AJVDK

Glad you are feeling better! Hope everything contiune to go well! Have a great night! Amy

Last year when I got my pacemaker put in, I thought I was going to feel great, and be able to get back to a "normal" life. I didn't get any big changes, in fact the only thing it has done is stop the slow heart heart due to the abltions. I still have tachycardia, and I still blackout/ i don't pass out much though. Just becareful and ask alot of questions with the doctor. I think there are very good reasons for having a pacemaker, just make sure the pros' are better then the cons. Hope everything goes well. You will have to let us know how it goes! Amy

Glad you trip when well. I hope they get to the bottom of everything for you. Its noce to here all the good things about going I am leaving in 7 days to go for my appointment. I am getting worried, and uptight, but it was nice to here about how well yours went. You will have to let us know how it goes on the 24th. Hope you are feeling better now, after the long drive and feeling bad! hvae a great week! Amy

Paige, Hang in there! Do you have anyone to talk to. I know I meet once a week with a therapist at times when I am down. It the best thing I have ever done. It took a while to find the one I liked but I have been with here for 3 1/2 years and it somtimes seems to be my life line. Hope things are getting better for you! Amy

I would trust Dr. Grubb from what I have heard. Just know that it may not stop all the tachycardia. I have two EPS studies with ablations, that last one I ended up with a pacmake as my heart rate would go to low. The good news is I only have some tachycardia times now. Just be sure to make sure you are informed. Are you having a radiofrequency or cryoalblation. I thought that the cryoablbtion when much better, and in fact the put the packmaker in at that time and I felt less pain then I did with the radiofrequency. If the tachy, fast heart haert is keeping you up all the time and very bothersome, I would go for it. I will help alot. Good luck, you will have to let us know how it goes! Amy

Thanks for all the imput, I am going to call and check to see what meds I should stop before the TTT. They never said anything in the packet of info I got, but there was so much stuff I could have missed it. I will call monday! Dumb question I went to pick up refills on some of my meds tonight and was feeling lighthead so check my b/p and it 103/44 heart 106. Early is was 94/57 heart 81. I run low but not in the 40 range. Do you think it could be the meds? Or just from being run down. Well hope all is going goos for you all! I am off to bed I am hoping I will sleep the whole night though with all the meds I would hope so! Well hope you all have a great weekend! I am going to try and get some rest. Talk to you all soon! Amy

Hang in there you are in my thoughts, I hope the doctor are able to hope! Good luck, and hope you are feel better soon!

Thank you for the update, you will have to keep us posted. Let her know we are thinking about her!

Hello! Well the last week was been a hard one on me from the trip to the ER on monday to all the folllow up appointments, and still not feeling any better. Yesterday, I was told that since I am still having the rythem that now the are hoping that is is stress of somthing like that as they are out of options all together. So they started me on ambien a few days ago as I can't sleep, and then started me on alprazolam on top of everything else I am all ready on. They said they are trying to just get me out to Ohio as they are not sure what to do here(out of all there options) so I am counting down now, my flight leaves on the 17th, my 1st appointment it the 18th at 12:30 for a tilt table test O'well at least they will get to see my true colors! I am really strating to beleive that maybe I just need fluids, I even asked he doctor again, and he said he didn't think that was the problem. So now I am getting worried about going to ohio. I am worried that I am going to go all the way to Ohio and see Dr Fentnat Found-Tarazi, and get the same results, I know she is one of the best I am just worried I am ever find a treatment tha going to help. I just want to get up that feel somwhat normal. I don't want to worry about FMAL leave as I can't work somtimes due to the POTS. I know I am complaning and am sire some of you have it alot worse, but I never thouhgt my life would end up this way. I cann't even climp a set of stairs with out my heart starting to race on a good day, and I use to pay hockey, and track, ect. I just want to play with my son and can't even do that, at least we read together, I have tried to find the things I can do. I just don't want to get my hopes up, but at the same time am hoping they will know somthing that will help, or know what to try. Sorry for going on and on!!!! Hope you are all going great, I been staying off the boards more to ry and get more rest! Hope you all have a great weekend! Amy

