Ernie

Hi, I have that type of syncope. I absolutely need to sleep to recover and it takes me 3 days to get back to my normal. When I was fainting every day I never got back to normal and was stuck in a whilwind.

Hi, It makes all the difference in the world. For 30 years I was treated as a nutcase (conversion disorder, Munchaussen, phychogenic). Now that I have the medical proof that I have a physical disorder I have proper treatment and the respect of most of the medical community.

Hi, I am really happy that the doctors found a miracle drug for you. Keep up the good studying!

Hi everyone, I know many of us have had false statements written in our medical file, ie Conversion Disorder, Somatic Disorder, Munchaussen Disorder, etc.. After many years of research to find out how to correct my medical file, it seems I found a way. I was told today that the courts have always ruled in favor of a doctor writting a comment or a diagnosis in our file. So the way about correcting the situation is writting a letter with the proof of our disorder and have the letter put in our medical file. So I will be doing that to all the hospitals where I was misdiagnosed. Good luck to all of you.

Hi, Whenever I file a complaint against the medical community either I don't get anything out of it or it backfires. These doctors have so much power. They are like policemen. Whatever they write in our file is taken as the truth. It is so frustrating to be treated unfairly and not even being able to do something about it.

Hi, I have been taking Procrit for 3-4 years, can't remember precisely. I saw a big difference within a few days. It stopped my no-warning syncopes right then. At that time I was still fainting 3 times a week. When I became disabled I was fainting 10 times a day. When I started Midrodine I starting fainting 3 x a week. At first I was nervous to inject me but the nurse showed me how and I never had any infection or side effects from the inection. The first year I had migraines with the Procrit and had to take Topomax. Now I still have migraines but it not due to the Procrit.

Hi, Maybe you could try a pulmonologist.

Hi, I used Rhus-tox, Gelsemium, and others that I don't remember the name.

Hi, I used homeopathy before I became disbled. Now they are not strong enough.

Hi, I did my Bachelor of Psychology while fainting almost every day. I was so behind in my work that I always finished the day before the next semester started. I missed 5 weeks straigth because I was at NIH, 3 weeks straight because I was at Vanderbilt and many other times weeks because I was at the hospital at my place. It was very very difficult for me. I did finish my degree because of will power but I decided to stop university after because it was too much stress for me. I am also disabled for life so there was no point in paying for schooling which would not be useful to work. When I started my degree I thought that I would do what I could. Then when I got into the program I realized that it is a very competitive world and I had to perform. So this put extra stress on a disorder which cannot handle stress. Half the time I fainted within 1 hour of an exam so they had to be re-scheduled. When I fainted it made me forget what I had studied. I had to re-study from scratch. I don't know how a managed to complete my degree. I know that the disability department was very useful because without them I could never have completed. I had friends at university who took notes for me when I was in the hospital. This helped me catch up. Hope this helps.

Hi, I lost a great part of my friends when I became disabled 8 years ago. I only had my best friend left and my sister. Then when I was in the hospital for 3 months last year I lost those last 2 because I almost died and they couln't handle the situation.

Hi, Lyrica

Hi, Cymbalta

Hi, Wow, that's high HR. You must have felt crappy.

Hi, I think they should hospitalise you to try the BB.

Hi, That dose will not cause serotonin overdose. even if you are not depressed.

Hi, Lexapro is one of the medication Dr Grubb prescribes for syncopes and presyncopal espisodes. It help some of us even if we don't have depression.

Hi Maxine, I would just tell them: We have personal reasons which don't permit us to do this trip with you and we are not willing to discuss it. Then you stick to your guns!

Hi Maxine, What a beautiful family. Your granddaughters are so cute. Thanks for the pictures.

Hi, I have been having sleeping problems for many years. I have to take 2 different sleeping pills every 3 hours to be able to sleep. I also have a CPAP which is helping a lot.

Hi, You can have him tested or be careful about the triggers and tell him to avoid them as much as possible.

Hi, My sister has fourn children and they all have POTS and NCS. My brother has 3 children and they all have POTS and NCS. My other sibblings who only have one child, the child has the disorders. It is quite tragic in my family.

Hi, What an ordeal. I hope the situation will be settled soon.

Hi, When I was 17 years old I was tested and my urine was extremelly concentrated. I was only drinking 4 onces of water per day. So the doctor told me that I was dehydrated and to drink more. Maybe you don't perspire enough and you have to go through your bladder for all the excess water. I now drink 2-3 liters of water per day and it seems that my urine is normal, the output is only 1 liter.

Hi, Maybe you could try a different BB.