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mama_destiny

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About mama_destiny

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  • Birthday 06/15/1985

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  1. For me, my doctor was looking for signs of Multiple Sclerosis, because the symptoms I have also line up that. He had me do a brain mri, all was normal there, so he had me do 3 MRIs, my complete spine, which also showed no evidence for MS. I think they first need to rule things out before giving a Dysautonomia diagnose, if they haven't diagnosed you yet.
  2. Thank you for the responses! I've been looked over for MS this past week, but I don't have that. I still believe it's POTS, as I definitely feel sick and have for over 6 yrs now, all with the tachycardia upon standing. The day of the ttt, my hr didn't stay elevated as it does on some other days. I uploaded a video to youtube closer to my ttt appt. day, of my standing hr, I think I will show my pcp that and see what he thinks at my appt. tomorrow. The numbers are on the lower end in the video, but some days they are all higher, it really depends on the day. Some days I jus
  3. Also, I have had all normal bloodwork on thyroid, and vitamin deficiency, and my heart has been completely evaluated(echo. And holter), and is healthy, no IST.
  4. My resting hr was in the 70s, until she put in my iv and my vein "gushed", then it spiked up to the 90's lol. At home I have an oximeter, but not a BP machine. I've taken a few videos of that to have one hand, but never showed the dr. My hr typically is around 60-70 resting, and the rise is usually 30-40ish bpm, and will go up and down between that range, in one 6min video I took, it was pretty low rates, from 68 laying to 112 standing(and fluctuates between 98 and 112. Another video it goes from 60's to 120's bpm. It just depends on the day. I wasn't very symptomatic at my ttt, and the
  5. This was my recent ttt. One dr. said it was suggestive of POTS, but my pcp said we are back to square one looking for answers. I have so many pots symptoms, but I'm confused as ever! Some things I've read say the hr needs to be sustained, but DI.net doesn't mention sustained for the criteria that I'm seeing. Would these readings meet the criteria for pots, or should I start looking elsewhere for my symptoms?
  6. I get this very annoying/scary symptom as well. It's one of the most worrysome for me. It's like the eyes are working in slow motion or something.
  7. My husband has not been supportive a single bit. He has made it clear before that he thinks I am exaggerating, and that I only say I don't feel well to get out of doing housework or other things I don't want to do. It makes me sad. The one person who should be there for me, the one person who could give me a little comfort through it all, doesn't even trust that I am feeling as bad as I explain. He is completely bothered by the fact that I need/want to find a Dr. who can help diagnose and treat me properly. He even fusses about me needing to be on medication. We have the money for it, but he
  8. I do have low blood pressure, my normal is around 100/60, but I've seen it go down to 87/53. It's Labetalol 100mg that she prescribed me. I haven't taken it yet, though.
  9. Mine started soon after I had my son almost 4yrs ago. I was better during my last pregnancy, but as soon as my son was born( a yr ago), within minutes, I felt it all start up again.
  10. Vertigo, and shortness of breath/feeling like I have forgotten how to breathe, which usualy goes along with bradycardia - it bothers me much more than being tachy.
  11. I was prescribed a Betablocker this past summer by a local Cardiologist, who isn't very familar with POTS. He didn't know that I also deal with Bradycardia, on top of the Tachycardia, so I didn't end up getting th prescription filled out of fear that my HR would get even lower than normal. I went to my primary dr. last week to get back on Lexapro to see if that would help me again(it helped before when I had a major episode, when she diagnosed me with "anxiety/depression" , 2yrs ago), but she suggested Zoloft, since I am still nursing my son. Anyways, I let her know that I was prescribed the
  12. I have had 5 pregnancies and 4 live births. I had a missed miscarriage with one baby at 14wks, due to an unknown cause. I didn't know I had POTS yet, but I sure did have the symptoms before(back to the teen yrs, but thought that was my 'normal'), and in the very early months of my last two pregnancies. I was SUPER lethargic, which I went to the ER for, and was told it was just how my body handled those particular pregnancies(my prior pregnancies were not like that). Later though, I felt great, all of my symptoms left, and life was good...until after the delivery, especially my last, this past
  13. Low liver enzymes here as well... I wondered if it had anything to do with POTS.
  14. I know that I have read about people having breathing problems with POTS, I am just wondering what kind of breathing problems? Is it normal to feel like one has completely forgot how to breathe? Is it possible to stop breathing with POTS/due to POTS? I keep feeling like I cannot remember how to breathe and have to manually inhale and exhale, which gets me all messed up because I either breathe too fast or too slow. My lungs feel like they don't know how to expand enough to get the air that I do inhale. It's such a strange, scary sensation. It's much worse when I am lying down, and I notice my
  15. So, I had my follow up with my cardiologist this month about my TTT results, and requested a copy of my "diagnosis" to be sent in the mail. When I was there, he came in and asked me "have you ever heard of POTS?" I said yes. That was why I went in to begin with, because I highly suspect I have POTS. He said that's what he believed I had and prescribed me a Beta Blocker. Anyways, I got the copy of my records in the mail today, and it says: Possible POTS secondary to heart rate exceeding 120bpm w/in 10min of rising. Impression and plan - Tachycardia: Chronic. Otherwise my TTT was neg., because
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