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ramakentesh

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Everything posted by ramakentesh

  1. ramakentesh
    My pots is also a waxing and waning type presentation. Rest is important when acute. Hiting the salty liquids can help. when i flare i find eating lots of healthy foods can help. in the past licorice and now midodrine also help (talk to your doc) Impending doom feeling is sympathetic overdrive being detected by beta receptors and the overdrive is usually an attempt to deal with reduced stroke volume and cerebral perfusion
  2. ramakentesh
    Im a dude with pots. It *****!
  3. ramakentesh
    I had one positive QSART and one normal one - the positive one didnt correlate with symptoms as i was well at the time. sfn in pots is patchy and may manifest anywhere - although extremities most common. there are other potential causes being investigated - autoantibodies blocking alpha 1 receptors, abnormal blood vol regulation via ang 2, epigenetic suppression of net gene.
  4. ramakentesh
    Yes there is a much larger follow up study being done right now. Plus other stuff elsewhere on net deficiency. hope u are well. Take care.
  5. ramakentesh
    Yes they are hot to touch - basically over dilated microvessels in the skin. I get this as well. Cause yet to be explained
  6. ramakentesh
    In pots there is low stroke volume, reduced cardiac output and reduced blood flow to the beain despite mean arterial pressure being uneffected. You can faint with normal and even high bp
  7. ramakentesh
    Spoken to your docs about alpha 1 agonists like phenylephrene -
  8. ramakentesh
    Yes very exciting
  9. ramakentesh
    Great info thanks.
  10. ramakentesh
    it is not an alpha agonist like midodrine thus is less likely to cause supine hypertension. It is a precursor for norepinephrine that catalyses increased presynaptic vessicle synthesis of norepinephrine which would cause a general increase in norepinephrines peripheral actions and vasoconstriction. Thus it would boost blood pressure but not as acutely as midodrine when supine.
  11. ramakentesh
    Cerebral hypoperfusion from a post exercise decline in adrenergic vasoconstriction.
  12. ramakentesh
    Thanks
  13. ramakentesh
    Its caused by hypoperfusion and the bodies inability to maintain circulatory control even lying down when you are still (tonic).
  14. ramakentesh
    Its a spectrum. I know of a payient unable to get out of bed for five years
  15. ramakentesh
    Most if the time im fine - sometimes for months almost normal. But it comes back and can render my unable to drive or even shop on bad days. my med combo gets me through but only when they work whih isnt always
  16. ramakentesh
    Depression is a natural respinse to any illness that hangs around too long.
  17. ramakentesh
    I like how you called it the pots btw
  18. ramakentesh
    Oh yeah definately. And why i feel so much better after saline or florinef
  19. ramakentesh
    Hi my cousin hit 27 and suddenly developed gastroparesis. anyone here know the kinds of treatments that work?
  20. ramakentesh
    The acute times i rest, the in betweens i try tk stabilise with exercise and diet but it does what it does.
  21. ramakentesh
    It changes and sometimes more often than not there is no trigger. I crash for a while zlowly improve then it comes again. Cycle.
  22. ramakentesh
    If it works enjoy it. Signs of too much would be throat numbness and diaherra.
  23. ramakentesh
    As you exercise your body becomes less reliant on veinous return and alpha receptor activity to maintain blood flow to the brain - your movement does the work. If you move 24 hours a day you'd be fine
  24. ramakentesh
    The brain fog is cerebral hypoxia. Anything that helps your pots will help brainfog. For me low starch and low inflammatory diet and no solanines helps.
  25. ramakentesh
    Well said - i get bad relapses but i always improve
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