just that we're all getting older now. And anyway, we are just one sample. So, IDK.
  14. >So far so good. I don't usually take afternoon doses of my meds but this one I remember everyday. I got some extra chores done and slept well. As a side bonus, crossing fingers it is real, I> >seem to have better motiliy. That would be incredibly super awesome. I haven't taken it long enough to know if I need to adjust my dose up or down--usually my doctors tweak downwards. >I did have bad leg pains last night, I don't know if it is related. I often have pain in my legs but this was a bit more. I like the extra energy but if it's causing the leg pains at night I need to >stop. I had some strange pains in my body in the first two weeks on mestinon. The main side-effect I have is tension in my throat, loose bowels, abdominal cramping and some light-headedness that is somehow, but indescribably, different from the light-headedness I experience as part of POTS.
  15. Wintersown I am glad to hear you're doing well on mestinon! It has been helping me too. Please keep us posted as to whether you find your benefits at your current dose taper off. Did your doctor say anything about potentially raising the dose? I am curious about other people's experiences - I think my doctor said we could titrate up, but I lost my insurance because my work contract ended. I have a new work contract with the federal government, but we are furloughed for the shutdown. I can't get anymore medical attention until the shutdown ends. So, I am taking 90 mg. of time-released mestinon 1X daily. I suspect I need to raise my dose. I could double my dose, but then I'd only have enough mestinon for about another 32 days.
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