icesktr189

Dizzy- No I am definently not any type of free lol... I basically just eat whatever I want except for caffiene. How do you test for Candida? I have seen that diet and OMG that is so strict! I would have no clue what to eat, but at the same time I am willing to try anything. I heard about dye off and I think that is what has stopped me. My friend did grapefruit seed extract and felt like she had the flu for weeks, but I am not sure how fast she went with it. I do take probiotics What exactly can candida do? I dont really ever get yeast infections or thrush so I am not sure if I have it or not

Also I have tried so hard to eat healthy and cut out sugars, but then I feel 100 times worse. Its like my body needs those carbs, sugars, and chocolate to survive lol

I am the exact same way. I constantly crave carbs and sugars that I never did before. This has been going on since I crashed again almost 2 years ago. I have to have sugar and chocolate everyday or I dont feel right. Also I eat some protein and a balanced meal and then immediately follow it up with some kind of sugar thing after. I havent checked my blood sugar levels recently, but I need to start. Should I see a doctor about this, or is there nothing I can really do about it?

I too was thinking that.. those conditions I feel would be next to imposible to completely get rid of without medications. It says they treat the underlying cause, which is dysautonomia, but for most people there is ANOTHER underlying cause for their dysautonomia that keeps leading to it.

I talked to a girl who said that they did accept insurance, but when I called they only accepted like 3 of them and it was only partial. No clue how much it is though

I have had two positves 6 months apart and no diagnosis...

I am trying to cut out more sugar, but I feel so addicted to it, especially chocolate :/ Weird enough I didnt have it when I was pregnant, but I also forced myself to eat like every hour. I am def. going to try to eat more protein though!

Also, for somone wanting to learn breathing excercises to lower hr, any psychologist can help you with that.... mine has been teaching me to do it the past couple sessions. It does help when you are at the store and your heart starts racing. I find though that I NEED my heart to race to keep my bp up, so I dont really do them too much. It is also nice when you are laying down becasue it can help adrenaline surges slow down

I was talking to someone who tried it and they said it raised their bp?? I know you can lower your bp with breathing excercises, but how do you raise your blood pressure? I think its a great way to relieve stress and learn how to lower your hr, especially when meds dont always work, but on the facebook page they acted like it completely cured them from dysautonomia? There are soooooo many symptoms with dysautonomia, and i just dont see how that would fix ALL of them. I am all for something that helps, but that could be misleading.

I realized the reason I wake up every 3 to 4 hours is because of my blood sugar. I wake up STARVING... like I havent ate in days. All I can think about is getting some type of sugar in my body. This happens every 3 to 4 hours in a 24 hour period no matter what I eat or how much. I have tried to eat protein, carbs, sugars, doesnt matter what I still get this. When I finally do eat at night, I cant get back to bed for hours. What can I do?? Tonight I went to sleep around 8 and woke up at 11 pm feeling terrible and craving sugar yet again. Now its 2 am and I cant get back to bed.

I am talking to someone right now who did the program and it seems like it worked for them by breathing exercises to help control hr.

The treatment is administered by placing sensors (listening devices) on the surface of the patient's skin. These sensors are connected to electronic instruments and record a patient's biological information that is controlled by the Autonomic Nervous System. These physiological processes are displayed on a computer screen in front of the patient and he/she is able to monitor them constantly. Thus, patients go through step-by-step sessions whereby they are able to make the necessary adjustments to regulate their blood flow, muscle tension, stress, anxiety, blood pressure, breathing and heart rate while actually looking at all these autonomic functions. Eventually, the process becomes permanent and second nature to keep the ANS functioning normally just like setting an automatic thermostat in our homes. There are no side effects or pain involved but rather the sessions are very relaxing and rejuvenating every time." She uses sensors? I feel like if it was an effective treatment, wouldnt Mayo have caught on by now?

I too have gastroparesis and I am also hypoglycemic so I have to force myself to eat. it stinks... I am either super low on sugar or dizzy and nauseaous from eating. I just cant win.

Also I was on 10 mg( the lowest theraputic dose) and didnt feel numb, just SO much better and happy with life. I was able to start driving, working part time, and got my life back after being bed bound for 8 months. SSRIs are a treatment for POTS. However, I didnt like zoloft. You have to find the right one and it could take time.

I have posted a ton about this if you want to do a search on Lexapro. It was my miracle drug. I too have secondary anxiety/depression and it helped with that and POTS symptoms. I wont lie, the beginning was very hard and I lived off of klonopin until my body adjusted to it ( the first two weeks were the hardest). Eventually I had no symptoms from and it was SO worth it.

oh also I never get adrenaline surges with a cold, its like my ans calms down

naomi I am exactly like you... I felt absolutely terrible before the cold hit and so much better when it does. with my postive anas, I really think it is... I also finally have drainage too which is so much better than the clogged up ear feeling. so if you ever find out whats wrong with you, please let me know because its probably what I have to haha jangle... that could definently help my symptoms

I am either really good for a long time or really bad. I was great POTS wise for 2 years (able to work, drive, go to movies,ect as long as I took care of myself and did things in moderation) and now I dont drive or really leave the house and this has been going on for almost 2 years now. Hoping that I will get really great again.

I used to tolerate it and now I get really bad headaches. I can tolerate it when my POTS is more under control and it seemed to give me more energy and "up" time, but now my bp is all over the place.

I get worse after it from fighting the cold or flu... .doesnt make any sense!

Everytime I get sick (like now) my POTS symptoms almost go completely away, even the OH ones. Of course I dont feel good from the sickness, but I didnt have any dizziness today or feeling like I am going to pass out. This always happens and no doctor can tell me why. I wish I was sick everyday (not really, but maybe they could knock my immune system down?)

I drink a ton of water a day but thankfully I was blessed with a MASSIVE bladder lol. I have tons of tests done that shows its about 3 times the normal amount. I never feel like I have to pee its weird, I have to remind myself all the time, even during pregnancy.

I went for MONTHS with pretty bad cerebral hypofusion and trust me I did not suffer brain damage As soon as my POTS got more under control, all my clear headed thinking came back and I did fine. I wouldnt worry too much over this.

Oh get that lawyer ASAP you only have 60 days to appeal it and the TTT would help to get a on paper diagnosis

Im sorry its such a bummer when you recieve a denial but it helps to know you are that much closer to it! I applied in Janurary of this year (2011) got my denial in July, appealed that and got denied on reconsideration a week ago. Now I am going to appeal that and it could be a year or longer.. its such a LONG process!