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Is anyone's main symptom nausea?


DSM3KIDZ
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As I have mentioned many times in the past nausea is my worst symptom. If I wasn't nauseated I feel I'd be pretty functional with some limitations. The nausea is debilitating for me. They say it's GP but I can eat and am even more nasuated if I don't eat every 2/3 hr. Also I have no stomach pain or constipation just nausea.

The meds sometimes take the edge off but I still feel miserable. I've tried all of them phenergan works the best.

The only time I'm depressed is when I'm nauseated. It's like having the flu every month.

Is this a main symptom for anyone? I feel kinda alone with this and everyone says there's got to be something the doctors can do to take the nausea away. Is there a special test or procedure that I'm missing?

I would litteraly give my left arm than to have this horrible nausea.

Any experiences?

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Hi,

Nausea is my 4th main symptom. I'll list them in order of severity (which one affects me the most): syncope, muscle weakness, headache, nausea, dizziness, etc..

I noticed that when I exert more I have more intense nausea. Are you like that too?

I am going to a specialist this week for my migraines so maybe I will get some clue on what's good for nausea too.

I'll keep you posted.

Ernie

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:D Hi! Nausea certainly affects me big time on a daily basis. I most struggle with this during the early hours of the morning...which isn't great as I work permanent nights! I also really struggle with the nausea following collapse and seizures and can spend up to three hours dry heaving. I have to be really careful with anti-emmetics as I am allergic to them all apart from Cyclizine (50mgs I/M). For me I have a severe reaction which sends my whole body into spasm and can lead to respiratory arrest. :blink:

I've never really taken much time to think about the real reasons behind this symptom but jus kinda accepted it as far as possible, in that when I am not having seizures I can cope with the rest...although don't get me wrong like everyone else it gets me down and tells on me when I crash every few months.

Will be interested to see if any good suggestions!

Take care and thinking of you.

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I am as green as can be right now so I sympathize. My naseau at the moment is completely related to a migraine that is lurking about to hit full force if I don't get to bed soon. I do have a lot of non-migranous naseau which is usually helped by megadoses of peppermint candy at its onset. I don't know why this works but it does. I have a friend's whose pregnancy related nauseau was definitely helped by this suggestion.

Carmen

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hi..

i would have to say that nausea is one of my main symptoms.. I too get bed bound from it.. sometimes it feels like when you have a bad case of the flu.. and even if you move or open your eyes you get nauseated.. and feel like up chucking..I get nausea along with the vomitting and severe tummy pain sometimes daily..

the jury is still out on the cause of my tummy pain...

I take a lot of pepto Bismol... and tigan for the nausea.. I only take the tigan when absolutely needed..

good luck to you

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Nausea has been, and still is one of my most dominant symptoms. My family probably lost count in my childhood of how many times I said "I feel pukey".

Levsin is all that really helps me with this, as my nausea tends to be spasm related. Also, I'm on nexium 2x a day.

Nina

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Hi Dayna

At the beginning i think i spent about two or three years constantly suffering Nausea. Thankfully its much more rare now. I went on a gluten and dairy free diet and that helped me alot. I still get nausea when i faint but its not constant like it use to be. I realise yours could be a completely different cause so of course you should check with your dr if you are wanting to try it.

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Hello everyone. WOW I have been nausea like all my life. That and being dizzy then headaches. My Nerologist says nausea is a form of minegrane. The media gets everyone thinking Mingrane is just headaches. I get so nauseated and Dizzy so much like I may have just 1 good day a week. Any meds I've tried do not help. I've just sort have learned to live with it.

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Thanks for all your imput. I'll ask my doctor about gluten free. I pretty much eat dairy free. I will also ask my neurologist about abdominal migraines. But for now I have to learn to deal with it.

Thanks if anyone has anything else to add please do. Sorry for all of you who suffer from nausea, it stinks.

dayna

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It's not my first, but a few days before my period, I get soooooooooo sick, some times I throw up, sometimes it lasts all day for 2 or 3 days. It seems if I just throw up it gets better. :)

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I feel compelled to mention that I've been on a gluten free diet for at least a decade; and I'm still nauseated. The GF diet seems to help me feel less "flu-ish" on a day to day basis. When I cheat and eat rye, barley or wheat products, I feel like I have the flu for a few days.

