gertie

I absolutely understand how you feel. When I know I have to go out for more than a few min I get so anxious I end up with nausea. Ativan helps if I take it about an hour before leaving home. I don't take it but maybe once a month in the lowest dose.

Mine runs from 95 - 97. What I find strange is if I use an ear thermometer mine will be 100. I thought it was my therm but others have tried it & they are normal.

I don't know if it's normal for your med's or not but my GP has been hesitant about giving me anything for my BP. Doc says he's afraid if he gives me a BP pill it will make me worse because one time my BP will be 190/89 & within a hour or so it will be 120/70. If I take something to lower my BP it will be too low. I don't know what the answer is. Good luck!

It's not by choice but I'm not on anything on a daily basis. I have one med that I take as needed for seizures which thankfully is not very often.

Does anyone have a problem with Tylenol? For years it has been the only pain/ temp reliever I could take but the last time I took one I passed out. I'm wondering if anyone else has had this reaction. Thanks.

Kate, Ditto everything you said. My Dr's have given up on finding any antibiotic I can tolerate as well as most other meds. I don't know if it's Dysautonomia related or not. I do know I was able to take an antibiotic occ before I had Dys. I'm in my late 60's & I know the time is near I will have to have an antibiotic to live. It's very scarey.

I don't feel like exercising. If I manage to fix my meals & do a few chores around the house I've had a good day. It takes me 2 days to get over going to a dr or dentist. Sometimes I would like to get out & walk but I know that I would be debilitated for a few days & it's not worth it to me. We all know our limits.

Do you think the pregnancy hormone Estriol was the reason you felt better? They give Estriol for post menopausal symptoms, but I doubt they would prescribe it for women in their child bearing years. My dr tried me on Estriol bio-identical but it triggered my seizures so I couldn't take it. Estriol is not supposed to have the side effects the other female estrogen has.

Cipro caused me to have seizures but hopefully you will be able to take it. Maybe start with half dose & see how you feel.

I find if I have a bad episode I never get back to where I was before. When I was young I could bounce back & recover rather quickly but now I never feel well.

Have you tried Ativan?

Thanks for your replies. I need at least 2 root canals. I had my amalgams removed & the dentist drilled too deep & got into the nerve so now it needs a RC. My environmental health dr says he doesn't like the idea of RC but sometimes it's necessary. What worries me is that I will go thru the RC & then still loose the teeth. All because of careless dentist.

Thanks everyone. The metal I'm speaking of is the post they put in the tooth after cleaning out the tooth. It's my understanding they always do this because the tooth is now a weaken dead tooth. I think people with autoimmune illness may have a negative response to this. The disinfectant used to clean the tooth is sodium hydrochlorite, which is bleach. I hope I'm wrong.

I've read so many negative things about root canals. A lot of dr's now think it shouldn't be done especially if we have a compromised immune system. Having metal post in the mouth lead to more sensitivity. Metal conducts electricity. I also read that altho they cleanse the tooth they can't get rid of all bacteria in a tooth with RC. What are your opinions. If you have RC have you had any problems with them? Thanks.

I had an allergic reaction. Some of them caused itchy whelps, throat closing, others caused violent colon cramps & I would pass out. Others caused seizures, sometimes I would just faint. I've had so many reaction I can't remember them all. I have no idea what I am going to do when I need an antibiotic again. Very scarey.

I wish I had a magic pill for you. I started going thru MCS & Dysautonomia nightmare about 30 years ago. I could not tolerate my home or anywhere else. Everything I ate caused some kind of allergic reaction even seizures. I went to the EHC in Dallas,Tx a couple of times having allergy testing. After 3 months & a lot of money I couldn't take the allergy shots, they made me worse. I did learn I should eat organically grown foods, & what to get out of my home that was making me sick. Altho, I did everything I supposed to do I'm as sensitive today or more so than ever. I finally saw a neurologist for migraines that told me I was having seizure activity & my brain was ( I believe the term is "firing too much") & he put me on Neurontin to try & control my daily migraines & help me rest. There are newer medications since Neurontin but I've stayed with it because it was the only med I could tolerate & I am afraid to change. I took it on a daily basis for a few years but now that I'm older & my migraines are not as often I only take it as needed. It helped me keep my sanity (I think). For some reason I could also eat more foods with less reaction. I find the generic neurontin/gabapentin does not work as well for me as brand name & I've heard others that take it say the same thing. Sorry this is so long, hope it made some sense & that you find something to help you. Good luck! .

