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BeforeTheMorning

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About BeforeTheMorning

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  1. I literally put some salt on a teaspoon, put it in my mouth and wash it straight down with water. If you put it nearish the back of your tongue and don't close your mouth until you are swallowing the water, you don't tend to taste it. I find it helps a lot to do this in the morning. For some reason it can make me feel sick if I do it later in the day, but no problems with that in the morning.
  2. I've used GU Brew tabs, they have a good mix of electrolytes and I don't think they have much sugar but you'd have to check. They are by far my favourites.
  3. So happy for you and Tyler! That is amazing news!
  4. Maybe upping your fluid and salt intake (if your doctor has recommended extra salt for you) a little could help on those worse days? I don't really have any other suggestions other than resting. I'm sure some of the other people on here will be able to help.
  5. I found a bit of an update on the dysautonomia international facebook page: "Progress on POTS antibody research! Researchers from the University of Oklahoma collaborated with researchers from the Imperial College of London and Lund University in Sweden to look for adrenergic receptor antibodies in a group of of Swedish POTS patients, healthy individuals and individuals who had vasovagal syncope without POTS. The results were presented during last weekend's European Society of Cardiology meeting in London, which is the largest cardiology meeting in the world. We have to wait for the full paper
  6. Hi navyblue, Welcome to the forum! I read right through your post, but I'm not sure I'll be able to answer all the questions! Sometimes it does feel good to just write it all out though doesn't it? With your heart rate numbers it does seem that POTS could be a possibility. Although it would seem to be a mild case as your only symptom is dizziness, if I've got that right? But I do know how annoying that can be, how you just want to feel normal again, and how disconcerting it can be when you have symptoms but no diagnosis. The best thing to do would be to see a doctor who knows about POTS. Ho
  7. To those who are going, please update us if there is any news about the research that's going on! Have a great time!
  8. Hi, It sounds like it may be a good idea for you to see a doctor who knows about dysautonomia. Here is a link to a list of doctors from the Dinet website: http://www.dinet.org/index.php/physician-list?view=physicians Of course that list is not exhaustive, but it may have one near you. You can do a 'Poor Man's Tilt Test' either at home or get your PCP to do it. You lie down flat and still for about ten minutes, and measure your heart rate and blood pressure, the stand up and stand still. Measure your HR and BP at 3, 5 and 10 minutes. About the nausea. That is a big one for me too. A few years
  9. Congratulations artluvr! Like Katybug said it can be best to squat rather than bend over if you get lightheaded. If you are getting too hot could you try something like a cooling vest? Also remember to drink plenty throughout the day. If your feet are hurting from blood pooling then compression stockings can help.
  10. Hi, Welcome to the forum! That does seem like a lot of tests to have all at once over just a few days, but at least they are being thorough and I guess it might be good to have all the tests together, so you can get answers sooner. I had a whole bunch of tests before my diagnosis, but it took ages because the tests were weeks or months apart and some at different hospitals. So if you're having them all at once at one hospital at least you can go and get it over with. Hoping it all goes well. Best Wishes, Lyla
  11. (I'm sure I've asked about this before, but we have so many new members now I hope people don't mind my asking about it again.) I would love to hear what jobs (those that can work) people on here have. I'm really trying to think of a job that I would be able to do and I'm struggling! Any input would be greatly appreciated. Thanks, Lyla
  12. I'm excited to see the outcome of this study. But I can't see how it is going to 'cure' PoTS for everyone. After all he's only looking at two antibodies and they are not the only kind of antibodies that have been found in people with PoTS. And what about other underlying factors? I don't know, it just seems incredible that he's talking about a 'cure', of course I want it a LOT but I guess we'll have to wait and see the outcome.
  13. Congratulations! You did great at your interview I'm sure you'll do just as great at your first day of work!
  14. Not sure where you live, but has the weather got a lot warmer? I definitely get so much more PoTsie when the weather starts warming up. If that's the case (this sounds obvious) but try to stay cool. If I let myself get overheated, that's it, I'm out! Electrolyte drinks can really be a good help, some people use Nuun tabs, I like the GU Brew tabs as they have less artificial stuff in them, but anyway there's a big choice of different ones you can try. It's probably best to sip them slowly if you're having GI upset. It's really hard going through a flare, just know we're thinking of you and hope
  15. Hi, Sorry not to reply sooner. I sometimes use electrolyte tablets called GU Brew, they are good, and I don't think they have any really bad artificial sweeteners in. At the moment I'm using an electrolyte powder, I mix one little scoop with half orange juice half water in a bottle and it tastes fine. Also it is a much cheaper way of doing things than the electrolyte tablets. I got it a bodybuilding/healthfood type shop.
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