puppylove

Thanks for all the ideas!- I dont think it will be as hard as I thought.

Whoops! I meant eat not ear sorry.

For metabolism and blood sugar and for my stomach I'm supposed to eat around seven times a day. Not a lot, just like seven snacks. Does anyone else do this? If so what kind of things do you eat? And how do you do this while dealing with nausea?

I do the recumbent bike and sitting down weight machines. I have tried taking phenergan or zofran before hand but I didn't notice a difference.

So glad it worked for you and you got to enjoy yourself! I have tried it too, and unfortunately it didn't help me at all.

For about five days now I get super super cold mainly at night. Then all of a sudden I feel so hot. I start to sweat and my face gets flushed. I decided to take my temperature and saw that when I was cold it was 98.0 and in a matter of minutes after getting hot it was 100.1. Does this happen to anyone else?

This isn't very healthy, but sometimes I dump salt into a bag of potato chips and shake it around. Or mix some himilayian pink sea salt into water. For some reason it just tastes better to me than normal salt.

I have tried some from whole foods for tummy problems/ anxiety and didn't notice a difference. I would at least give it a shot if you want to, because you never know what my help you.

I get this too occasionally. I think they are adrenaline surges. If I'm stressed or over do it during the day they seem to happen more.

My doctor and everybody I ask about this, tell me when you get really nauseous and dizzy while exercising stop or slow down. The problem is I feel super sick at the slighest bit of exercise, even when I do slow down. So... What do I do? I never actually faint, so is it ok just to push through and keep going if I can? My heart rate is usually in the 140s.

Thanks! The whole gorgeous thing is part of the joke, but it does sound kinda overly confident. Maybe "pretty" would be better for a T- shirt.

I feel kinda bad for getting irritated when people say "well you look good" because most of the time I think they are trying to be nice. So I just say thanks. In my head I just think if they only knew. The thing that really bothers me though, is when someone says it in a way that makes it sound like I'm faking or something. If she doesn't look sick she's not sick kind of thing. Here's what my shirt would say for people like that: don't let this gorgeous face fool you- I feel like crap. Lol

Emma246- that was so brave of you to face your fears and fly! Good for you for not letting POTS hold you back.

I have been really nauseous, but I was all out of phenergan, which is what I normally take when I feel like this. I had something important I had to go to and I took two zofran I had around 7:00 pm. I got my phenergan, and I took one eight hours later. Now, I feel really dizzy and breathless and I have a head ache. Do they react with each other? I thought the zofran would have worn off since I can take it every four hours?

I don't really know what triggers mine but this is the pattern- a few days feeling eh. Some symptoms but I can get off the couch. I usually don't really go anywhere though. Then I probably once every two weeks I get a day where I can't do anything, and feel awful. Sometimes two or three days. Then I might get a good day where I can do stuff. But then back to not so good. I guess mine is kind of weird because it's really a day to day thing. I never feel better or couch bound for long periods of time. Sorry your having a flare. Hope you feel better soon!

Yes, I'm in VA and it's supposed to be 106 tomorrow! We lost power a week ago for thirty hours and I felt awful.

My mom was talking to her friend, who is a doctor, about the meds I'm taking. The doctor said she would never prescribe a teenager Florinef because it can mess with hormones later in life. We have never heard of this. Has anyone else? Florinef actually seems to help my dizziness and Tachacardia so I don't really want to stop taking it...

When first got really sick, before I knew what was wrong with me, nausea or homework would keep me up a lot of the time. Then it was IMPOSSIBLE to wale up at 5:45am for school the next day. The times when I actually got up and made it through school I had to take a nap when I got home. Things have really changed in my sleeping patterns and now I have insomnia- so that's why I don't nap anymore.

I feel pretty good swimming too- especially in the ocean. Just be careful with the indoor pools because sometimes all that chlorine can make me worse. I went in a saltwater pool the other day- it was great.

I couldn't really answer the last one. I usually try to force myself to sleep if I'm up past 4:00 am because I know I will be a wreck if I don't. I'm only tired if take melatonin and sometimes that doesn't work...

Everytime I get a horrible POTS day my mind just goes off thinking- POTS can't make me feel this bad, something else must be wrong, maybe it's the flu, what if it's worse... And I can't even tell if the anxiety is making me feel worse or the fact that I'm having a bad POTS day makes my atomic nervous system go all crazy. So would this be something a therapist would help? Because I have tried lots of those to no avail. And my mom really does not want me to go anxiety meds due to side effects. Oh, and on a side note- when I have been trying to exercise I want to push myself harder but I'm too afraid I will faint etc. if I do that- especially in public. I hope I have made since. Thanks.

Beautiful voice! And very inspiring -not to let POTS or anything hold you back.

Florinef has really helped with my dizziness. Not so much with other symptoms though.

I would say machine error. I think that's heart attack range...

Thanks everyone- you all make me feel so much better . I didn't get to meet my fellow POTsie because I didn' t leave the room that much, but I did get his email. So maybe we will meet sometime. Kimbellgirl- Wow... that's incredible. I guess there was a reason I didn't feel great this trip. Were going to a week long family reunion thats six hours away in August and I really hope I can make it through that one! One day at a time