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With all the meds that I am on I have lost 21 pounds since the 1st of the year. I have not changed anything i fact I am more now then every really not doing anything as when I get home from work I am so tired, that I just crash. But I keep losing the wieght. I have not worried about it too much as it has been over about 9 months. Is it normal to lose weight in the meds? Well hoe you all have a great night! Take care! Amy

For me my hand and feet are always cold. Even in the summer. Not sure why but thats the way I have always been! Also for me I do get tired easy, and find when I am done I tend to stay down. But when I have a good day I do run with it, and get the best out of it I can, and just hope they keep coming! One thing I am starting to find latly the are coming more often. Amy

I just wanted to say welcome, and that your not alone, here is one of the few place I find that people now whats it like to have POTS. Plus it nice to now there are others that feel the same way as I do. The thing that helps me the most is to know others have been where I am know and are doing much better now! One day at Time! Amy

Hello, Sorry to here that it could take so long to get in. Is there a way you could get a referal to get in sooner? I wish you the best of luck.

Traci, Sorry to hear you have been having problems. Have you had a chance to talk to a doctor about how you are feeling? I know that I just found out on the 24th that I have a blood flow problem, when they did a blood volume test out in Cleveland. It's help me in my mind to understand whats going on. Now my problem it that my blood flows 3 times as fast as it should, but I do have chest pain alot of the time, and also get odd feelings like crapping body parts, to headaches, to really bad pain all over the body. I think is due to the fact our bodies don't get the oxygen it needs. I just stared where the compression socks too. They have help me but, still having many problems. I am just keeping a postive mind and hope that things are going to get better. I also try to let my doctor know how I am doing, and let them know how things are going, and they are slow ajusting the levels on my meds. I wish you the best of luck.

Dizzygirl, I am happy for you! I am glad you found a great doctor! I hope you get to the bottom of your problems! Good Luck!

Melissa, I hope things strat getting better for you soon! Good luck at the CC on Friday! Hopfully things will start looking better! Have a great night!

Welcome, I am glad you found us, sorry you are not feeling well. I have learned alot form this web site about POTS, and made many friends, plus it is nice to know I am not alone. Glad you are here!

Well today I got call from my family doctor, and they got ahold fo the doctor in cleveland so I am starting my news meds tonight. On thursday somtime I should be getting a call regarding my new cardio Doctor. ( I am alittle uptight about this one as 1/2 the doctors have thought I was crasy, the only doctor that never gave up on my was my family doctor, I am hoping now since I have cleveland showing them whats wrong, maybe I will have better luck! (Let hope thing keep going good) Have a great night, and thanks for all the support! Amy

I get sick when I work out too. I am going to be starting cardio rehab on friday so we will see how it goes. As for the salt pills I can not take, so I try to eat as much salty foods as I can. Good luck and I hope you find a treatment that works for you! Amy

Well I have PVC's alot of the time. I really doesn't even bother me anymore unless I am trying to sleep. I really only notice them then I am still, or slow down. I have begain to think there are going to be just part of my life. Will be looking forward to see what others feel. My big thing is somtimes I get really bad chest pain, I am still not sure what casues that! Good luck with graphic design and music! Amy

Good luck! Hope you get all the answers you are looking for! You will have to let us know how it goes! Amy

Well made it to my doctor appointment today, only to find that none of the paperwork got faxed to my doctor, so they called for it the hole time i was waiting. They only got part of it, the rest is still getting typed up? (confussed as I was told in would be faxed as they knew I had this appointment) Plus now my family doctor needs to find a cardio doctor that is willing to listen to Cleveland, for treatment. Here where I live there is only one big Pratice over 30+ doctor in one pactice over many loctions the big problem is that there is only 2 EP doctors, and one of them is the one I have had problems with, plus I think they thought I was crasy 1/2 the time! So my family doctor is trying to find a doctor outside of there that is willing to treat me, so it continues................... Hopfully I will find the answers soon! Have a great night! Amy

Thanks Nina! Lauren, As for the cardiac rehab I am not sure yet, I only have the orders with me, they are getting it all set up on monday! I am hoping it will help. I think the big thing from how I understand it is that there is someone there to keep a eye on your bloodpressure, and hreat rate when you work out, and I have problems with my hreat rate when I work out and somtimes my bloodpressure drop too much, But I can let you know how it goes. Thanks again, Amy

Happy B-day Emily! Hope you have a great day!