Congrats, Glad you made it! Have a great time! Amy

I am a full time Community Manager, (although I am on FLMA leave right now I am taking a week here and there as needed right now with my health.) At home I am rasing my son Blake who will be 4 years old here in two weeks! (he's growing too fast!) My husband Mark is great, I am not sure what I would do without him. Latly I have not felt up to it but, my hobbies are photography, and scarp booking my photo's. One thing I have learned is to keep fighting, I have had to quit things, and slow down, but I can pick them back up again. I am hoping that next year I can finsh off my degree. I have dropped out twice now do to health, but I am not giving up, some day down the road I will get it, when the time is right. Always hang in there, but don't over do it. (This one is the one that gets me the most!) Good Luck, Amy

Well no big change from yesterday. I still feel the same as I did yesterday, I went to the doctor today, I asked if he thought I could use fluids, he said he is hoping it lack of sleep as I have not been getting the sleep I need. So he gave me a sleep aid in hopes that will help, he says when I go to Ohio he wants the doctor to call him and talk to him so he can knows more what to do for me. I am happy to know that he wan't to learn, Plus he was going the ER today and talking to the person in charge regarding my care yesterday, and that he was disappointed and how I was cared for. So I think its great that he cares, but I just want to start feeling better, and don't want to keep feeling this way, hopfully my heart rythem will go back in soon. I thought I would give you all an update, hope all is going well! Talk to you all later! Amy

Do any of you know how long it could take for my heart to get back in my normal rythem? I still am having the same problem, just no chest pain. (thank goddness) Just wanting to know, I am trying to rest, but it hard for me to sleep, and hard to stay asleep! Anyways thought I would check and see if anyone knows. Thanks for all the input, I am going to talk to the doc. about the IV fiulds, and see what else I can do untill I go to Ohio on the 17th. I hope it comes soon! Have a great night! Amy

Sorry you had a bad time at Walmart! I think it stucks how many people know nothing about POTS, and that fact that people need to see somtime wrong with someone to think they are sick. It's really too bad. But I guess we are the lucky ones as we at least know the other side and can me nice to others. Hope you day gets better, hope everything goes well with your MRI! Amy

Katherine, They tried to start an IV when they drew the blood, they tried 4 times even to get the blood and then blew one of the veins (the others they couldn't even get blood out of). So they said they wanted to see how the blood work came back hoping it was just my theophylline level was high, but it was at 8.75 (so it was fine), and my potassium they said was fine along with the electrolytes. Since I got home I have been drinking tons of fuilds. So I am hoping that will help. Thanks for the help Amy

Congrats! Thats great!

Sorry early I couldn't spell Anyways I am still feeling down, I got an appointment with Family Doctor on tuesday at 11:45am. I don't think much will come out of this as he called an hour ago to see how I was doing as he heard I was in the ER, I told him what happen and he said, it's hard for many doctor, as they don't now much about POTS. He said he wishes he knew more, and since he doesn't he wishes he could get me out to Ohio sooner, but there is no way that going to happen, as I already bought the plane tickets, hotle stay, and rental car, which was about all I had left in saving account, as I have been off work alot more latley. I just feel so alone, This is the only place I can come where other understand! For that I am greatful. Well I am off to try to sleep again I got about an hour of sleep early, it's hard to fall asleep, I keep feeling my heart race then feel like it starts to skip beats, I shouldn't worry as if I skip more than a few my pacemaker should kick in, but still its hard to deal with, I wish there where more answers! Talk to you later! Amy

OK, today on the way into work I started having really bad chest pain, so I thought as I have been feeling down the last few weeks maybe I should go to the ER! So I went to the ER to find a really nice doctor, he listen to me, and said he was worried that I could be at risk for a heart attck so he said it would be a good idea to a dye test to check out everything. My heart hate was all over the place, and I was skipping every5th- 10thbeat. (Just one between that time)So they sent this cartio..... doctor in, and he said well lets just send you home, and I am not to worried about it, and when I said I have POTS he looked at me like I was crasy. So after he left the ER doctor came back in and said if I have any other problems please come back right away..... (plus the cartio doctor asked why I need to go to ohio to see a doctor there when I could just be seen here? OK was he for real...... He didn't even understand!) So now I am worried, and still don't fell good, and now think I was dumb for going to the ER. Sometimes I really don't like doctors!!!! Well hope you are all doing well, I am off to lay down and try to get some much need sleep and rest!!! Talk to you later! Amy

