I was wondering if anyone knows the answer to this question: Is salt-loading recommended for both the partial-dysautonomic and hyperadrenergic forms of POTS? My doctor's nurse suggested that I increase my salt intake. I was just curious if that's a global suggestion. I'm trying to increase it, but I don't like it very much. I've been taking two Thermatabs per day and trying to eat salty snacks, but it's hard! I guess I shoulda had a V8! Thanks! Amy
Or even better, Lloppy, they could hook you up with one of those contraptions they use in the theater to make it look like actors are flying, and you could lay down -- but be suspended above the patient -- to do surgery. Until you drop something and it bounces off of them. Scratch that idea. Amy
I have felt that way in the past, though it's gotten better. Sometimes I have tremors in my hands, though not at this time. One doctor was convinced that I must have hyperthyroid. But I didn't, and I chalked it up to anxiety. But now that I know I have dysautonomia, that wasn't the whole story! As always, you might want to check with your doctor ... you know the drill! Amy
Yay! Answers are good! And a whole lot better than people telling you you're crazy! I'm sorry that you're facing surgery, but if it might help, it's probably worth a shot! Amy
Trying new medicines! Fun, fun! (I'm being very sarcastic here.) Hope your finger feels better soon. I got an infection in one once (not sure why) that made it feel a bit like you describe. amy
Pat, I'm sorry to hear that. No matter what the age and what condition they're in, it's hard to lose a parent. I'll pray that your family will find strength in this tough time. Amy
Dawn, I had the same experience with 20 mg. Paxil. When I stop taking it, I start getting nausea really bad, can't eat, throw up a lot, lose a bunch of weight. When I take it, it's not a problem. So you're not the only one! Amy
Flop, My hormone levels are also entirely normal, but in the U.S., you can get diagnosed with PCOS anyway (because I have some acne and polycystic ovaries.) So I need to move to the U.K. Then I won't have PCOS anymore! Of course, I think it's because I have dysautonomia and my body does a bad job of regulating itself. Amy
I'm a newspaper copy editor. So I sit on my butt at a computer all day. POTS has no effect except for feeling lightheaded when I walk to the printer! I might be switching jobs soon, however. My husband just got a job with day hours. I work 3 p.m. to 1 a.m.! I don't know about grad school being worth it. Luckily, my chosen career doesn't require it. Amy
Bison is full of protien and good fat (omega 3, I think) and very low in saturated fat. Figured as a South Dakotan, I should mention buffalo! I buy ground buffalo instead of beef. Amy
((((((Becca)))))))) You're not going mad. People who go mad think they're the sane ones and everyone else is crazy! You're dealing with a lot. That's hard. That's bound to make you want to scream and throw things once in a while, particularly when it seems like no one will help you. I wish I could offer more, but just know that we're here for you! Amy
I know I've read before that POTSies often have cold hands and feet, so I'd suppose that means less circulation gets where it needs to go. It seems like that would make sense if many of us have low blood volume. It's going to stay where it's needed the most, I would think (heart, lungs, etc.) Mine look that way sometimes. Amy
Melissa, I certainly hope that the new medication takes care of whatever is "bugging" our favorite fishy! It sure seems like the pneumonia sure could explain the fevers. We'll keep our fingers (and fins) crossed! I'm glad you haven't had a fever today. I've had a sinus headache for three days, so I feel a little bit of your pain! Amy
My husband has a new job! He will receive federal health benefits with his new position on our congresswoman's staff. My question is this: Are the benefits any good? Are spouses covered? How about wacky autonomic disorders? If anyone has any first-hand knowledge, I'd be much obliged. We currently have coverage through the newspaper where we both work. It's not bad, but I'm weighing the options ... Thanks in advance! Amy