Mytwogirlsrox

It didn't for me... Made me a little dizzy too

Interesting that POTs is defined as a sustained increased HR of 30 bpm or greater that 120 bpm. Seems like isn't always the diagnostic criteria. Some studies just say an increase of 30bpm or greater than 120.... Interesting

We sound very similar. Im not sure I pool, and celexa has really helped me. I have not a lot of scientific theory to back this up, but maybe the ssri helps because of lack of sympathethic withdrawal? So ssri would calm an over active SYmpathetic NS. ?? Who knows, I still doubt my POTs diagnosis.. Seemed to come out of no where.. I didnt even notice the tachycardia, just felt anxious... Maybe it's that we just don't hold on to fluid like other people so we have chronic low blood volume?? But regardless celexa has really helped me feel a lot better

So I have this, but I don't have any reason to believe that I have EDS. I have heard about Driscoll reflux in the eye etc.. But I'm not sure to what extent blood pooling in the head is abnormal Since, we as human are bipedal and the mechanisms for countering gravity are when bloo is concerned is in our legs etc not necessarily pit heads since we're not suppose to be upside Down, know what I mean? Interesting stuff

I haven't seen a change with saline either unless I'm actually dehydrated. If I'm dehydrated I'm more tachy anyway, so it just bring me back to my baseline ...

I don't know why, it just made me think it's either from being Out I shape (normal people who are out of shape, it takes longer for their heart rates to get back to a resting HRl) or having decreased vagal tone?? Or more sympathetic tone? I didn't think about the pooling... I just didn't think that would be an issue hours after exercise?

Ya probably, it's just that it's hours after I exercise

From sitting to standing I usually get a 10bpm increase in HR unless it's after I excercise then it's more like 30bpm. Any ideas? Does that mean I'm out of shape? Like I'm recovering poorly? Or is it a POTS thing

Rama-- why are you thinking the head full of blood is significant? I've had this for awhile where I'm uncomfortable being upside down etc.. My rad feels like its going to burst or my eye balls will pop out of my head lol... I guess it's not normal lol

Thanks guys for the replies! It's still so interesting to me how we are all so different yet a like

I guess, it doesn't make a whole lot of sense to me.. So our blood pools so our heart is trying to compensate for the pooling by beating faster... But why does it slow down then? My blood pressure stays the same, varies a tiny bit ... I dont regularly check it. I'm not very symptomatic so..?!?!? So anything under 30 is normal? Weird.....

Hey guys Could you clarify this for me. Is POTS considered a 30+ bpm increase sustained or just an initial rise? My HR will go up anywhere from 20-30 bpm upon standing (from laying down) initially then lowers to between 80-90 and generally stays there for 10 or so minutes (I haven't checked for longer periods, I get too bored lol). For instance : 70 laying 93 standing 2 mins 88 4 mins 90 6 mins 83 8 mins 90 10 mins 95 12 mins 92 Just curious do you have a sustained rise of 30+ or is it just an initial rise of 30+ when you change positions then it trends down like mine?

I had my cortisol checked and it was really high... Like 4 times the normal, but I was having severe panic attacks, not sleeping, eating, flushing etc... Endo said it was due to anxiety/stress, which I believe I don't know what symptoms your having, but I have had a whole endo work up ad everything was normal.. But it seems like I have just plain ole Pots

Guys could y'all elaborate in why your taking and how much? I'm on celexa 10 mg and it's helped a lot, but I don't think it's slowed my HR down.. Maybe I need a little increase?

Hi Michelle, I totally hear you on the family thing, I'm living with my parents right now with my two kids and it can get crazy around here. I feel like all I do it clean, do laundry, cook, clean, clean and grocery shop clean and clean some more lol.. But I think I really lucky that my parents have the room for us, can get to know my babies (we've always lived far away from them) plus I have company when I'm not feeling so well. How long do you plan on staying with the outlaws?

I feel better not salt loading, when I was first diagnosed I drank as much gatorade as I could get my hands on.. And ate a ton of salt. I was so thirsty all the time! Now I just drink water and a emergen c & I feel better. I' feel like the Gatorade and salt was dehydrating me.. Funny huh? My lips were always dry, my mouth was dry etc..

I think it helped stabilize my blood pressure, my adrenaline rushes are few and far between, and I sleep better

It's so hard to determine normal now huh? I've been questioning the same thing, I guess since I have realized that im not normal I've always been heat intolerant, to the point that I wanted to vomit and/ or pass out. Roller coasters make me black out... I also had really hard pregnancies ... I wish this is something that I've always had so at least I can fantasize that I will Out grow it

I'm having a hard time accepting my diagnosis

Allaboutpeace... I hear you!

Thanks free lemons..

Is it possible your monitor wasn't picking up all your beats? Does it have the little bar that shows your heart beating? Cain you manually check your HR when it's that low to confirm its accuracy? Sometime my pulse ox says I'm like at 32bpm at sating @ 70 lol... It just doesn't catch all my beats or my fingers are too cold etc.. You might wanna call your Dr if it's really @ 19, 22 ... Especially if your symptomatic

No, but I just got back from an 8000ft elevation camping trip and I felt like poo up there and I feel yucky back at sea level. I hope it's just from dehydration

Funny my doctors first choice for pots mess was florinef too.. In retrospect, it's been since February that I was diagnosed, I would have rather tried non-prescriptions ( salt/ water etc) first. I wish my Dr was more POTS educated. I felt like the florinef made my symptoms worse ( I know it's different for everyone) I know your daughter is young for an SSRI, but I really think it helped stabilize my BP besides just reducing my anxiety. I was always fluctuating and staying around 90/55 now I'm 110/ 60-70. Which I think helps me feel better. I honestly believe that I have anxiety from tachycardia though, it's just that the florinef exacerbated for me

Freelemons- I find it tricky to change positions in yoga with out getting foggy/ greyed out vision. Like going from downward facing dog to an up right position. Or keeping my hands above my heart.. Did you experience this? I wonder if I chug through it , it will get better? I'm nervous that I will pass out in class lol