icesktr189

I have TERRIBLE fatigue...about an hour after waking Im ready for another nap...but when my POTS was controlled, it wasnt so bad. I think its because I have so much blood pooling and low bp, that I have too little blood and oxygen to the brain.

SSRIs lower adrenaline and raise.bp

I heard it was only life threatening when it occurs in some cases...ie benzo withdrawl, head tramas, ect.

My daughter actually went to a geneticist a couple months ago and she said there is research being done that shows POTS on a certain gene.. wish I remeber what it was called.

My insurance was not covered by Mayo either, but my cardiologist filled out a prior authorization form and now I see Dr. Goodman at Mayo.

I have one child who was born march 2010 and I crashed from POTS in January of 2008. My pots wast too bad goung into it. Third trimester was the worse for me as i was fainting and bed bound. Unlike most, I did pretty well after birth until 6:months pp. I havent been the same since. Cant drive or work, house bound. Raising kids is tough, so your best bet is a great support system. I felt like death during the newborn stage waking up every 45 to 2 hour. Its a bit easier now but at two years old my daughter has SO much energy when I dont. I also think it helped that i was 20 when I gave birth. Labor wasnt easy but we both made it out safe

Taking an SSRI for POTS has nothing to do with depression, although some of us do have it secondary. It basically re routes the nervous system. I took lexapro for a year and slowly weaned off of it over a six month period. The only reason i was able to get off was because I started smoking again. If you do get off be prepared for your POTS symptoms to make a come back.

I have talked a lot about lexapro and how it was the best med I have taken for POTSbut also the worst one trying to get on. The first couple week are just plain rotten. It was lie that for zoloft and lexapro. If you plan on starting an SSRI, dont even judge how you are doing until atleast a month after. Unless you are having an allergic reaction, stick with it. Lexapro increased my POTS symptoms tenfold the first couple weeks until I got used to it. I lived off of klonopin and tried to just sleep the days away. I went from being bed bound for 8 months to working and driving again. This is not a quick fix med and the beginning was very rough for me.

For a couple years I had just plain POTS. Then after my pregnancy things started to pop up...severe allergies, never ending EBV, symptoms I never had before, positive ANAs, ect

Potsgirl Im 22 and our age alone its difficult.so its reallt important to find a good lawyer because.its a very long and difficult.process...plus the 20 percent is taken out of your.backpay so you dont.have to come up with it.on your own.

Thats what im applying for too They are going off my dads income thank gosh because I dont have much of a work history either.

momdi Is Micheal a minor?If so disability operates on a diffeent system than adults...the process goes quicker. Yes I am from AZ and applied here. The first two appeals took about 5 to 6 months each. My lawyer then told me it would be minimum 12 months until my hearing. Sorry for taking ove r your thread !

wow ten months is actually considered fast...pretty sad though. In AZ is around a 13 to 18 month wait....just crazy!

Congrats!! How long did it take to get your hearing date once you appealed? I applied Janurary of 2011 and my lawyers said that the earliest i would have a hearing is in December. I guess my state is just really backlogged

Thank you ladies! I know.they do the ten min one but I only lasted 7 so it.really doesnt matter whether it is 45 or not I think im just so freaked out because the last one I was pretty much crying and.begging the nurses to put me.down but they held me up until I had a seizure...i just felt totally out of control with that test, unlike all my other testing. I am hoping this time goes a lot more smoothly

getting testing from Mayo but reaaaally not looking forward to the TTT. At least with the first one I didnt know what to expect. Last time I was throwing up, passed out and had a seizure...after I was in a flair for months. I know its really important but I obviously cant take my klonopin before hand and I know my anxiety will be out of control... How did some of you manage to have multiple TTTs?

No i dontthink so...Dr Goodman just called me today and said that he called up my insurance and they would not budge So i tink im just going to have to pay out of pocket.

Well first I just want to say sorry to all who have messaged me and not heard a response. Shortly after my burning up episodes, i came down with a really bad flu and was in and out of the hospital....ugh so glad that is behind me So my insurance denied my mayo clinic testing (autonomic screen) .Does anyone know if they do payment plans or discount?

Its completely normal Its most likely adrenaline which will settle down after awhile

I dont know because I have had this hapoen on and off for four years now, but this has been going on for days....i am not itchy either. But thanks for the input:)

I have been in a pretty bad flair this month, feeling very dizzy and very, very tired.Two days ago I started feeling very hot. Its almost like a bad sunburn over my entire body. My skin kinda burns and I can feel a lot of heat coming off my body. It very uncomfortable and I haveto use cool washwrags to cool down. I have checked my temp so many time and its always around 97.7. I dont feel like I have too much adrenaline because im not feeling anxious or overstimulated...:im actually the opposite, exremely tired. Also my stomache has been dumping a lot...if i drink water its out of me within 10 mins...same goes for food.Any suggestions???

I saw Dr Goodman last week and he wants me to do a ton of testing....problem is my insurance is not covered and I had to fight tooth and nail to even get in to see him. I know I can do my blood labs and MRI outside of Mayo, but I really doubt I will be able to find a neuro who does all that autonomic testing. I was lucky to get a tilt, let alone all the testing Mayo does. So my question is,have you been to a doctor who knows all of that autonomic testing?

Vomitting, tremors, nausea, ect are extremely common symptoms, even for normal people without POTS. Also anytime you up your dose, even a little, its like staring over again.

oh and you are miles ahead of where I was... if your worst symptom is nausea count your lucky stars LOL. I lived off klonopin and pretgy much hibernated in my bedroom for while.

The rule of thumb with SSRIs is unless you are dying or having symotoms of severe allergic reaction, is just to try and ignore your symptoms for the first couple months. for most people they do go away completely and.even when they do, it can take even longer to see marked improvement from POTS symptoms. If you do a dinet search, I did tons of topics on lexapro. For me the beginning.was terrible and gradually got better to the point I had no symptoms and only improvements. SSRIs are def. not a quick fix and you would most certaintly not know how its going yo be long term with them by judging how you feel after only a couple weeks. I hope you stick it out and start feeling better soon!