Mytwogirlsrox

Over time my HR went from the 150s to 90s standing. I was exercising, now I'm not and it's still in the 90s. So who knows. I did notice that after exercise my HR was elevated for at least a day. For instance if my baseline standing is 110 then it would be 130 for at least a day after vigorous exercise, and 90-100 sitting

Institutions have different reference ranges FYI, as I'm sure your learning and different doctors interpret results differently. I would just celebrate the little piece of mind that thus far, everything looks normal. It looks like they ruled out some heavy diagnoses

How does that feel? Your heart being starved Of blood?

Just off the top of my head.. How is your CBC? There is a hemeglobin binding capacity they check for.. Pulmonary function testing.. Anything abnormal in that regard? Poor circulation? How ate your blood gases? Maybe they should check that.. I know for me, my Dr wasn't interested in closing my PFO b/c I haven't had a stroke. I just do baby aspirin

I have POTS and a PFO and my sats are never low. Maybe 97 if I'm cold

I was diagnosed @ Florida Hospital Tampa (formerly university hospital I think) i don't think I would consider then specialists but they knew enough to diagnose me!

Mine were normal

I have varicose veins! My mom has them and I got them after being pregnant... Yay! Lol

I'm curious to know what that means. Petchaie? Maybe? Or bruises? If you are clotting and getting clots, how is your CBC? And clotting factors?

Hey I had mine on feb 23rd! Cheers!

Just wondering what y'all think. I had an "anxiety attack" today, I was feeling dizzy then it came on.. Heart racing , legs turning to jello etc.. However, afterwards I was so HOT for like an hour I was vasodialated in my hands/ arms and soo hot. Usually I'm cold. Not sure what to think ?!? I started nursing school, and today was day 2 of clinicals so I know stress really got me going BUT why the hot feeling? I'm worried my BP was super high ( I don't know why, I don't have high BP or Hyperpots) I just thought maybe my BP spiked and my body was compensating by vasodialating? Thanks

I'm in nursing school... Does that count?

Pregnancy? Cessation of breast feeding? Caesarian section? Pre-eclampsia? Traumatic emotional experience? Stress? Who knows? I've never had a Dr look into it.. But, it came with anxiety attacks, eye floaters, and weird visual stuff

I drink, I had 4 beers last night ha ha ha! That's a lot for me! We were having a party and I was thirsty but I was dehydrated this morning. But I lived! I guess you'll only find out, if you try it! Good luck!

I feel nasty doing squats! There is a change in chest pressure and venous return to the heart when you do squats.. Sometimes the increase and decrease throws my heart for a loop

Statix you sound just like me. Dr said its more or less mild orthostatic hypotension

Hey you sound like me. I was diagnosed with POTS and I only have tachy upon standing and anxiety now (regardless of position lol) I'm interested in your story

I think about this often. I have stretchy skin, Im double jointed, I have stretch marks, varicose veins and OI. I just dont have any joint pain. I can also blame my symptoms on gain/loss of substantial weight (stretchy skin), big pregnancies (varicose veins). I also only score a 2 or 3 on the hyper mobile scale. I've asked before on EDS websites and they said of there isnt any pain, don't worry about it. So is pain a main diagnosis criteria? I don't know

I don't think that's considered a fever, everyones temp changes through out the day, and increases in the evening.

Achilles-- anything is possible. I can't speak for anyone else, because everyone's pots is seemingly different. BUT, I slowly (over 9 months) recovered greatly. Reducing stress, hydrating, increasing salt, taking supplements, increasing exercise. A SSRI really helped me in the beginning. It's been a year since my symptoms began, and honestly I feel so much better. I function at 98%, I would say that I still have a little anxiety and feel palpitations upon standing, or in situations. Dr said I might have a mild case of orthostatic hypotension ( still get fuzzy vision if I stand up too fast -- I've always had this though) Anyways. Always have hope! It just takes time.. There are studies that say most POTS patients will have improvement within on year of diagnosis. I think in time, you will find what works for your body and you will improve.

Bump

I never had anxiety till I had pots symptoms., so they're related -- In my opinion'. Who knows, Dysautonomia might just cause anxiety-- they're the same darn chemicals that mess everything else up. Why don't Drs think that rationally? Or at least recognize that anxiety is a symptom of Dysautonomia. I think for me, it was really beneficial to deal with my anxieties... Pots got easier to manage, and I no longer fit the pots diagnosis criteria. But I don't chalk that up to solving my anxiety purely. I still suffer "panic attacks" I've just learned coping mechanisims so they're not as frequent and less intense.

I got them right after I was diagnosed! Not sure if I had them before and was the just hyper vigilant.. But definitely started noticing them after a visual migraine, 2 syncopal episodes and pots diagnosis

What does that mean?

I was diagnosed after two horrible pregnancies last year. I no longer fit pots criteria, so I would say yes, I have improved. I still have some symptoms -- mild OH and a bit of anxiety though