dezyrae2
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dezyrae2
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My main interests are my kids. I have two daughters and they are the loves of my life. I also enjoy sports, music and tv.
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I have had that happen to me also. The past few days have been very bad for me. I cant wait till april to go back to the cleveland clinic for testing. I am hoping for some answers. I just added you to my facebook page of friends because i saw your link on this page. I hope you'll accept my request. My name on there is Desi Labanoski. Also I see you are from PA I am also.
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I had one a few months ago and i felt nothing. The nurse injected the solution in very slow and that made it much easier and i didnt feel that rush feeling. It was fine. Good luck.
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Just wondering if anyone has seen Dr Fouad at the Cleveland Clinic and what results they have gotten from her. I am scheduled to see her on July 28th and would like some input if at all possible. Thank you. Desiree
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Thank you for the reply. I wish you all the best at your appointment and am looking forward to talking with you about your experience. Good luck and safe travels!!!!
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Hi, I was wondering if any of you have gone to the cleveland clinic and were seen by Dr. Fouad? I have an appointment at the end of July and was just wondering how she was as a pots doctor. Also did she do tests that day or order them for later. I live in northeast pennsylvania and it is a six hour drive for me so i just wondered if this was a one trip deal or if i may have to go back. Also if you did go there and have to stay over, where did you stay. I see several hotels near the hospital but i just thought if anyone else stayed there they may have a good suggestion. Thanks for the replys in advance!
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I was a hairdresser with my own salon for a few years when i was diagnosed with pots and the doctors said the chemicals were part to blame for the problems i was having. They told me no more perms or colors and i know when i do my own color now i suffer.
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Lack Of Perfect Control Over One's Body
dezyrae2 replied to mkoven's topic in Dysautonomia Discussion
This is just too funny that you wrote this because I love this show and i often think the same thing. I wish there was a health show to make all of the problems that we have just go away. I would work my tail off to get rid of these problems. I just am glad that someone thinks like me. -
Amazing job.
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I am very frustrated. I went to the ep last week and had my third ttt. When it was over they told me I had POTS, but i have been being treated for pots by this same doc for the last 5 years. What the heck? How do you keep diagnosing someone with the same thing over and over and not give any treatments? I went to my family doc today and she was floored!!! She is now going to see about sending me to the cleveland clinic. The other thing is that now i have to get an ultrasound of my thyroid and see an endo doctor. I had radioactive iodine to destroy my thyroid 12 years ago so i dont understand why i have to get this now. I had graves disease but i thought that the iodine made it go away. I am just so confused and I am feeling totally depressed all of the time any more. I just keep getting these stupid adrenaline rushes, heart rates in the 150's, dizzy all of the time and sick to my stomach. I just wonder how to deal with feeling so in the dumps all of the time. This is so frustrating cause i do what i can but i cant do near the things i used to and i feel like such a waste to my family and friends. Also i applied for ssi and still haven't heard a thing and it has been 2 months already. Sorry for all of the whining but I just feel so lost. Thanks Desiree
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Just curious if anyone ever went to the cleveland clinic. I live in pa but my eye dr told me his wife went there and had great results. I don't know if I could even go since I have medical assistance insurance but I just wondered how anyone else did there. Thanks.
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I dont know if any of you watch dancing with the stars but last night the first dance had a song on it that could be the theme song for all of us potsy people. I cant seem to find any humor in this problem at all but this song fit so well. I googled it and it is called gravity by john mayer. Download it and listen to it for a little chuckle. You would think he read this site and then wrote the song. Hope not to offend anyone with this I just found some of the words fit me with pots so well. Hope everyone is doing a good as can be.
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A few times in the last month I get woken up and I am extremely sweaty, my heart is racing and i am totally out of breath. The only way I could explain it is as if you were holding your breath under water and you come up for air. I dont know what it could be. Any ideas? Thanks
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Do You Ever Begin Something Thinking You Are Able To Do It
dezyrae2 replied to sarct's topic in Dysautonomia Discussion
I did just that today. I went to basketball practice to help my fiance which i used to do myself and i hardly did anything and my heart rate shot up, i started sweating and i lost my breath. I was only up about 10 minutes. I get very frustrated cause i used to coach my own team and i sometimes feel like i can but days like today remind me just how sick i really am. It is very frustrating. I hope you feel better soon and dont over do it. I guess i should practice what i preach. hahaha -
Hi All, I had my social security hearing yesterday and it was actually a piece of cake. I was really nervous over nothing. The only catch is that they said i wont have an answer for about 3=6 weeks. I thought they would tell me right on the spot. But at least the waiting for the hearing is over. I waited over a year. Now just have to wait for an answer. Thanks for all of the good thoughts though. You all are sooooooo great!!!!!!!!!!!!!!!!!!!!!!
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I have my Disability hearing tomorrow at 2pm and I am really nervous. My future father-in-law just passed away last week and now my hearing is here and my nerves are shot. Does anyone else have major pots flairups with excessive stress. I really dont know what to do to calm down. I am just glad i can come here to talk. Thanks Desiree