cupcakemomma5

@ Enid, we saw the same and he stated to come in on my meds. Then the test were inconclusive because of them! I was NOT a fan of him at all! He spoke to me for 3 minutes, arrogant bumm.....lol Now I am waiting for hard copies of all the test etc and see where to go from there. nd he questioned why I was not on midodrine which is the normal drug, and so I told him that midodrine bottomed out my bp and my hr went to 200. So while in hospital they had me come off it. He told me that great you'd have to be difficult case. No word of a lie, I left his office in tears just how blah I felt, and now for the best part, I am having a reaction to the solution they use for the QSART, and have hives from head to toe... All I can do is laugh!

Just curious to see if when you had the ttt done were you off your meds or on them. Was dx with POTS in Aug after numerous testing, and was put on atenol and florinef, and then was sent for QSART and TTT and Dr. Stated inconclusive results due to meds, and probably just anxiety! I am soooo confused, he wanted me on the meds to see how body responded on them and Now I am back to square one. He didn't even listen to my past history, I received his note he was forwarding bck to my gp and more than half of what is written is false information. Now what? So my main question is if anyone was on their meds during the ttt or were you requested to be off them for 48hrs prior to testing.

I know this is a regular test, but I have never had either done. So I am really scared. I don't know what scares me most, the testing or speaking with the specialist. Sorry, no one at home gets why I am scared. For me the fear of the unknown..... I was given a POTS diagnosis while in hospital for 21 days, due to the rule out of everything else. Let's say I go to this specialist and he turns around and says...ah, you have this and not that, and all this time...I just got my head wrapped around one thing....uuuggghhh. I guess it's the old "waiting for the other shoe to drop" attitude. Thanks for whoever reads this letting me vent.

Just curious to see if anyone else has had issues with superficial clots in the lower calf? I am guessing due to the whole pooling in our legs, however I wear compression stocking (waist high) But I don't know. Getting quite frustrating!

Altruism, I am actually on an SNRI (cymbalta), and find its working for me. Now saying this I was on Celexa for 10 years treating anxiety I never really had (long story). After my lovely month stay in hospital, I was switched to Cipralex, which was ****. I actually became depressed on these pills. I also have a prescription for clonazapram as needed. I am one of those people that you need to do what's right for you. Having a new baby,being dx with POTS, post partum, all of this is hard on a body. If you feel comfy and the therapist was okay with upping the dose then try. The only down side is that it does take time for SSRI and SNRI to see/feel the either benefit or side effects. I wish you all the luck. Keep us posted.

Def. Not attractive. This is speaking with experience. I have suffered with superficial varicose veins and one deep vein that had to be removed this was in my 20's. How sexy to we feel with knarled up legs and compression garments.....lol So...I actually got tattoos on my scar from the surgery. And as for beaches, honey I was in a tankini for the first time since being dx, let me tell you, I didn't give a rats patooty who was looking. The fact that you are even vacationing. Enjoy it! Don't think I didn't have my moments, I was sitting in my closet crying because none of my dresses fit because of the florinef...and we had a formal night to go to.....lol

I Enid, I actually see him on Monday the 11th of March. We are trying to figure out the whole OHIP to Medicare thing.... Did you like him, or was just a oh okay here we go.... Sorry to bombard you...just never really heard anything about him..... Thanks for answering. I will def. Keep you posted.

I want to say thanks to all that responded. My doctor dx klonopin (.5) twice daily as needed. I have been so paranoid of becoming hooked, I haven't really been looking at the big picture. When I have taken them, my symptoms so much more in check. And especially now with leaving on a big family trip (First one since diagnosis of POTS, so my whole system is outta sync) Thanks for posting : )

Also ask the doctors if the microscopic colitis or during that procedure if they found ganglion nerve ending. Ask about hirschprungs disease (it affects the nerve endings in your intestine/colon.... Just. A thought...

