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About boymommy3

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  1. I am so sorry your are going through this! You do seem to be such an encourager on this site and so I hope that we can all encourage you when you need it. I know you said that going out of town wasn't an option, but what about the Vanderbilt research thing.....if you didn't have to pay to go out of town, would that help? Also, remember....Doctors work for you. Even though you don't have any POTS specialists near you maybe you could start asking around for people to recommend a good doctor and then call the office and ask if they can find out if the doc has any experience in dealing with patie
  2. I do something similar to this and have for years. 10 and 2 are what I call my "wilting" times. I am good in the am (unless I am in a POTS relapse then usually the whole day is bad) until about 10 and the feel like I need a serious nap! I usually just push through and drag for a while and then I get a second wind....until about 2 and then here comes the seriously needing a nap feeling. I cannot read to my kids in the afternoon during that time or I WILL fall asleep! Then I get a second wind and am usually ok the rest of the night. Do you by chance have any thyroid issues?
  3. I know that last year I had some kind of nasty virus. High fever that was difficult to control and THE WORST body aches I have ever had for a good 4 or 5 days. It wasn't the flu though..... Hope you get better fast!
  4. WOW! Issie, soooo happy for you!!!!! I just got The China Study today. We made vegan brownies for dessert tonight. I just figured that if you're going to start with a new way of eating why not start with dessert! Please keep us posted on your progress! Also....i would be cool if you'd post on the chit-chat forum some of your favorite vegan recipes or foods.
  5. Wonderful!!!!!! So very happy for you!!!!! Yet another wonderful thing I am seeing about a vegan diet.
  6. I have been in your boat for a while. My doc started me on a BB right away when I started having this last relapse. She has just been doing orthostatics on me in the office and I met the criteria. She did tell me that in order to do the TTT I'd need to come off my BB. I haven't wanted to so that because it helps soooo much! So....I don't really buy into the theory that if you have it, you have it no matter what meds you take. Otherwise why would we take meds in the first place. AND....everyone is different. Doctors try so hard to put us all in a nice neat little box they can mindlessly prescr
  7. I know exactly what you mean.....since December I have seen my GP, cardiologist, neurologist, endocrinologist, and getting ready to go back to my gastrooenterologist. Seriously....it's ridiculous! I just wish that a a group of docs who know about POTS/Dysautonomia would put together a practice with each of these types of specialists involved so that they could work closely together and as a team be able to treat the WHOLE person!!!! Wouldn't that be nice!
  8. I think maybe just starting with your GP at first. Letting them know what's going on and maybe they can point you in the right direction. I know that sound a little laughable..... the thought of a doc being able to point someone with POTS in the right direction, ( ) but it's worth a try. As far as your symptoms, I have had something similar to what you describe but it just hasn't lasted as long as yours has. I do often get a burning sensation on my skin. Good luck in your search and I a so very sorry you are going through this!
  9. I recently went to the ER and after telling the doc my symptoms and issues she said they were there to make sure I didn't have anything life threatening and that outside of that I would need a much larger workup with my GP. So they did labs and an EKG and sent me on my way and because all of that was fine they sent me on my way. I would tend to think though that if they thought your heart was enlarged they would have told you so. Did they say anything at all? Sometimes docs offices have cancellation lists that they will put you on or if not, you can just call daily to see if they have had any
  10. I have never had serious allergy issues either. Never been too prone to nasal problems. I do get itchy eyes a lot in the spring and summer and it can be really bothersome. If I don't touch my eyes I'm ok, but if I touch them....it's all over...they itch so bad I tell my husband I feel like I could dig them out of my head. I honestly don't even get headaches very often, but have noticed of late that I have been getting more. I have noticed that I have become more sensitive to smells. Not that I have an allergic reaction to them (other than a headache sometimes), but it's like my sniffer is on o
  11. Issie....thanks! I will keep you posted on how things go for us. I also had a friend recommend The Maker's Diet. It's apparently on the same lines and China Study but maybe not a strict. It's a process for sure, changing eating habits. Not easy with kids who are picky eaters either. I have two kids are are picky and one who isn't. It's so strange to me because they have all been fed the same food their whole lives but one of my kids LOVES good food. I am convinced he's gonna be a chef. The other two....not so much. ARGH!
  12. I am ordering the book from Amazon and hope to start getting on board. I am believing that is something to it as well. There is a doctor in our community that is an internist who is treating people by having them go on this diet. I have heard nothing but wonderful things about him either. We LOVE our current GP but I am considering having my husband and I see him just to get some info and see what he has to say about the two of us. We also have some friends that we go to church with. The wife use to be a dietitian (she's now a SAHM) and her husband is a general surgeon in our area and they
  13. Can POTS cause bad cases of acid reflux or have anything to do with it at all? I just know that a couple of years ago when I started having all these problems one thing was unrelenting acid reflux. At one point I was taking 600 mg. of Zantac and a 20 mg prevacid or prilosec (I can't remember which one) and it still wasn't even helping, EVERYTHING was coming back up. I couldn't even eat sometimes. Finally went to an ENT and he tried me on something else and backed me off the zantac that another doc had me on. He said that was an awful lot of zantac to be taking, especially for it not to be wor
  14. Bebe, YES!!! I get itching with Hhot tub jets or being in the hot tub just being in the hot tub too long! This was before POTS as well, just like my itching when jogging/exercise. I did used to think it was weird but never really considered it a possible symptom of something. It's just crazy, isn't it?! For real, though, I cannot sit against the jets very long at all before it starts to itch. I don't have trouble with the shower either. My skin will be quite red after a shower sometimes but I like to take a hot shower (well, not so much anymore, it makes me feel weird so I haven't had the red
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