Hello All, Well its been a long week. My husband, my son and myself flew out to Cleveland this last monday. I saw Dr. Fouad-Tarazi. Wow she really seem to know her stuff. I know that sounds dumb, but over the last few years trying to find somone that can find and treat (POTS) whats going on was been hard. I had a tilt test on Tuesday. They cam back and said I had a positive test. (so I was thinking darn, I thought they would find somthing.) Only to find out that ment they found somthing wrong. The docotr came in and told me she wanted to do futher testing as the tilt test showed some things, but they wanted to look into more. So I had a blood volume test. ( Hope that's the right thing to call it) They found that my blood is flowing way to fast.) Also during the tests I was having many PVC's so they are going to have my Doctor here start me on a beta blocker again in hoping that this will help, also I have to start using compression stockings, and start going to Cardiac Rehab Program. ( Really not sure about all this, but if it will help I am willing to do what ever it takes.) So, on Monday, I am going to meet with my doctor here, and going to start all these things. ( other then the Compression stockings which I already started using.) So now that they found whats wrong, now it just come to treating it. We had a good time in Cleveland, my son's 4th b-day, was on friday, so we took him to the zoo. He had a great time. (I can say though I am glad to be home to Iowa! We got lost all three day we had to go to the Clinic, and we got lost from the airport to the hotel. ) Anyways wanted to give you all the update, say thanks for all the support, and let you know I made it back! Hope you all have a great weekend! Amy

Well I am getting ready and getting packed today, we have to leave our house way to early in the am. My son is trying to take all of his toys , we will turn 4 this week while we are in ohio. I feel bad he got to spend it with mom this way. This will be the 1st year my son is not in the hosptial for his b-day. Balke was born early (8 weeks early, and got a hard start to the world, form many hospital stays to last oct. and nov, we spend 27 day in childrens hospital here he had a baseball sive mass re move from the side of his left lung. Blake recover very well and we thank god everyday it was no cancer. So I feel bad that his is b-day that we can all be together, mom has to go for test, so I am hoping well have time to go to the zoo or sothing and that I will feel up to it! We fly out on monday and my 1st day of test is tuesday, form there we don't know whats going to take place as it depeads on what the doctor want to. be are flying back on saturday. I am just hoping for a good trip to find some answers and get to spent so much needed time with my husband and son! Thanks for all your support! Well got to finsh packing and getting ready. Plus con my son on leaving mose of his toys! Have a great week, and I will miss you all! Amy

Ariella, Have a great weekend too! Hope you are doing good! Amy

Wow that would be great to see that in real life. When you wacth the show it makes me feel so much better about my family. Its so hard to see what these people go though, and then to think go are going to see this live, it all about goodness, and I can't believe that lady was so rud. Sorry you had to deal with that. Well hope you are feeling better now! Amy

Well I am off to Cleveland, Ohio on Monday at 6 somthing so we have to be at the airport at 4:30 pm I am not a am person. O'well hopfully I will sleep on the plane. My son and husband are coming too. We will be out most of the week we are coming back on Saturday. I am going to be seeing Dr. Fetnat Founad-Tarazi. I am worried about going out there as this is kind of the last hope of finding somthing that works. I just want somone to listne to me, and understand somthing more than I do about POTS which is not a hole lot. I just want to find some form of treatment that is going to work for me better then whats been going on. Maybe I am hoping for too much. I just want to get back to "normal" I know there no such thing, but I just want to beable to feel better that I do now. I am not sure if that right or not but am just wanting to feel better. At least the trip will give my son and husband time to spend together. It seems like anymore we are always going or I am flat on my back. Thought I would give an update and check the boards I can sleep, just uptight and worried! Good Night all my Pot Friends! Amy

Welcome Back, glad to here you are doing good! Take care of yourself! Amy

Welcome! Before you have a EPS study please look into all the pros, and cons before doing it! Everyone if different, I am one that wishes I knew more before I had mine done, but many people it work great for. Just please look at all the options and talk to you doctor, plus look into the differnt form of abltions. Good Luck with everything, and again Welcome glad you are here! Amy

Jamie, I understand where you are coming from, I have been to Mayo in MN, and to the U of Iowa, but got nothing but you have POTS, but nothing eles, I am going to OHio next week, afair I am going to get the same thing, yes you have POTS but theres nothing we can do again, it gets old, and get tired of feeling wore done, and feeling crasy because no one understands! Hope things get better for you! Amy

Happy B-day!

Well I had a test for gall bladder about 8 years ago, If they still do it the same why you will go to a room much like a CT room. They will put a IV in and give you drugs though the IV to see how you gal bladder fuctions. When they did mine it was only working about 27% so I then a week later had it removed and felt so much better! I was up anf feel better with in a few day. Sorry I am not more help, it was a long time ago, but can your doctor give you some info to read, I know they came up to my hospital room and gave me info about the test, it helped me to understand! Gook luck with everything! Amy