I do that if my glucose level drops. I sweat profusely, my hair will be dripping, & I usually hit the floor. I have also had those symptoms when I was exposed to a toxic substance such as pesticides. The toxic exposure took a lot longer to recover from, usually a few days.

Thanks tennille, That a lot of good info. I've only taken Ativan when I'm really stressed. I may ask the dr about Valium again. I tried it once & it also gave me a bad headache. If I took 10 mg of Valium I would never wake up. I take 1/2 of a .50 Ativan so far. I'm not sure there is enough of any sedative that will calm my anxiety about the dentist. Thank you very much.

Is your new home built with environmentally friendly materials such as formaldehyde free insulation & non toxic glues etc? I bought radon testing kits & tested our home. I'm not sure they are as reliable as professionals but it's not expensive. Ours tested under the danger level. If what I read is true it is a cause of lung problems. I hope you do better in your new home.

When I first started getting sick I was so sensitive to my house I had to wear a mask inside. My DH also had allergies. We started taking out carpet, scented products, shoe polish, dry cleaned clothing etc. It took a long time but I finally got it clean enough I can live in it. I had to, I couldn't tolerate a new house. I am still very sensitive, if I don't dust regularly I can smell the dust. It's a miserable life. Have you checked your home for radon?

I know we've discussed this before but I have a question. I'm trying to figure out if some of my symptoms are anxiety/panic attacks. I've always thought that most of my nausea when riding was caused from inner ear problems but when I left home for my dentist app't yesterday my stomach seemed ok. The closer I got to the dentist office the sicker I got. By the time I got to the waiting area I thought I would have to re-schedule my appt. but I put an 1/2 of an Ativan under my tongue & in a few min I started burping. This time I didn't mind the waiting & by the time the nurse came & got me I was feeling better. I didn't get sick riding home so it probably was not inner ear. I know this sounds gross, but do you burp when you are nauseous? If so do you feel better? I know the burping was not because I had swallowed air. I do this a lot when I get nervous. Thanks.

Thanks lieze, I am so sick of myself because I can't take med's. Most of the dr's I have had in the past hated to see me coming because they knew whatever treatment they tried on me ended up being a disaster. Once I over heard my fav dr. say to her nurse "here comes the woman that is allergic to everything". I never went back to that dr.

Naomi, I think, I read in a discussion on the meniere's forum that some people with Meniere's don't have vertigo. I have had symptoms you describe without the vertigo hopefully that doesn't start for you. A lot of my symptoms are caused from an environmental toxin such as smoke, perfume, cleaners etc. There are a lot of foods I don't test allergic to but I am sensitive to such as tomatoes, chicken,etc, anything with citric acid or additives in them. Eating them doesn't cause me a rash, sneezing, or the typical reaction but it will cause my ears to feel full or congestion. Can you take antihistamines? Even if it isn't an allergy the AH should help remove the fluid. If it is Meniere's you want to be careful not to get water or any liquid in your ears or it could cause vertigo. Hope you figure this out soon. By the way, I didn't get an email but I've been having computer problems so that may be the reason.

Thanks. It must be the greatest blessing in the world to be able to take the meds you need. I feel like such a big baby when a dr is suggesting I take a certain med & I have to say I can't tolerate it for whatever reason. I feel they don't believe me.

Was the Dr you saw an ENT? Your symptoms could be Meniere's. Do you have vertigo attacks? With Meniere's it's fluid in the inner ear & I don't think they can see that. Mine started with constant ringing 24/7 & has progressed to hearing loss. Some people say antihistamines help the pressure. You might want to check out meniere's.org forums for more info.