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About potsgirl

  • Rank
    Advanced Member
  • Birthday 03/23/1962

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Profile Information

  • Gender
  • Location
    Tucson, AZ
  • Interests
    Anthropology/archaeology, reading, exercise, museums, learning more about POTS, history, travel when possible

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9,792 profile views
  1. Hello Everyone! I used to participate and was a moderator for this forum, but got extremely ill and left the site for awhile. Still very ill, but I wanted to get back in contact with the forum and all of it's wonderful members. It's great to be back, and I'll write more later as I have to leave for a doctor's appointment - of course! Cheers, Jana

  2. Thanks to those who replied...Any please feel free to still answer. We're trying to figure out my almost 20-pound weight loss over a month.
  3. Hi Azmusiclover, As you can tell, there are several of us in the Phoenix area. We really should set up a meeting sometime so we can all get together and meet. I've met Issie (wonderful woman) so far, and would love to meet more of you. I'm in Tucson, and my next appointment with Dr. Goodman (great doc!) is on Tuesday, October 9th. I'm sure we'll spend a night or two in a hotel up there, so if anyone's available...let's plan something!
  4. Thanks for the replies, E Soskis and Relax86! And to the poster who emailed me. I'm really interested in the weight loss aspect of Midodrine, please, if more people could answer...
  5. Hello Everyone~ I've been having a lot of problems with my Midodrine, becoming tolerant of my dosages fairly quickly. I went from 5 mg to 22.5 - 25 mg in about 6 months. My doctor doesn't want me above 15 mg, but I can't function without the drug. It's a Catch-22 situation. I have also lost about 15 pounds after taking this medication, and am now dangerously thin. Northera, the drug that Chelsea Labs was trying to put on the market in place of Midodrine, has not yet been approved by the FDA, and it looks like another major drug company is buying them out and will hopefully get Northera approve
  6. Sometimes when I'm moving my head around, especially to the left/right, I get a feeling like my head is full of sand and it's shifting around when I move. Weird...
  7. Hola! It's good to see you here. Please feel free to post anytime.

  8. Bella,

    You are the best friend I could have. Thank you for being you and shining your light on others. Please write soon and let me know how you're doing, sweetie.

  9. Reen,

    I'm glad to have you as a friend. You're a very caring person.

  10. Thanks for adding me as a friend. It's been nice getting to know you a little...

  11. I also vote 'yes'. I've been getting the flu shot for the last several years, and never had any problems with it. My doctor recommends it, too. So go for it!
  12. Maxine~ My heart goes out to you having all of these troubles right now. Sometimes I feel that traveling is just not worth the price some of us pay when we get back and have to recup for days or weeks. Believe it or not, someone here on the Forum has had the same trouble you're having with smelling smoke. She swears she can smell it coming through her walls. She lives in a townhome and shares a wall with her neighbor. It was driving her crazy, too. I'm not sure if she ever figured that out, but I'll check with her. Hope you're feeling better soon! Cheers, Jana
  13. So sorry you're suffering through this....I've had chronic constipation for many years, and a doctor in the ER told me to try 'Senna' tablets. That's generic for 'Senobkot', much cheaper, and you can find the generic at Target or Wal-Mart. I take two in the morning and two at night and am able to go every day, easily. It's terrific. I've been relying on them for about 4 years now, and my gastro and other doctors tell me it's safe to stay on it. I do need to do a colonoscopy soon, too, but I can't seem to drink the gallon of fluid that's necessary! Good luck, and let us know what works.
  14. I got very sick with a viral infection, which affected my heart - dilated cardiomyopathy, CHF and bradycardia treated with a pacemaker. 3 years ago...
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