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ana13sanchez

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  1. Autonomic dysfunction (or dysautonomia) What is it? Autonomic dysfunction (or dysautonomia) is defined as a disorder of the autonomic nervous system which is due to abnormalities of one or both of its sub-systems. The ANS controls the heart rate and many other vital functions. A disorder of such a system may be silent and can cause sudden death if not detected early. In the case of diabetes, dysautonomia is due to damage of the nerve fibers of the autonomic system caused by glucose. How does the ANSiscope reflect this? Since the ANSiscope measures the activities of the parasympathetic and sympathetic systems with every new heart beat, it further becomes possible to integrate the way these two systems function together, how well they interact. Based on the measurement of these activities, the ANSiscope offers a specific measurement of autonomic dysfunction. How is the measurement made? The patient is required to be in a supine position (i.e. to lie down) and at rest (i.e. without any external stimulation). The ECG electrodes are connected to the body and readings for 500 heart beats are taken, representing around 5 to 10 minutes. At the end of it the ANSiscope displays two pieces of information. 1. A percentage of autonomic dysfunction 2. A classification of the patient according to the percentage of dysfunction Because the ANSiscope is able to make this measurement, it is an excellent tool for the prevention of the complications of diabetes. Many endocrinologists have said that it is possible to treat this condition if it is detected early enough. The American Diabetes Association recommended (as far back as 1988) that ANS testing be done on at least a yearly basis when diabetes was detected. However, no measurement device was available to allow this to be done simply and elegantly, no ANS testing existed prior to the measurement capability of the ANSiscope. Some MDs previously proposed a sequence of cumbersome maneuvers (such as the Valsalva, the Tilt Test, or Respiratory Sinus Arrythmia) which require too much time, full participation of patients and subsequent analysis, for being able to test this dysfunction. In fact this autonomic scoring is nor accurate, nor reproducible. No measurement device was available until now to allow this classification and detection to be done simply, elegantly and quickly. How does it make the measurement? We define autonomic dysfunction as a lack of coupling between the sympathetic and the parasympathetic systems measured by our two ANSindices . A mathematical evaluation of this lack of coupling provides the two indicators of autonomic dysfunction, namely the level of the dysfunction and the degree of autonomic neuropathy. Some preliminary results presented at various conferences (available on this web site) show that the dysautonomia measurement of the ANSiscope is able to order the patients in very clear groups according to their levels of dysfunction. Furthermore, these groups stay stable under changes in the observation window and do not overlap, so that it is only necessary to have a 5-10 minutes measurement under supine conditions. The measurement is thus highly accurate and stable, providing excellent repeatability. Doctors are now able to chart the course of DAN in their patients and can very quickly determine whether this particular complication of diabetes is stable, progressing or regressing. How can it make a difference ? Accurate measurement is at the core of prevention. Treatments can now be adapted to the condition and neuropathy stage of the patient, knowing what to do, when to start and through measure one can further assess how to dose and when to stop the treatment. Drugs acting at the sole level of nerve damage could reverse functional disorders of the ANS, stage which is known only through the ANSiscope?s instrumental measurement.
  2. FDA hasn't aproved yet, but you know how long it takes for any new medication to be aproved anyway, it has been used in India for about 40 years and this lab is starting to move outside India, they are starting for South America, this birth control pill has been started to be sale in Peru since last month, so I think they will reach many other countries later. I am looking for the information I have read about this pill, and I will be posting this. http://www.hindlatex.com/TipsnGuidesdetail...170&type=25
  3. Hello Jana!..... Mirena do have hormones: Mirena (levonorgestrel-releasing intrauterine system) slowly releases very small amounts of the hormone levonorgestrel directly into your uterus, I have mitral valve prolapse wich cause me tachycardia, so I am trying to quit on hormones. Thank you )!!
  4. I have been taking birth control pills, Jazmyn, but many others before..... about 6 years, and I must say it really changed my life, even made worst my dysautonomia symptoms.....my cardiologist, nutriologist, etc... have told me I am not a person who can take hormones because aaaaaallllll of my problems (health) so I started searching and searching and I found out about Saheli pills, this are being used in India since 1970 and are effective about a 99%, I even contacted the lab that are making this pills and they put me in contact with their sales offices in Peru (since I am in Mexico), the thing is I bought this pills and I have about 2 weeks taking it and I must say I am starting to feel less inflamation in all my body, and I am starting feeling "ME" again...... have someone tryied this pills?????
  5. Mine appeared 2 months after my son was born, I had a cesarean surgery, it was programmed but by the time I had the surgery, it seems like he was turning blue because the time for him to born was ending! so doctor was cleaning (like cleaning a table) inside of me as my baby was already defecated.... so.... my son was born with lactic intolerance, severe reflux and because of this he couldn't sleep well and was crying all the time.... I had a terrible time or what I consider the worst time of my life.... after all this suddenly I had a vasovagal syncope while I was sleeping, I woke up with nausea, had to go to vomit, sweating, tachycardia, dizzyness, diarrea) and I have been sick for 6 years, and symptoms are just growing and growing.....
