songcanary

Members
  • Content count

    540
  • Joined

  • Last visited

Community Reputation

0 Neutral

About songcanary

  • Rank
    Advanced Member
  • Birthday 07/20/1955

Contact Methods

  • ICQ
    0

Profile Information

  • Gender
    Female
  • Location
    OH
  • Interests
    All things pet-related. Dogs & birds especially.

Recent Profile Visitors

2,577 profile views
  1. Hi Kim, I understand what you are going through. I would recommend Michael Waickman MD in Akron OH. Patients travel hours to see him. He is an allergist/immunologist and is top notch. But it does take about eight weeks to see him as a new patient. He literally saved my life several years ago and I still see him today. He is thorough and really cares. I am fortunate to live in Akron but I would drive from anywhere if I moved!
  2. An excellent visit!!!

    So very happy for you!
  3. Excellent article. Thank you so much!
  4. Thank you for posting this. I have always made my own because the commercial stuff I have seen either contains corn syrup or preservatives. So nice that this is so pure! I have many allergies and my choices are so limited. Good find!
  5. Chicken or egg question.

    Angelloz, I am in the same boat right now. Was doing pretty well until March when I started having occasional anxiety-like symptoms. At that point I assumed it was anxiety. (My husband committed suicide in Oct 2015) Now this week I have been nauseous, headachy and very fatigued. And I don't know if it is anxiety or a dysautonomia flare, because I don't really feel anxious about anything in particular, but when I feel physically sick I do tend to get anxious. I live alone and have a house & pets to take care of. Usually when this happens it only lasts a day, maybe two. But four days in a row is beginning to worry me. I do have a history of anxiety but have never been on meds for that. So I understand what you are going through. I think stress can be a contributor, but I don't think it is the only one. Those of us with dysautonomia have such delicate systems that it seems like it doesn't take much to tip the balance and cause symptoms. Hope this makes some sense lol.
  6. I get hives too, from food allergies. Just had some last night and I am not totally sure what even caused them, ugh! And I am pretty hip to the food allergy game. I had to laugh when I saw you mention that you ate hot dogs. OMG I would be one giant hive if I ate even ONE of those! Turns out I have multiple food allergies and I have to eat totally clean; no preservatives, mostly organic etc. I wonder if this could be part of your problem.
  7. Could it be pheo?

    So nice to hear from you. I saw my gp today and he thinks it is my dysautonomia acting up. So I will make a trip to Cleveland to see my specialist there. You make a good point about being stressed but not necessarily feeling stressed. It will probably take a few weeks to get in but I think it is a good idea. Thanks so much for you input, I really appreciate it!
  8. Could it be pheo?

    Hi everyone, I am back. Posted not long ago about panic attacks and elevated b/p while taking Buspar so I stopped it and got better. However, it didn't last and I have had spells nearly every two weeks lately of sudden onset blood pressure spikes, tachycardia, mild headache, sweating, nausea and heart palpitations. Just like what I thought were panic attacks. It happens completely out of the blue. I was blaming myself for not handling stress well but now I feel that is not the problem. Something else is wrong. So I searched the site for pheo and read all the posts. I will call my pcp in the morning. But wanted to ask if anyone has had these symptoms and been diagnosed with pheo? I understand that hyper pots and pheo share many symptoms. Any info appreciated! I have been struggling for at least a year with never feeling entirely well but can never put my finger on it. Also, can anyone tell me how to edit my signature info. I am no longer taking Florinef and LDN.
  9. VICTORY!!!

    I am thrilled for you! And please give your rock star husband an extra hug. I never had support like that. I am experiencing a relapse after two years feeling well, but hopefully it is just temporary. Stories like yours are so nice to read and thank you so much for posting!!!
  10. Heat Intolerance

    When I had this problem I used a cold pack around my neck and it helped a ton. You could even disguise it under a pretty scarf!
  11. 4 years later - back to square one

    Hi Altruism, I have been where you are. When I read your post, it does seem like you have a lot on your plate. All good stuff, but a lot. I wish I could be as active as I was before this illness, but the truth is, I can't. I had to learn to prioritize and moderate my activities. And in my case, pushing through does not work, it makes me worse. I need a certain amount of rest and recovery balanced with activity. I learned it by trial and error. I think also as the others say, that you recovered once and will again. Just be kind to yourself.
  12. Relapse

    Yogini, B/P is back to normal after stopping Buspar and salt water. I am pretty sure the Buspar is the culprit because I keep records and my pressure rose when I started the drug, it just never got dangerously high until recently. So in my case I think the high b/p brought on the panic and my dr kept increasing the Buspar which increased the b/p which made the panic worse! So glad it is ok now. Thanks again for your insight.
  13. From hypo to hypertensive?

    Without the salt water and Buspar, my blood pressure steadily decreased yesterday right back to normal. And this morning it is good, too. So the question remains, was it the Buspar or the salt water? Well, I keep a log of pressures that goes back years and I can see that it started to rise when I started the drug. It never got into the danger zone so I didn't think much of it until this recent series of events. Btw, I had also been having blurry vision and a very mild headache with the latest dose increase. So, duh! I would say to anyone taking Buspar to watch for hypertension. It is not a listed side effect but there are a few patient reviews who mentioned it so it has happened to others.
  14. From hypo to hypertensive?

    Thank you both. This is such a mystery. But today I am not using salt or taking the Buspar and will see how I respond. I appreciate your comments.
  15. I have another thread about recent relapse and panic attacks but now I need advice about my blood pressure. I have been a 90/60 person my entire life and since diagnosis seven years ago have been drinking two liters of salt water every day. But lately my pressures spiked to 160/130 with the two recent panic attacks. They are around 120/80 at rest, which is still high for me. Now I am just sitting calmly and pressure is spiked again. Is it possible I just don't need the salt anymore? Anybody else experience this? I cannot figure out what is going on. I should add that I had been taking been taking Buspar which another member said was a vasoconstrictor, which I didn't know. So I am stopping that as well and will see how that goes.