gertie

I have tried them both & I couldn't tell any difference. However, a low histamine diet does seem to help.

Has anyone here had these 2 blood test done? I sure I have a histamine intolerance & would like to have the test. If you have, do you remember the cost of testing? thanks.

Thanks for all your replies. It took me a long time deciding which probiotic to try. I chose strains that degrade histamine or that are neutral. I took a small amount today & so far ok. I do eat sauerkraut occ altho it is not supposed to be good for those of us with hypothyroid. looneymom, I have allergen free Pure Encapsulations. The only additive is rice starch & it is vegetarian capsule but I take it out of capsule & sprinkle on food. Katybug, I haven't been tested for mcas but I did have a bad reaction to histamine during allergy testing.

Thanks, I'm going to keep trying small amounts of it.

Are probiotics usually ok for us? Sometimes I can eat yogurt without a problem & at other times it makes my throat & tongue burn. It may be because it is a high histamine food. I am trying a small dose of probiotic but I seem to be getting more mouth/tongue burning from it also. I hate to be so pessimistic but I'm always afraid to try anything new. Thanks for your reply.

It might be worth you trying a combo of probiotics that are histamine degrading. When I start something new like a probiotics, I sprinkle about 1/4 of a capsule on food to begin with, & if that doesn't bother me I gradually up the dose. thanks for your reply.

Does anyone know if this probiotic strain is histamine producing or degrading? I have read a list of probiotics to avoid & the ones that are supposed to be good but I can't find this strain on the list. I don't want to take something that is going to make POTS symptoms worse. I know some of you have MCAD & thought you might know. Thanks.

The only ones I can find are from porcine, haven't been able to find vegetarian. I seem to react negatively to everything. thanks for reply.

Does anyone here take these supplements? If so, did you have any side effects. I'm told there isn't any known side effects but I'm not believing that. Thanks.

I know what you're going through. It's the same with my husband & family. I think (speaking of my family) they just don't care. I've learned to "suffer in silence". If they ask how I'm feeling & I start to respond with the truth I can't see a blank look on their face & I simply say "I'm fine". Hope things get better for you.

Have you had your adrenals checked? When I was younger I was into weight lifting but as this illness progressed I had to stop. The more I tried to exercise the weaker I got. I also found out I had adrenal failure.

Thanks for responding. It's good to know I'm not alone in this. Every job I ever had was with a telephone in my ear. Cell phones are the worst but in my experience they are all bad for the brain.

Does talking on the phone for any length of time make you nervous? I have some people that call & will talk for an hour or longer and me saying occ "I've got to go" for some reason or other. They just keep talking. Finally I thank them for calling but say I've must go & take care of something. By that time I'm shaking all over, have headache & ready to scream. Maybe I need socializing. I do prefer being by myself because of allergies & sensitivities etc. I feel better when things are calm & quiet. Does anyone experience this or is it just me? thanks.

I do better with distilled water. I use it to make hot teas or just hot water & lemon.

The only experience I've had with lidocaine is to use it locally for pain. Once I rubbed it on my body I was in a semi comatose state for a long time, totally wiped me out.

I'm sorry vinylowl. I have syncope with my IBS issues. I'm curious if you have ever been tested for seizures?

Yes, I've had those several times & I always fear a stroke. It is terrifying & usually a 10 on the pain scale. I follow a strict migraine free diet & still have 2 or 3 some weeks.

Thanks everyone. My GP doesn't have a clue what to do with me. I'm to the point I just take the prescription he gives me & never get it filled rather try to reason with him.

In reference to Genelex lab testing. I thought most people with mcad that were tested for allergies usually showed no reaction, altho they had a reaction when exposed to the product. Am I wrong? Most of the things I have the most trouble with such as food & meds, show no reaction with allergy testing yet I have severe problems when ingesting.

It's a scary situation. Just about everything I take ends up causing a partial seizure, migraine, or just bad allergic reaction. Not only meds but food as well. thanks everyone.

Is anyone able to take this expectorant? Everyone seems to have a bronchial virus & I'm afraid I will take it. I am trying to have something in medicine cabinet I can take but have had no luck at all in finding meds I can tolerate in the past. Any suggestions? thanks.

Merry Christmas & Happy Holidays!

I remember the show on syncope. At first I thought it might be informative but in the end he seemed to brush it off as if it is nothing. It reminded me of a neuro I had once that when I told her I had syncope & it was a scarey thing, she just said, "don't worry about it". It seems Dr Oz thinks everything can be fixed with a supplement or weight loss.

I don't get one. I had severe allergic reaction to my last one. Never again!

Thanks for replies.