  6. I have been searching and searching to try to find an answer for the weight variation of the most of us who are affected by dysautonomia, as hypothalamus is the control center of nervious system and considering dysautonomia is a disbalance of this, I have read that hypophysis could have a bad function if it is nor receiving a good blood irrigation, can this could be a reason why many of us are always loosing or gaining weight???.......
  7. 1. Do you believe -or has a doctor told you - that you experience blood pooling mainly in your legs? YES 2. Have you ever been diagnosed with EDS or suspect that you may have it? NO 3. Do you experience symptoms when lying down even after a night of sleep in your bed? YES, I SUFFER VASOVAGAL SYNCOPE ONLY AT NIGHT WHEN I AM SLEEPING. 4. Have you ever been diagnosed or suspect that you have what has been called the Hyperadrenergic form of POTS? NO 5. Have you ever been informed by a doctor that you have low blood volume? YES 6. Do you experience stomach-related symptoms similar to what has been described as Irritable Bowel? YES 7. Do you believe you experience excessive vasoconstriction of your hands and feet after standing or when symptomatic - which MAY be demonstrated through a feeling of them being cold or without visible veins? YES 8. Did your POTS arrive suddenly? YES 9. Is your skin pale? YES 10. Please the top 6 worst symptoms that you experience with POTS: VASOVAGAL SYNCOPE TACHYCARDIA FATIGUE DIZZYNESS BRAIN FOG HOT WEATHER INTOLERANCE
  8. I have experienced the same situation, but it hapened to me when I drink more than 3 glasses of red wine..!! I belive it has to do with dehidratation.... as alcohol do that, the first time I thought I had an infection, but I didn't.
  9. After being a very fit person, I am with this disease, dealing with all the symptoms.... and gaining weight!! I have been sick for about 6 years, but since 3 years ago I can't stop of gaining weight, no matter what I eat, I have always eaten weel, taking care of what I eat, usually healthy things, almost nothing of animal fat... etc....but keep going up on weight.... now I am in the same situation before I was diagnosed with dysautonomia, nutriologist I have seen they simply can't belive I can't lower my weight, or don't belive I follow my diets..... I am now, 10 kgs overweight..... and it seems nobody can help me..... at least to understand why..... I wonder if this thing also comes from dysautonomia. I am thinking on see a bariatric doctor.... anybody with the same problem?...... Now, I am taking efexor (18 mg), and concor (bisoprolol 1.25 mg).
  10. WOW I am on the same situation! I have gained about 10-15 kgs since I got sick!!! I have tryed everything!! I eat just so little, it is true that I can't workout almost anything but I have never be this fat!!! I have been sad, angry, depressed, ..... but I just see that is not in my hands!! I have been on diet with many doctors, and they think I am not following it right, or think thant I am lazy.... some of them have gave me diets low on sugar and the only thing I get is a crisis.... please if someone have found the reason or a solution, let me know..... (I have been tested with an endocrinologist, she didn't found nothing wrong...)
  11. I totally agree!!! it is terrible that many doctors are just not interested in this subject, I think they can't even read or search!!!!! can you guys imagine being in Mexico with this illness???..... we are in many medical stuff long long way behind USA, so this is just like being completly alone here.....
  12. I have the same problem, when I go out, I usually have to take a minute (being already on my car) to think where I was going...? then.... what way should I take....?? and when I am talking with somebody there are a lot of words I just can't remember, so I have to think and think and sometimes I just can't even complete my ideas as I am short of words...!!! or even I have forgoten what whas I saying..??? I think each day is worst...... this simple things have changed our lives .... don't you think??
  13. I feel the same way, and have the same situation with my poor son! I am always tired, I can't stand the hot weather (I live in Guadalajara!!) and my mom always tell me about my bad mood, or I have no patience with my boy, I have no interest in anything or anybody.... I am taking 1/4 of effexor, but just for the dizzy simptoms, anyway I used to take 1 capsule but it didn't worked for my mood anyway.....
  14. I started with syncopes about 2 months after my son was born, i had a surgery (cesarea) and now he is 6 years old, I don't know if dysautonomia was because of this, but everything has becoming so hard since then......
  15. I have high cholesterol levels, I cant remember the results on my tests, but it was high and also my triglycerids, blood pressure, and tachycardia very often..... I was prescripted on metropolol but it makes me feel terrible!!! I couldn't even drive!!! or even turn my head..... I felt very dizzy, nausea, etc.... so my doctor changed for bisoprolol 1.25 mg per day, but sometimes I have to raise the dosis to 2.50 per day because the tachycardia.
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