Thanks for asking, KayJay! She's doing OK. They're trying a second antiseizure med because the first one wasn't cutting it. This one has reduced the frequency and intensity of her seizures, though she's still having a few per day. They're planning to slightly increase the dose to see if that helps. Otherwise, she doesn't appear to have any tumors in her heart, liver or lungs (for now.) The brain tumors are small, and her pediatric neurologist said they appear to be the type that don't grow very fast, if at all, so that's good. We'll just have to wait and see. Kids with tuberous sclerosis can be almost normal, or they can be severely developmentally delayed. We're just praying and hoping and loving her as much as we can! If you want to see what she looks like, here's a link to a fundraising page I set up in her honor through Citizens United for Research in Epilepsy. She's a doll! That's my finger she's chewing on in the photo. http://cure.convio.net/site/TR/Events/Gene...&pxfid=1220 Amy