bttrflyamby1981

Hey Spike, I think it's very important to be honest, not only with your friend, but with yourself. I need to listen to my own advise though. I'm always pushing myself too far...... You could always get a thank you card for your friend to let them know you do appreciate the things they do for you, then maybe you wont feel so guilty by saying no because you don't FEEL up to it. Best of luck in the future, take care, Amber

I'm in the same boat. I don't have a dx period though. The only thing for sure is that I have the Tachycardia. I'm on Toprol right now.....I have a feeling they are going to increase the dose. That's all they said they can do for me right now. They just don't know what's going on with me. I can tell you that everyday life isn't a normal task for me. Just doing something as simple as bending to tie my kids shoe can make me feel awful. Being on the beta blocker has helped A LOT, but having answers would make it easier emotionally. I too can still have an increase in my heart rate while sitting (without the beta blocker). Take care and know your not alone, Amber

I'm on 3 years without a dx. I'm going crazy as it is, I can't imagine waiting any longer. Just the idea of waiting even months for a dx is frustrating. I give big ((((hugs)))) to the people who waited so long for a dx. What strength! My cardio doc is the one who mentioned POTS to me, but they are still looking for other possibilities. My TTT was normal as well as many other tests. Right now the only thing that is for sure is that I have Tachycardia. He admitted he didn't know much about POTS, but he did know of it. Amber

Thanks for the positive comments! As for celebrating, I think once all the tests are out of the way I will be more up to it. I have much more going on then this, but I feel like a hypercondriac so I try not to mention things unless it's bothering me emotionally. I see a dermatologist on the 7th. I need to see a gastroenterologist (I think that's what you call it) as well. Yay fun. I feel like I'm falling apart!! LOL Having a dx would really ease my mind, but because test keep coming back as normal they just don't know. ((stomp feet)) Anyway.....it is nice to have positive news, but sometimes it's hard to not focus on the negative when you always feel like heck. Thank you, Amber

Just wanted to send you out a welcome! Amber

Just wanted to let everyone know that all my tests came back normal. The lump in my breast is just a cyst or something. Nothing to be worried about. The holter showed some Tachy, but not anything to be worried about. They might just increase my meds. First they want to do an event moniter. I'm NOT looking forward to wearing it for 30 days, but I hope it helps in understanding what it is going on with me. Take care all, Amber

Glad to hear your gaining weight!

I'm sorry your dealing with this on top of your illness. Lack of support from your family is very difficult. Hang in there and know we all support you. I know it's hard, but ignore your "family" member. We don't chose them, remember that. It's no fault of yours you faint! You have chosen friends that will help you through this, not to mention your man. Take care, Amber (((HUGS)))

Thanks, I'm waiting to go to my appointment. I'm worried though because they told me no food or drink, not even water for 8 hours. Then told me not to eat anything after 5:30am. But that would have made it 10 hrs. So I went with the 8 hrs. (for the ultra sound of the gallbladder) I'm already feeling dehydrated. But I'm trying to keep myself busy as to not think about it. Maybe if I take a shower the water will seep through my pores. LOL I'm 25, but my breasts are far from being dense. I breast fed with my last child too, so things aren't "young" in that department. If you know what I mean. But I'm glad they agreed to the ultra sound, with breast cancer being on both sides of my family I would feel much better knowing it's nothing. If I hear anything today I will let you know. Thanks all, Amber

I can drive....after all while I'm sitting I don't get dizzy. (most of the time anyway) I no my limits so if I feel if I turn my head (to look out for traffic) that I will get to dizzy to drive, then I pull over or have someone else drive. Most problems I have had with driving is more related to my migraines then anything else. I do have to be careful about getting lost though. I forget my turns sometimes......but I feel that I'm a safe driver. As long as I'm not fatigued I do fine, but there has been times it was very hard to stay awake. Good luck, Amber

I actually talked with my dr about this on friday. I need work done too. I was told that I would be fine with the epi because I'm on Toprol XL. Best of luck to you, Amber

I also wanted to welcome you. Amber

I'm glad you have some answers. I know all to well how it feels to be unsure as to what is going on with your body. Take care, Amber

Yes I have gained wieght!!! I actually was tring to work out so I could lose wieght and that's when I realized something was wrong with me. I just can't do much of anything without getting dizzy and feeling weak. I'm still gaining too, actually I wonder if it is from the medication I'm on? I gained about 10 pounds since I started taking Toprol XL. Take care, Amber

I'm having mine checked today, so I'll let you know. I don't have any pain though, they are just trying to rule things out. Amber

Hi, Just got back from my dr's appointment. I was supposed to get a holter but they were out so go back in Tuesday. Today they did blood work and an annual pap. Unfortunately I found a lump in my right breast about a week ago.....still there. They wanted me to do a mammogram but the office won't let me because of my age. So I go in for an ultra sound Monday. They are also doing a chest x-ray and ultra sound of my gallbladder. I guess because of the chest pain I have been having? Trying to rule out more things I suppose. She said they know the heart itself is fine, it's just the tachycardia that is causing the problems. They just don't know what's causing the tachycardia. I was a wreck in the office today.......but I'm hoping that things will fall in place soon. Thanks for listening, Amber

I'm happy you have the answers you were searching for. Best of luck, Amber

Hi Kady, I know how you feel with the dr stuff. I'm afraid to talk about my symptoms or any new symptoms because I'm afraid that he will say it's nothing. So in all honesty I'm hindering myself. You have lots of support here! Write down what you have concerns about. Then you don't have to remember. (I need to take my own advice) Take care of yourself, Amber

Welcome! I'm still waiting for the diagnoses, but have been dealing with symptoms for 3 years. Hang in there, it will get better. Most have ups and downs, but the viral induced POTS can be a good thing. Fingers crossed for you, Amber

I hear ya. It drains you just think about how awful you feel Hang in there, Amber

Thanks for sharing.

I deal with them as well, they put me on Imitrex. It works but I can't afford it even with insurance. Sometimes finding the trigger can help to avoid the headaches all together? Good luck, Amber

I know I have more awareness when it comes to smells, like it's heightened or something. My senses are aggravated by sight and smell when I have a migraine.

Happy b-day........as you know you share it with my son, so sorry I didn't wish you a happy birthday sooner! Best wishes!!!

when I click on listen it doesn't have yours?