I was recently at my doctor, who thinks my POTS was caused a a chemical exposure in 98, when I was in collage. I was going to colleage for photography, and I worked work study to help pay for books ect. I was mixing the fixed, and someone put the wrong lables on the boxes. Needless to say I enede up in the hospital for a few days, and was told that I should change my major, as I could not be around the dark rooms. So about 6 month later I start having odd this happen like passing out, my gal ballder stop working and need to be removed, starting having uclers, I think could have been strss from dropping out of college, ect. but anyways I never thought that could play into my heart problems that started in 2000, and got worse over time, after see my family doctor, heart doctors in Des Moines, then going to Mayo who seemed to be on the right track to ending up at the UofI they think it could have been the POTS, and all of things could have been casued due to the chemical stuff back in 98. I turly am not sure but it make since as I never had things this bad untill after 98, I even had many hard times of depression, that could have been caused my this (HA anf was starting to think I was CRASY!) I know some of the doctor sure thought I was. But looking back now I can't help to think the doctor is right, I will be intersted to see what they say in Cleavland on the 18th. Have a great day!!! Amy

Hope you are all starting to feel better some today! Could it really we the weather, is it possable you think? Just thinking....... I have felt pretty bad since last monday, and then everything this week has made it so much worse. I am i guess just looking for anything to help, but really know I just need to ride it out! I hope you all get the rest you need and start feel better soon, maybe someday so we can all met on the "ROCKYS" Wouldn't hat be awsome if we all we doing great!!!! Think good thought!!!! Have a great night!!! Amy

Well today we got my husband a new truck, so he is happy, i was hoping that why i was feelinh so bad was just stress but after we got everything done and signed, and i even got all my reports in at work I still feel very bad, in fact its getting worse, as for my pacemaker, is for when my heart rate drops below 70 beat per min. and if i skip beats, i reallydon't think it helping at all right now as my heart rate is much fasted the normal. ( most of the time my heart is just stays at 70 beat my heart do I feel really tried and just wore out. on top of it my husband is in a wedding on saturday, so tonight i was going to met him for the dinner, but I am going to stay home as I think I just need the rest, I hope he doesn't get mad, but I need to take care of myself. I have just never felt this odd, I just feel out of it, like spacy, not like when you start to pass out just odd, and tired, and minnor chest pain, but the thing for me is I have chest pain farily often so I don't want to worry to much. I am trying to hold off till I go to Clevland as I don't like going to the ER as I don't have the best luck, and my heart doctor right now really doesn't know what esle to do....... so I am not sure there is much to be done. So I guess I am just venting. I wish there was just some easy way to fix everything! I thought i would let you all know how things are going and sat thanks for all the support this week! Amy

Well today got alittle better, althought I am still feeling pretty down. My heart feels like it is out of rythem, but I don't think it can be that big of deal as I have a pacemaker. Well my husband is doing better, and we looked at new trucks today! Well got to go, I am heading off to bed as I am feeling kind of odd. Hope you are all having a great night!!! Amy

Well today was one of those day! I woke up to my heart racing! It took me about 30 mins just to get out of bed then it took for even to get ready, I kept feeling like I was going to pass out! Finally I got going, but was almost late to work. I was at work about an hour and I get a phone call from my husband he says "don't be mad, but i was in a car accident!" He ended up hurting us back, and his face was alittle puffy, from when the air bags hit him, I am not sure if it was the force, or the stuff in the airbags that made him puff up, but it is going down now. SO his truck is boradline total we will find out later in the day in wed. i am hoping it is not!!! Then at work my day just went down hill fast from there, from my boss who is dissapointed in all the managers, me being one of them, for all of us not keeping up with are work, which i am stressing out about, i am not keeping up with everything, but i have been told and have a notice from the doctor that I am not to work more than 40 hours a week, and that I need to take time as needed when not feeling well, my health is just getting worse, and I am not going to get out to Clevland untill October 17th. So hopfully it comes soon. My meds are not working....... I am just stressed and having a bad day. Sorry to vend!!! Hope you all have a good night!

Stace Welcome! Thought I would drop a line to say "Hello"

Thanks so much for all you imput! It helps alot to know what I am going out to deal with. I turly am just looking for someone to take the time and find out whats goigm on, after that along at the treatment, or meds work i am fine with my reg doctor taking care of my, i just want to find somthing thats going to work!!! Thanks again, hope you all are havign a great weekend!!! I took my son to the since center to today and a moive, I am hoping I will not pay for it later but it nice to spend time with him!!!! talk to you later!!! Amy