If you're going to go GF, you need to be careful of the hidden gluten in things like: most vegetarian meat substitutes, inlcuding veggie burgers, which are made from wheat gluten, aka "texturized vegetable protein" aka "saitan", beer, most cereals, inlcuding corn flakes, cheerios, etc., and any malt beverage. Malt is BARLEY malt, concentrated barley extract. If you truly are sensitive to gluten, you should look here:

http://www.glutenfreemall.com/

and

http://www.celiac.com/st_main.html?p_catid=12

Nina

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Nausea has been my predominant symptom for the most part. When I first got sick I had no idea why I was vomiting and dry heaving everyday for several years and then I was diagnosed with POTS. I've found that it's worst in the morning and eases up around lunch time, unless I actually have been vomiting and then sometimes it lasts several days. I tried Phenergan for awhile but it just made me sleep. Then I was taking compazine and it helped for awhile. But just in the last several weeks my nausea was so bad that they put me on Zofran. WOW! I feel sooo much better. Not altogether nausea free, but I'm now on a level that I can function. My biggest complaint until last june was nausea. Then came the shortness of breath, chest pain, racing heart, and the sweaty shaky feeling. Abstaining from gluten and dairy doesn't help my nausea. What does help is limiting my sugar intake. At any rate, I know it stinks and it's really hard to deal with. Hope you find some kind of relief!

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Hi!

I have had POTS since 2001 and nausea has always been my number one complaint. I have asked Dr. Grubb about it, and I know a lot of others experience nausea too. The thing with mine is that it's localized, and everyone seems to think that if it were POTS-related, it would be just a general "pukey" feeling.

My nausea is right in the middle of my ribcage, where your breastbone meets in kinda of an upside down V - I call it "The Hole" :D But if I touch that exact spot and push down a little bit, it always feels sore and it hurts, or it feels like some kind of push button that's going to make me throw up!

I'm not sure if anyone else has experienced this either, but I can actually feel the nausea like a straight line through to my back. If my mom rubs my back in that exact spot, the nausea altogether feels better, like it is being soothed. I also end up burping a lot through the night (gross, I know!) which seems to help alleviate some of the nausea.

I do have a pair of wristbands that we bought from AAA that are for carsickness. (I'm wearing them as I type this!) And they ALWAYS end up helping. Sometimes it takes a couple minutes, but I wouldn't go anywhere without these things. They are only about $8 so I got a few different pairs of them.

Also, I think Sprite/Ginger Ale and pretzels help, or any kind of bland foods. I have tried different meds for it but ended up getting more sick being on them.

It's definitely not only you dealing with this, nausea bothers me daily. So don't feel alone!! :-) Good luck, and I hope this helps!

*ChRisSy*

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Nausea is my main symptom. I have felt less of it recently. This is what I take:

Zofran IV or IM (shots you give yourself in the hip)

Compazine

3% Sodium infusions with Zofran

10mg Nortryptiline

The last is very recent and I think that it has helped considerably. According to a Mayo GI doc, it reprograms the signals sent from your brain stem. It took about 2 weeks to work and then the nausea slowly went away. For me it worked. For others it may not. I drink gatorade and gingerale. The sugar in gingerale sometimes makes the nausea worse, so I mix perrier with ginger spice and it works wonders.

I hope you find a remedy soon. There is nothing like nausea and no one seems to understand. I am just emerging from the cloud. My prayer is that you will too!

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Wow, here I thought I was alone in this. I'm sorry to hear so many people are dealing with nausea. It's such a fustrating thing.

Chrissy - I also have soreness in that area and if I touch it, it's sore.

Thanks, I'm going to take these suggestions to the doctor tomorrow. It's my neurologist so I don't know if she will have any suggestions with this.

Dayna

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Dayna,

I got so excited when I read that you have soreness in the same spot as I do! :P (Who'd have thought hearing about someone else's symptoms would make anybody happy?? :huh: )

I have never heard of anyone else with POTS saying that it actually felt sore to the touch in the spot where they are nauseous (probably because no one else has an actual "spot" where they feel sick). Is your neausea in the same spot as I described? Do you feel it radiating out to your back? How about only being able to eat bland food?

Isn't it nice to actually talk to someone who has your symptoms and finally feeling like you're NOT crazy? :rolleyes:

Let me know what the Dr. says!

*ChRiSsY*

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Sorry I'm late, but count me in Big Time on this one. Nausea is always my first indicator that my body is going down a pots hole. It is also my number one complaint. I also have that weird "spot", and feel like someone is pressing a button, and I will vomit. I can handle almost everything POTS has to throw at me EXCEPT the nausea. It completely incapacitates me. Compazine has been the only thing that works on me.

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  • 1 month later...

