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green

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About green

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    Advanced Member

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  • Gender
    Male
  • Location
    St. Louis, Missouri
  • Interests
    Infrared light, vitamin C, to treat POTS.

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  1. Yes, they said I had ADHD as a child. I took ritalin. In my early 20's I was obsessed with this idea that my problems were ADHD / anxiety and I took a lot of psychotropic medications that, overall, caused more problems than they fixed. It is very strange. As a child I took a low dose of ritalin and I hated it - it killed my appetite but it did improve my school performance (although please note - long-term studies show amphetamines do not really improve performance). I tried it again in college, a higher dose of some amphetamine. And I think that the meds worsened my POTS-like issues (s
  2. Hello All, Thank you, Pistol for the link. I went back for my final consultation today: I am pretty normal on ALL tests. Even tests for auto-immune problems. The only slightly abnormal thing was some venuous pooling which they said was probably genetic since my Mom has varicose veins. The doctor said that neither POTS nor dysautonomia explain my problems with fatigue. So there you go. He said it could be mitochondrial disorder but he doubts it. I am inclined to accept this. I do feel better when I drink a lot of water, and I don't handle heat well, and I have brain fog and
  3. Thanks for your support, everyone! It IS possible that I DON'T HAVE POTS. And maybe it is worth the money to know. I finished the last of the tests today - sweat test. Clearly, I am normal for everything. Pretty fit, pretty normal. It is sad because I was just talking to my Dad on the phone yesterday and he describes the same kind of fatigue issues that brought me here. He also says he "gets woozy sometimes" and can't play pickelball (strange game popular with my parents and their friends), so he'll sit out rounds. It reminds me of me not being able to move fast enough in
  4. Hello All, I went to a main hospital in Rochester, MN. In fact, I am still here. They booked me across the weekend, so I came to my first appointment last Tuesday and my last appointment is this Tuesday. They have run a lot of tests: stress tests, autonomic tests, oxygenated blood test, catchecholamine test, blood tests. So far my consultations have been a real bummer. First the neurologist said that while I may have POTS, he doesn't think so, and even if I did, my POTS wouldn't explain my symptoms. I told him I have generalized fatigue independent of autonomic stressors like h
  5. Hello, Yes. I often feel better if I move and sink into a torpor from sitting or standing. At least I can go for long walks even when I feel bad. It is a strange way to be ill: no matter how bad I feel, I can almost always feel better by continuing to move. I had a strange experience last summer. I went for a hike on the Devil's Path in New York. It is among the top 10 hardest public hiking trails on the East Coast. My hiking partner does not have POTS and does not really know about my condition (I think I've told him: sometimes I get dizzy and I take medicine for it). Devil's Tra
  6. Hello. I seem to have trouble with downward changes rather than absolute pressure. But in general this pattern holds: Rainy weather = feel relaxed or sedated and less able to work. High pressure = more energy, sometimes too much.
  7. I also have good and bad days. And I have good and bad seasons. And good or bad years. I suspect that there is some kind of "unstable equilibrium" phenomena in our autonomic systems. That is, our autonomic systems respond to the variable stressors by striking up some kind of equilibrium, which is sometimes good for our functioning and sometimes no good. I've noticed that after I exercise, I may be tired for two days. I tend to feel worse when I fly, but once I flew to Orlando Florida and when the plane landed I was electrified with energy and went sprinting through the airport.
  8. Interesting, I don't like breathing out, so breathing 1:1 is usually much easier than 2:1. You can also speed up your breaths or your counts and that also helps to achieve the ratio you want. Over time you get used to it and you can slow down naturally. Absolutely! I am in the early stages of experimenting. For whatever reason 1:1 has always been agonizing for me. I do wonder if my seemingly-unusual comfort zone of a 5 second inhalation, 5 second hold at full, 10 second exhalation, 5 second hold at empty, might be suboptimal. I remember when my POTS symptoms were the worst in adol
  9. Hello katyroq, I don't know why you would have a paradoxical reaction to square breathing. But, I used to practice Zen meditation at a local Sangha and a big part of the Soto tradition is following the breath while you meditate. I quit practicing Zen because I was getting agitated by the way my breathing would deepen and I would become uncomfortable, light-headed, and get red in the face. When I practice square breathing today I am still noticing that it is something uncomfortable. It is not as a natural feeling as I would like it to be. Indeed, I am using a slightly modified system
  10. Hello All, Recently I learned about square breathing, which involves matching inhalation time to exhalation time. I was advised to use square breathing for anxiety. I have had success at temporarily reducing my POTS symptoms by using square breathing. What I've found is that if I square breath for two - five minutes, then the weakness in my limbs, dizziness, and inability to focus, improves for up to an hour. This is just a very basic thing anyone can try without a doctor and it does not cost any money.
  11. I had a sinoplasty and turbinate redcation for a deviated septum and enlarged turbinates that were contributing to sleep apnea. I did not have any problems. I don't even remember the recovery, beyond that I was worried that it would be miserable to try to sleep with a stuffed nose filled with gauze, but it wasn't a big deal. I was afraid of the surgery and afraid of the effects of anesthesia, and afraid that I would not remember anything from just prior to losing consciousness and this would be evidence that I am disposed to dementia later in life. None of my worries turned out to h
  12. A Scientific American article highlights the links between increased salt intake and cognitive dysfunction. Apparently salt has a major impact on the gut-brain axis. https://getpocket.com/explore/item/a-new-connection-between-the-gut-and-brain?utm_source=pocket-newtab
  13. He says nothing about the ACE issue. Am I the only person who has noticed that ACE (Angiotensin-converting enzyme) is implicated in both Covid and POTS? the coronavirus gains access to human cells by plugging its spike proteins into the ACE receptors. ACE receptors are particularly prevalent in the lungs. Well, POTS patients often have altered levels of ACE in their blood plasma. Do we also have higher or lower numbers of ACE receptors? I don't know, but it would seem like having more ACE receptors would make you more vulnerable to the virus and having less ACE receptors would make you le
  14. Hello Ckitz (great name!), In reply to your inquiry: I have found the answer to be yes. I used to live in St. Louis, Missouri but moved to Connecticut for work in January 2019. I have a much better time in the spring and summer here than I did in St. Louis. The difference is quite striking - last spring I thought I was *cured* and quit taking my medication. By August I realized I was not cured and felt disappointed, but this spring I am again noticing how much better I feel. I live and work in the coastal climate zone. I literally am less than two miles from the ocean at both home a
  15. Hello All, I am very interested in the idea that since the virus interacts with ACE inhibitors, and ACE inhibitors are suspected to be involved in some kinds of POTS, that the coronavirus will have unique effects in POTS patients. I am not saying for ill, necessarily. For all we know, Coronavirus could function as an "upgrade package" that updates the DNA of POTS patients, reducing the severity of their illness! Or we could just be immune to covid! Here is one study on POTS and ACE. I am just posting this to say that ACE is involved in POTS: https://www.ncbi.nlm.nih.gov/pmc/a
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