Ernie

Hi, I paid for my manual wheelchair and my insurance paid 80% of the powerchair. I was homebound for 5-6 years before I got my powerchair. It did not want any for years and I was always hoping to get out of the slump. But after years of being homebound I decided it was time to act. I am very happy to be able the leave the house alone now. I can't push my regular wheelchair because of the muscle weekness so I use that one only when I am accompanied.

Hi Firewatcher,

Hi,

Hi Flop, That's very good news. Your kidneys are almost back to normal. Keep up the progress.

Hi, I will be thinking of your Melissa.

Hi, I have adrenaline rushes and if I don't stop immediately I faint.

Hi Maxine, I am so glad you pull through this one relatively well and that you had a good team of medical personel to take care of you.

Hi Flop, I celebrate with you! Does it mean that your kidneys are healing? I keep you in my thoughts.

Hi, 0.25mg is the lowest dose. I would try it and if it's not enough I would ask for an increase in dosage.

Hi, I would wait until after the Holidays to make sure that I can enjoy that time with my family.

Hi, Each person is different and each pregnancy is different. The doctor told her that it might have been cause by lack of blood but this is just an assumption. There can be so many other causes.

Hi, I agree that it's with experience and trial and error. Each person has their own limits and you are the best one to know and learn yours.

Hi Mary, I bought mine at Ortho-Concept. There is also Medicus that sells them. You can also buy the thight high. They are similar to the hoses but don't have the panties. I am ordering 3 other pairs this week. I find mine very comfortable. You can also ask the lady to put no compression on the belly. I asked mine to put more compression on my belly because I have pooling there too.

My Dear Flop, I am so shocked at what happened to you. I am so glad they were able to resuscitate you as I would not like to loose you. You are such a nice and friendly person with many more years to live. I am angry that they put you through such a delicate situation by making you wait 5 days for the hip replacement. I will be sending you my positive thoughts. Keep fighting.

hI, There is the gastro going in some hospital here but no other virus that I am aware of.

Hi, I have that and my EP said that they are PAC and PVC.

HI, I have a fitness ball on which I bouce. I wonder if I can have the same effect with it?

Hi Maxine, Good for you for asking for the med you need and for getting it. Good luck tomorrow. I will be thinking of you.

Hi Mary, I had 30-40 mm compression hose since 2002. I just got my pair of 40-50 last week and I wore all day yesterday (12 hours). They are custom made. I find a big difference between each level of compression. If you can't handle the compression on your belly you can ask to have hoses for pregnant woman or if they are custom made you can ask the person measuring you to put no compression on your belly. I would not go without my compression hoses. It gives me 4x time to stand.

Hi, Your bladder problem may be neurological. The Gyn will probably do an internal exam. If you never had sex ask for the smallest speculum because it hurts. They always assume that women have large V.

Hi, I know someone with POTS and an identical twin. Both have the disorder but one is much sicker than the other. Hers is genetic.

Hi, I have heartburn but also stomach ulcers and gastritis.

Hi, Put some mattress on the floor to prevent injury. You can also raise your feet on a stool while going.

Hi, I would teach my daughter to respect her limits as she seems to feel her symptoms. It's one of the most important treatment for NCS. If she does not respect her limits then I would set some. The more she respects her limits the better prognosis she has, especially if it's genetic. She can go upstairs on all fours, or rest halfway upstairs by sitting on a step. My best research website is Dinet. You can also read journal articles by famous researchers, ie Drs Grubb, Golstein, Low, and Robertson. You can also buy books published by Drs Grubb and Goldstein.

Hi, Welcome to our little piece of the world. You will find many friends here and much support.