YYeah you I am very glad your system has taking a liking to it! Just gotta keep trucking

Thank you all for the great feedback. Went to my gp today, and I never felt the way I did with the gp. Basically wrote off everything I was asking. Wait to your consult.... Totally blowing me off....uuuggghhh, she gave me a friend antifungal for my arm! lol

i have noticed over the past month, that my skin on my arm has lost some if its pigment(around 3" in an abstract paint splatter look) It startedout really small and then changed to this. Just wanted to know if anyone else has had this happen to them as well. Thanks

Ts. Sad and scary how many of us think "if it was this diagnosis instead of POTS ". We can wrap our heads around the diagnosis that we know of and is almost tangible, but people look at us and come on, we can read that big old caption bubble, with them thinking "yeah sure your sick!" I am in the same boat with family cept my momma is so competitive, that when my diagnosis came in, she said, I think that's what all my symptoms are! All I said...bunny, you can Have them. Hopefully made someone smile, just enough to realize crazy comes to everyone's family! I truly have the most functional dysfunctional family going!

Shucks! I am on a tablet as well. These darn things....lol

Not a stupid question at all ( actually had to pause a moment) Did you try using ctrl another enter key, or shift and the enter key. See if that works. Sometimes in forums the paragraphs are linked even though you hit enter. Good luck.

This post gives us newly diagnosed Potsie a great way to look and learn. Thanks

I just found out today that I finally got an appointment for the autonomic lab in Montreal (good 2 hr drive...lol) Any one on this forum ever have Dr.Schondorf ? This is the non intravenous one, so lest eerie, but stress test and ttt are Freaking me out! Anyway to put this outta my head would be great! Thx Tara

Boy do I hear You! When you get into that spot...as moms we feel like we should be invincible, and then this! Something that is so difficult to explain to adults, but to your own kids. Sorry I had the same kind of day (trust me, mine would have preferred frozen pizza, they ended up with Kraft Diner...lol) All the respect for homeschooling the older 3. {{{Sending warm hugs your way }}}

What anxiety med were you on before. Please keep me posted on how your anxiety fairs with zoloft. Cheers Tara

ecause I am still waiting to get in to the specialist, my meds are just doing the basics. I am also taking Cipralex for the anxiety, and clonazapram for the aaaagggghhhh moments. I was more curious as how other pots people travel. We will be cruising it. It was booked and paid for way before the diagnosis. So I am freaking that we get there, and I go into a "I can't get on the boat" all due to anxiety...I'd be so ticked at myself!

Let me see how to put this. I had a vacation planned since March 2012 to go away this Feb. Now I did not forsee being diagnosed with POTS and the lovely anxiety issue that accompanies this "wonderful" thing we call pots...lol How in the Heck am I going to be able to find the inner mental strength and lack of stress... Please my fellow potsie. If you have ventured on a family vacation before, please tell me what to somewhat expect. I am terrified that I will let my kids and husband down. They have been all so great, I just don't want to be the one responsible for mucking up a family vacation.

It's true, you can be on many medications that are just treating the symptoms and not the underlying problem. However it being POTS is just one of those crappy dx that we primarily have to symptom treat. My bp today was 106/75 and hr jumped to 120. And I am on a bb and florinef..... So yeah pills are doing their job (somewhat) but today was one of those days where the fatigue headache, nausea, and pooling in legs were there big time! Really sorry your having an off day.

I have had a headache since Aug. Frustrating! However, with the headache being a continual thing. I don't think it makes my symptoms worse, I just become more agitated due to the other symptoms and then the headache on top of it all. So I now have a "Bring it on " attitude. Good luck finding something out. Keep me posted : )

(((hugs))) ER days suck! Keep well hydrated, continue resting with feet up. : )

Girly historical authors, Sabrina Jeffries Nicole jordan Other author that has some good reads JR Ward (vampire novels.adult ones) Lara Ardrian Good luck finding some good reads : )