WI Mom -

sorry to hear that your daughter has the nausea fun too. a number of us have the issue, some related to motility & some not. i have gastroparesis & slow intestinal motility & take reglan occassionally; earlier in the year i was taking it regularly & started having the scary side effects that it can bring for some (tardive dyskinesia). now my motility is helped by zelnorm & mestinon, & while i still have bad days, i've gained back all of the 35 pounds i'd lost earlier in the year so am definitely MUCH improved. if you do a search for reglan or gastroparesis you'll probably find quite a few discussions.

good luck,

B) melissa

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Guest Finrussak

I too have had nausea on and off for years ( since youth)...

My girlfriend of 40 yrs likes to relate that we met in 3rd grade after I puked on her shoes at line-up B)

and have recently been told by doctors it is definitley related to the OI/POTS stuff,. And it is absolutely worse mid cycle (ovulatory) 1-2 days; and then again last 2-3 days (just before and day 1 of period). It is also worse AM . (hormones affect timing of many sx) I suspect it may have always been so as my family tells me I was always a "midnite snacker" and even now can eat only after noontime and IF I have an 'appetite' at all its in the evening. To regain the weight I lost past 2 yrs battling Lyme ( down to 84 lbs) I still make sure that if Im up even if its midnite, I snack. and I force small amts food every few hrs ( even if not "hungry")

If I go too long without food, again it worsens, so my choices are nausea being "empty" or eating and maybe puking....and then risking an episode which is caued BY the heaves!!( and the episodes result in....more heaves)

I find that diet ( wheat free yet not totally gluten free as Im not antigen positive but "gluten sensitive, not allergic"; yogurt and kefir instead of milk products etc) helps.

Peppermint sometimes helps (tea or candy IF made with actual oils) but also worsens reflux ( relaxes BOTH sphincters...so stomach empties faster but can also reflux up)

Diet and supplements like mint or ginger, is very individual so it takes some journaling and eliminating to figure it out.

Also, consider accupuncture...I was a skeptic...that is until it worked very well!!! and not just for the nausea...for the anxiety symptoms etc ( one treatment had me so calmed my kids thought they DRUGGED me!!! :D )

In the meantime, for some the seabands work ( elastic type bracelet with a plastic knob that sits on a pressure/ accupuncture point inside of wrist).. For me, though, the electrostim types (RELIEFBAND)work better ( when severely nauseated -its a watch like band with a metal disc that runs on battery...tingles near the same pressure point in pulatile way...blocks the nausea cycle within minutes).

I cannot tolerate ANY of the antinauseas...incl Zofran...as they all seem to affect in 1 way or other the cholinergic/antichilinergic chemical balance of which I am sensitive to. and therefore worsens or even provokes sx.

the past few yrs of all those antibiotics for the tick-bornes has me extremely and constantly nauseated!!

I too have just gotten used to it...thankful when it not escalate to actual heaves; and am quite surprised the few hrs it is gone--which is not too often :D

QUESTION: how do all of you handle the "pukes"??? If Im out ( which isnt often as Im very ill still with Lyme etc) I usually carry a few "convenience" bags...my older son is an EMT and gives me from the rig...to be discrete, if I cant get to a bathroom...and if I get stares I blame it on "chemo"...as that seems to be so acceptable...white lie I know but what do YOU say or do???

I am SO self conscious...especially since I get stares just from being in public...looking so ill or being in a scooter/wheelchair but can walk. [Like 2 yrs ago at the zoo, used the scooter, then parked it for the gift shop ( no room inside plus I was OK at that point)...wow the stares...]

anyway curious as to how you guys deal with this?? thanks

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Guest Finrussak

oops...lymebrain fog...the "spot" everyone keeps mentioning? its gastric...thats where the stomach curves a little, narrows and leads into the duodenum...when nauseous (or heaving) it gets bad contractions and like any muscle feels sore...even for days. Plus its where the lower sphincter is, again sensitive.

The nerves around there are very sensitized ( near the pancreatic tip, common bile duct, etc) and any inflammation or problem like an irritation or irritated pancreas, stomach probs, even liver probs will localize centrally. With so many problems causing sx right there its no wonder many of us feel the same 'spot'!! Also pain can be a little lower (whole area =called epigastric, as in "around stomach"), and even refer ( move) to the back. IF it becomes sharp and shoots to back, and/or left, seek medical advice as that is a sign of pancreatitis. If it becomes a "gnawing" type pain it may mean ulcer...again ask a Dr.

The back rubs can soothe by calming contractions, spurring brain endorphins, and by stimulating pressure points.

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