Sheila1366, I've experienced everything you've mentioned in all your posts & more. I'm sorry you're going through this. I'm glad you're going to Vanderbilt, hopefully they will be able to help you. I lost a lot of weight when this first happened to me. For a long time the only food that did not seem to cause a reaction for me were potatoes, carrots, & green beans, all organic. I reacted badly to supplements also. As time went on I gradually added more foods. It wasn't easy but you must try to eat. I passed out a lot from hypoglycemia as well as low blood pressure. I had & have more symptoms than I can list. We'll be waiting to hear the results of you Vandy trip.