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Ernie

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Everything posted by Ernie

  1. Ernie
    Hi, Ritalin
  2. Ernie
    Hi, Knowing I have POTS and NCS I would not push myself like I did for so many years. I would trust myself that there is something wrong instead of believing the doctors who were saying that it was all in my head. I would never take the med that turned me into a disabled person.
  3. Ernie
    Hi, I recline when I get on the computer. What about wearing sunglasses!
  4. Ernie
    Hi, OK, Now you have to promise that you will stay home for the Holidays!!!!
  5. Ernie

    Flop

    Ernie replied to flop's topic in Dysautonomia Discussion

    Hi Flop, I am surely relieved that you are finally home safe. Enjoy yourelf as much as you can.
  6. Ernie
    Hi, That's so nice that you found a comprehensive doctor and a good staff.
  7. Ernie
    Hi Maxine, Metamucil is a natural laxative.
  8. Ernie
    Hi, I know the feeling. It's a good idea to bring your file. Maybe you could ask the doctor what those abnormal tests could mean and don't let him say or convince you that it's normal.
  9. Ernie
    Hi, I think you should show these results to a competent endocrinologist.
  10. Ernie
    Hi, If you have tachycardia then I would go ahead and try it. If you go to Mayo then that will be one med that you will have tried.
  11. Ernie
    Hi, Now that I look back at it, everytime I took a permanent downfall it was after I had a vasodilator. It is also that class of medication that made me a disabled, bedridden person. Even if it's genetic I was able to have a normal life previously.
  12. Ernie
    Hi, I fell on the ice also yesterday. Both my knees and neck are sore.
  13. Ernie
    Hi, I would go because I would like to have access to more tests to have a better idea of what is going wrong with my body.
  14. Ernie
    Hi, I agree that dysautonomia is better because it reflect more what we have. POTS just talks about HR and it is much more than that.
  15. Ernie
    Hi, I am the type that prefers to know and be prepared. So if you are the same it would be better to have him tested.
  16. Ernie
    Hi Rachel, Congradulation for winning your lawsuit. Are you going to celebrate the event!
  17. Ernie
    Hi, I have been married with the same man for years so I don't know much about courting. I learned that you have to give yourself chance to love and be loved.
  18. Ernie
    Hi, If you feel safe enough then you could go to the private gym and monitor yourself with your equipment.
  19. Ernie
    Hi, Congradulation for your good appointment and managing it well. Good luck on your exams.
  20. Ernie
    Hi, I think that she should be supervised by a responsible adult. She could try one or a few and see how she does. If she is OK than she can do more. She also has to be in contact with herself and stop when she has symptoms.
  21. Ernie
    Dear Melissa, I am glad to see that your fever is under control. I am still sending positive thoughts.
  22. Ernie
    Hi, My BP is low at night and when I feel bad I take Midrodine (even lying down).
  23. Ernie
    Hi, Zofran for nausea.
  24. Ernie
    Hi, I sweat from head to toe so much that I have to change clothes during the day. I even sweet in the winter when it's 0 F. So I have to be very careful not to catch a cold. All my family members who have the disorder sweat as much as if we just came out of the shower.
  25. Ernie
    Hi Tammy, I have not been permitted to take a bath in 8 years because I could faint and drown in the bath. Dr Grubb even told me never to swim alone because of the paralysis. The first time I paralysed I was 17 years old and competing. So I use a shower chair and this is a life saver for me. Also you can use colder water if you can tolerate it. You have to avoid vasodilation with the hot water.
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