icesktr189

I went to Banner Desert.. I was suprised it was only a three hour wait.. usually its 7!

I totally know what you mean about drinking water vs IV hydration... they definently are not the same in terms of how well IV hydrates you. I can drink water all day and it wont compare to even one bag of saline IV. I can just imagine with 1 liter a day of fluids from IV and some meds that we would all be better off LOL The part that usually stops me is the completely unnessary tests they want to do. I had my 7th chest x ray last night even though I kept telling the doctor that there was no need because chest pain is common with this. I also LOVE the look on their faces when I try to explain POTS and then have to explain it to the 7 other people that want to know. They all give a blank look back and its just annoying wasting your breathe haha

oh saline is salt with water... but I did notice that even after two bags, I was stilll thirsty.

Yes!! GONE after two bags.. no dizziness or anything. I was able to watch tv and not be dizzy or not able to focus! It was just saline I think! Of course I am dizzy again this morning as I am sure I have peed it all out by now lol

I didnt tolerate bactrim... I was given it a couple months ago for a UTI and I knew on the first day I wouldnt be able to take it. They switched me over to Cirpo and I did a lot better on that. However, I wouldnt just stop taking it because staph can be pretty serious..hope you find relief soon!

I went into the ER last night because I was passing out all day and really needed some fluids (I usually avoid doing this at all costs and havent been in a year and a half) but it was INSANE how all my symptoms disappeared after the 2 bags of saline. My ear problems went away, it was the first time I could clearly think in 2 years, and also my anxiety and depression completely went away. I always feel somewhat depressed/anxious and even angry when my POTs itsnt good and after the IV, I felt so happy and peaceful. My mom has a port for hydration therapy and I see no reason why we cant all do it. Sure there is a risk of infection, but when some of us have absolutely no quality of life anymore and cant handle meds, it should really be looked into. As soon as I get into Goodman I am going to talk to him about it. My mom got hers from Mayo

My daughter LOL Seriously she can really get my adrenaline going... she is almost 2 and into everything and no matter how bad my dizziness, fatigue, ect. I just have to push through. There have been sooo many times I had severe vertigo and was making her breakfast or changing her. Thankfully I dont need to do much thinking lol. Other than that meds and water... I also dont eat until at least noon or I will be in a huge mess.

Lexapro.... it was my miracle drug. I have talked a lot about it only because it got me functioning again when other meds like midodrine and florinef didnt. Not only did it raise my bp, but it helped with hormones, digestion, and my mood all in one drug. Only downside is that the beginning was very hard.

Well if you think about it, lack of blood flow and oxygen can really do ANYTHING to the brain... it affects vision, sounds, ect... I think that is why I gave up looking into all my crazy symptoms because there are just SOO many! When I was able to get proper blood flow to my head, all this craziness disappeared.. and now I am back at square one LOL. I too get those and they can be super scary, but for me laying down really helps. Hope that they go away fast!!

They gave me burst of energy I havent had in years... but I notice if I take it for more then 10 days I crash very bad.

Could the euphoric feeling be adrenaline? You mentined cold hands and feet and I always get those when my adrenaline kicks in.

What was crazy was I was having those depersonalization spells WITHOUT any type of anxiety! I also get the confusion and I just call them brain fog... I will forget names, locations, what I am talking about mid sentence... ect. Some times its so bad I forget my own daughters name. Stupid POTS LOL

Google depersonalization or derealization... I get these too and they can be really scary.

If I decide to have a second child, I am determined after to stop my periods completely LOL ..its absolutely terrible how they mess with my POTS.

Yeah I have never heard of that symptom before.. try looking on askapatient.com... I too got pretty bad stomach issues and had to stop. Make sure they gave you the right med lol

I have never tried it, but if I were in your shoes, I would stop at least for now. Those are scary symptoms and doing any dose of steriods with POTS can really aggravate symptoms. I would wait to hear what Mayo says first and then go over a plan of action. Anaphylaxis is not something you should mess around with, and if it is making symptoms unbearable with no promise of help, I dont see a reason to continue. Hope you get some answers soon and start feeling better!

Mine is where I cant remember my daughter's birthday or even her name sometimes. I will be talking and totally space it out.

I actually have it where I am asleep and wake up suddenly and take a deep breath because I think I wasnt breathing...not sure if it is connected, but its scary! I think I stop breathing in my sleep.

Its true that if you are having those symptoms, especially when driving, you really need to not drive. I know its so hard letting that freedom go, but if you were to kill someone with your medical records showing POTS, you could have some serious charges against you I talked to my doctor and he said that even if you dont have symptoms and still have the POTS diagnosis with sycope episodes, the DMV could pull your license and that is without having symptoms! crazy!

I havent drove in two years and honestly believe it would be safer for a drunk driver to drive than me. The symptoms that stop me from driving are severe brain fog, severe lightheadeness, just being upright makes me exhausted, shaking when I did try to drive and all the other pre sycope symptoms. I think driving is so hard for me is because I cant do a mental task with a physical one anymore... it has to be one or the other. WIth driving you have to steer and use the gas and brake and also be mentally alert...I just cant do both. All those things that go into driving (paying attention to other cars..ect) you need to be alert for. I would never attempt it at this point. If I could get my bp stablized and more blood in my brain ( i have severe pooling from my stomach down) I can drive. Luckily I am very black and white with POTS... either really good or really bad.

I get goosebumps a ton...it really hasnt changed for me. midodrine did increase them a bit, but they have always come and go for me.

Mine was overnight... pretty much 0 to 100 in 1 night. I did have symptoms all my life, but they were not disabling.

slightly expressed introvert moderately expressed sensing personality moderately expressed feeling personality slightly expressed perceiving personality I am a ISFP. I used to love going out with friends and always staying busy. Of course all that has changed now.

I watch a lot of tv, which probably isnt healthy, but its an escape from reality and keeps me sane. I even have a tv list I made for my shows and it gives me something to look forward too. before when I was more stable and not house bound, I hardly watch any. I tried to read books, but I am way too dizzy to focus on the actual words. for me, my depressive days are directly related to my bad pots days, and I have been mainly having bad ones lately. I know I dont have true depressuon because when I have a good day, I love to get out and go places. my doctor told me its pretty easy to figure out if your clinically depressed.... he said that people with it dont have the urge to live life, while I am depressed because I do want to live life and cant. sorry if some of that didnt make sense, I just woke up and brain isnt working too well yet lol

Not for awhile now but I did when my POTS was more stable. Everything settles down when you can stabilize your self out, even a tiny bit. We just feel this way because our nervous systems are so messed up. Once my bp and hr were stablized, I didnt have the bp swings and adrenaline surges. There was no need for my body to activate my nervous system 24/7. Have you tried an SSRI? It can really help out with those types of systems.