
Mytwogirlsrox
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I'm having mine removed next month, I hope it helps
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Falling/collapsing Without Losing Consciousness
Mytwogirlsrox replied to yogini's topic in Dysautonomia Discussion
It happens in narcolepsy but has to do with the same neurotransmitters were dealing with & treatment is similar -
Falling/collapsing Without Losing Consciousness
Mytwogirlsrox replied to yogini's topic in Dysautonomia Discussion
Have you guys heard of cataplexy? -
Badhbt-- are you still working? I'm chugging through nursing school
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You don't think a virus can trigger an auto immune neuropathy?
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Any Idea On These Symptoms Pre-Pots?
Mytwogirlsrox replied to sue1234's topic in Dysautonomia Discussion
Not sure, but I get this from time to time.. One leg will get goose bumps or my scalp tingles. Is proamitine mididrone -
Im sorry, this must be very stressful for you! Try not to panic, i know non-eds people get aortic aneurysms too. It just means you have a weakened spot in your aorta. I have a intra-septal aneurysm between my atrium. Have you been having symptoms related to it? pain, sob, Trouble swallowing ? How is your cholesterol? Are you on a beta blocker? What did the dr say about your BP? There are stent sthey can place in the aorta to maintain its integrity. That might be a better option if you do have EDS I'm sorry, I hope you can get this all worked out soon! Take care
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It seems really scary! Interesting that it could be a hereditary/ genetic thing rather than a straight allergic rxn
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E Soskis-- personal question, but did they set you up with a straight/ intermittent catheter at home?
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http://www.google.com/search?q=angioedema&ie=UTF-8&oe=UTF-8&hl=en&client=safari#itp=open0 I though this was interesting for all you mcad / mcas people. Angioedema is very similar to anaphylaxis. In fact is can be triggered by ace inhibitors. I learned a little about it today in Nursing school, and it piqued my interest Wonder if it applies to any dysauto folks
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Very Curious About Heart Rate
Mytwogirlsrox replied to Achilles2323's topic in Dysautonomia Discussion
Dehydration Orthostatic hypotension There are lots of others that can cause tachycardia but not sure they're positional in nature ( Addison's, thyroid diseases, kidney and adrenal diseases, structural problems with cardiovascular system, electrophysiology problems with your heart, endocrine diseases, bleeding to death lol, anemia....... List goes on an on lol)