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pat57

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Everything posted by pat57

  1. I could not find the post after I went to amazon for this link! http://www.amazon.com/Modern-Buddhist-Heal...howViewpoints=1 check out those reader reviews, I'd say its worth a try. I haven't read the book. good luck
  2. He will let me stay on the Norpace as long as I'm seen every six months , "since its working for you". And also "If I can get it". Two of his patients told him they aren't making it anymore. He said my HR stayed above 100 until I was asleep, and I have POTS. I may have low blood volume. And that's about it. He did name some other drugs we could try or the pacemaker if I need to make a change. I'll relieved about the Norpace. The side effects from the Norpace that I thought would cause hime to take me off, are "not a big deal". Right branch bundle block, the other things might be age related. My ejection fraction is "if anything, abnormally high". me happy
  3. firstly I did not read everything so I may be off point. But if your suspecting pancreatitus, my experience with it is that you feel better standing with your back against the wall. I did also see that confirmed someplace. Been many years since I had it, and brutal is right. You know there is an enzyme blood test for Pancreatitus? Has to be during (and perhaps right after) an attack. You might look into that.
  4. You never know what lesson they might learn by your inabilities. Something valuable could come out of it. But I will tell you what a therapist said to me when I asked a similar question. Well I said my kids deserve the best ,and his reply was, "they only need good enough". I know how you feel. good luck
  5. You are correct Re OH. And SNRI....... I'm on http://www.pristiq.com/treating_depression.aspx
  6. I certainly will let you know what we choose and how it works. FYI Macsmom Pristiq has helped me alot, if your son has NCS and not POTS, I think an SNRI is worth considering. I can actually stand still without symptoms most of the time. Probably important to note that I have OH too. Have not been able to stand still more that approximately 20 seconds -symptom free- for a long time. Over a decade.
  7. Unfortunately he feels I'm in danger staying with the Norpace because it has caused right branch bundle block and Norpace is know to have potentially deadly side effects. I did tell him the benefits outweighed the risks and its not broken so don't "fix" it. He said he would consider it and have an answer after I got tests done. The tests are done. "We " decide on the 23rd. Because I know , they found a murmur, two value regurgs and the bundle block _all new _ I expect him to refuse to prescribe Norpace. There are also rumors that Norpace is being taken off the market. I always thought the HR is what dropped the BP but that may not be the case, thank you for pointing that out- flop. My Base BP has risen a lot thanks to menopause and an SNRI. I just found this...................... "Effects of orthostatic self-training on head-up tilt testing for the prevention of tilt-induced neurocardiogenic syncope: comparison of pharmacological therapy. Abstract Although a wide variety of medical treatments for neurocardiogenic syncope have been proposed, therapy has largely been emperic based on the mechanisms commonly believed to lead to neurocardiogenic fainting. To determine the utility and efficacy of drug therapy and an orthostatic self-training program in the prevention of tilt-induced neurocardiogenic syncope, we investigated 43 consecutive patients who had shown syncope and were induced by head-up tilt test reproducibly, with either traditional medical treatments or orthostatic self-training at home. The initial 19 of 43 patients were treated with either oral propranolol or disopyramide therapies. The remaining 24 patients were treated with an orthostatic self-training program alone. Effects of these therapies on head-up tilt test were reevaluated in all patients. Propranolol prevented syncope in only six (32%) and disopyramide in five (26%) of the 19 patients. There was no significant difference in the effectiveness between them. Syncope was prevented in nine (47%) patients with either propanolol or disopyramide therapy alone, while in the remaining 10 patients it was not. On the other hand, orthostatic self-training program prevented syncope in 22 (92%) of 24 patients. We concluded that orthostatic self-training program is far more effective than traditional drug therapies. Orthostatic self-training is an effective, safe and well accepted therapy in the prevention of tilt-induced neurocardiogenic syncope." I believe I must give this a try. thanks- everyone for your input, its helpful
  8. Pacemakers are a somewhat controversial treatment for neurocardiogenic syncope. Many studies have suggested the efficacy of pacemakers. However, a double-blind randomized trial showed that pacing therapy did not reduce the risk of recurrent syncope in patients with vasovagal syncope. The authors of this study concluded that pacemaker therapy should not be recommended as a first-line therapy for patients with recurrent vasovagal syncope (Connolly, Sheldon, Thorpe, Roberts, Ellenbogen, Wilkoff & Morillo, 2003). the above is from the info page on NCS treatment. I think it should work 100%, being as I faint from low BP and HR. As I have mentioned ,my Dr. wants me off Norpace. I see him on the 23rd. Off Norpace I am a frequent fainter and have serious convulsions. I will be a single parent as of Nov 4th. I need something reliable. What "I want" is a pacemaker and to use immediate release Norpace as a backup. What do you guys think? I have NCS and OH thanks
  9. Hi, That's rotten news. I think you should get a second opinion and see if more effective treatment might be possible. I feel bad for you ,nobody wants their face damaged. I don't want to minimize what he said, but I do hope ,since he said "might" abscess, collapse ... ,that it never does occur. good luck
  10. Your question,"How Should I Feel About Dating Someone New?" is not correct somehow. Feelings are neither right or wrong they are feelings. How do you feel? I'm pretty sure you want to feel different. Anytime we have discomfort "we" want to feel different. So I think your asking how can I feel different. It appears to me that you feel less then. I think we all feel that pretty often but it passes very quickly. Your in this position and its nagging at you. What I try to do is stay in the moment, it is VERY TRUE, we cannot bear past disappointments, present challenges and future worries, its just too much. One day at a time, what will be, will be. good luck
  11. Do you wear latex or rubber gloves when putting them on? Also if you sit on the bed with the leg your working with, straight out in front, I find that helps, and don't rush. Rubber gloves are better then latex- I think. good luck
  12. It is my understanding that Dr.s routinely do "professional consults", which just means he should call another Dr. for informed advise on your case.
  13. I would say that your treatment is not effective and you need to try other things. The down side of letting the Dr.s know how of of control it is , is that you may lose your drivers license. You need to be looked at again, POTS is a syndrome, the Drs. need to tease out exactly what your mechanisms are . good luck
  14. Thanks guys. My daughter did point out to me that she got this concern from cautions on her Nintendo DS system. Its a few years old and I would suppose they are being over cautious to protect themselves, which is, certainly typical.
  15. My daughter had been on it a year and a half. She had nausea the first week off it, it has been 3 weeks now. Her Dr. did say new effects could emerge over the period of a month. This is her 2nd attempt, during the first her depression returned in about 3 days. That's all I can add for you,.
  16. my blood pressure dropped a lot during perimenopause, came up a lot after after menopause. This is documented by my Dr. visits.
  17. epileptic seizures can be distinguished by various signs. Autonomic end abruptly, epileptic diminish gradually. certain seizures (epileptic) curl hands, autonomic does not. Autonomic causes arched back, limbs pulled in toward trunk and then out away from. Also head forward then thrown back. Eyes roll back. Autonomic may have quick recovery, epileptic not likely. You get the idea.
  18. Thanks guys for the encouragement, and Bella sorry they fell through on your house keeping assistance - kinda weird.
  19. My daughter says we can't have wireless internet servers if I get a pacemaker. I did try to find info on-line, and see that AM- FM transmitters can cause something. Well, I don't understand the jargon. Does any body know if its ok to have wireless ISP and a pacemakers. thanks
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