Ernie

Hi Flop, I have been using the Tens twice at the hospital with my PT. That's why she told me to buy one because it helps with my migraines. My insurance pays for it if I buy one but they don't pay if I rent. I went to 5 different stores today with prices varying from 100$ to 900$. My insurance will pay 450$. Hi Sandy, I will PM you. Thanks

Hi, I was diagnosed with a form of Periodic Paralysis. The genetic testing was paid by the government.

Hi Linda, There is a form of Periodic Paralysis without drop of K+ during an attack!

Hi, My PT told me I should buy a Tens to help with my muscle pain and migraines. Does anyone here uses one and have success with it?

Hi, I called the store today and they are going to change the mattress to the softess one. Can't wait to get it.

Hi, This is called coat hanger and it is common in POTS.

Hi, Here is the information about my bed: http://www.rotecbeds.com/client/page4.asp?...6&clef2=247

Hi, I have migraines but not the vertigo. I am seeing a PT at the moment for my migraines.

Hi, Thanks everyone for the well wishes. Mary, I followed your suggestion and found 2x1"x24" mattress that I put one on top of the other in the middle of my bed and I was able to sleep without pain last night. I will call the store tomorrow to ask for an exchange. I think I will ask for the softess. My bed does all the positions: head up, feet up, head up and feet up, head up and feet down, head down and feet up. I keep it flat normally but when I go to bed with Amatine still working I lift the head until the Amatine wears off.

Hi Linda, I have that problem when I an in a bad adrenaline attack. Can you take pedialyte or gastrolyte? This helps me a lot. Otherwise I have to go to the ER to get IVs, like 5-6L.

Hi, My mattress is way too firm it's like a piece of plywood. I'll call the store on Monday to get a different one. All my muscles are sore!

Hi, I am in the healtcare system but in my family in does not matter what's your profession. We are born with it. My brothers are business men and they have it too.

Hi, I am taking Depo-provera to stop my periods and it controls my cyclical symptoms well.

Hi, The socks double my standing time and the hoses quadruple it. When I leave the house I wear the hoses and when I stay home I wear the socks.

Hi, I just got my new medical bed at lunch time. I can't wait to try it. I think the mattress is too firm so I'll see after a couple of days. They are suppose to exchange the mattress if it is too hard.

Hi, I took propranolol and it help me a a lot. I had no side effects.

My dear loving friends, Thank you so much for your encouragement. You always find the right words to touch my heart. Love to all,

Hi, I used one at the hospital and I liked it. I wished I had one at home because I would do my cardio while whatching TV.

Hi, I am sorry Nina that you are in a bad spot again. I hope that you step dad can improve as much as possible and that you get to your own self soon. I was not aware that spasm were invadint Dinet. Tanks for protecting us.

Hi, In my family we seem to get worse as we age.

Hi, We've had this disorder in my family for 6 generations and their is more than 50% of us of have the disorder. It is highly inheritable.

Hi, I don't know if anyone noticed but out of the 13 top posters 12 cannot work (are disabled and can't work). Those posters are generous of their time, knowledge and help many others on the forum. I don't think the non workers mean to hurt others but they want to share their feelings as they have walked further on the road of having this disorder and mourning their losses. We cannot totally understand someone until we walk in their shoes!

Hi, When I was able to work I had to stop working outside because I would on the bus or the subway. So I studied to become a therapist and work from my office at home. I would lie down between clients and sleep in the afternoon if I did not have clients. I hired someone to clean the house and do the cooking. So I only concentrated on working and studying. Now I can't manage anymore. Just taking care of my body takes all my energy.

Hi Flop, Thanks for the definitions. Hi Mary I am astouned that you were diagnosed with MSA without any tests. I agree that you need a second opinion but with a doctor who will test you!

Hi, This is not my medical experience but going on terminology. I think it means that they want to find if there is a lesion in the circuit before the ganglion, after the ganglion or none at all. Ganglions store antibodies and the lymph.