Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Freaked

  • Rank
    Advanced Member

Profile Information

  • Gender
  • Location

Recent Profile Visitors

986 profile views
  1. Well, I just spent ages typing out a post about something I need advice on, but it signed me out and I lost all the text Anyway, I haven't been keeping up with research much lately, so I was wondering if there's been any interesting studies I've missed out on?
  2. Thanks for the reply. Good to know the goosebumps can wear off. Just hope I'll be able to put up with it in the meantime.
  3. So recently, after 2.5 years with POTS, I went to see my country's only actual expert in the area, a gerontologist named Professor Lyons in Limerick City. My initial experience with him has been positive; he knew his stuff and he says he'll fill out a disability report. He prescribed me midodrine. He seemed pleasant and intelligent, which is a nice change compared to many of medical experiences since I got sick. Midodrine was suggested for me before, but I was so wary of drugs by that point that I just didn't want to try it. He's started me out with the lowest dose, 2.5mg, and I started taking
  4. https://youtu.be/3IOqRLR3Oug They've been discussing entirely pedestrianising the centre of my city (Dublin), which would make it even harder for me to ever go there for meals or whatever like I do every few months now. I used to be in town every day once. And it just occurred to me that most people have no idea how hard things are when you can't walk much or are in a wheelchair. Or when the mildest amount of heat makes you faint. I miss the city. I miss dancing. I miss the beach. I miss holidays where I can actually do things. I miss being able to drink or smoke occasionally. I miss the mount
  5. Sounds like a dry eye thing, which is something many of us with POTS seem to have major issues with. I've had retinal exams and brain scans due to visual weirdness, and most of the weirdness seems to occur when I'm tired and my eyes are super dry. A really good optician told me my eyes and skin were really short on oil. Only had dry eyes since POTS. Does the smokiness alter if you blink a few times?
  6. I've been absent from this forum for the past few months, cos I went to a pretty low place and am slowly working my way back. But I just wanted to make a post saying that it is possible to improve. I got POTS suddenly in Feb 2013. For about 5 months, it was awful. I felt...there isn't even a word to describe it. For 7 more months, I was still too crippled to leave the house or enjoy the things I used to, to be physical with my boyfriend, or even to have animated conversations with my friends. In Feb 2014, I had a relapse and another month-long fever, and my only doctor abandoned me after admit
  7. I think my weirdest BP was 100/90. This was while my heart was going 170 and I had cold pain going up to my jaw, home alone sitting on the floor, feeling very faint. That was an ambulance day. I've also seen it be things like 115/100 when I'm standing and very symptomatic. Narrow PP is a symptom of low blood volume, which most of us seem to have (going by studies at least), so it doesn't surprise me.
  8. Huh. The rolling over in bed thing happened to me when I first got POTS, with a bad flu. That part went away after the flu though (touch wood). Was horrible.
  9. I've been having trouble with crazy panic attacks for the past few weeks that would have been very unlike my pre-pots self, so just curious.
  10. If I tried to stand in a shower, fun would not be had. I sit on the floor. Even that is a huge trial during flares.
  11. I made the mistake of sitting in the sun for half an hour the other day. I hae to sit on the cool floor inside for like 40 mins afterwards in front of a fan feeling sweaty, weak and shaky. POTS and summer don't mix well.
  12. Thanks for the replies. I seem to very much have hyperpots and lately the adrenaline is driving me pure bananas. My heart was 140-160 for hours today even after the hospital gave me a bunch of valium; I'm pretty sure it was more POTS attack than panic attack but I feel like a whimp. I know my POTS is quite severe as it goes, but it doesn't seem to drive anyone else this crazy. Then again, it didn't drive me this crazy until recently. I just don't know what's going on and I can't figure out how much of these feelings are chemical and how much psychological.
  13. Every time I get a flare, it seems like me and those around me are handling it worse. I feel like a huge burden to those around me. My mind is cracking from feeling so sick and the panic. My degree that I worked so hard for is falling apart at the last minute cos in spite of all the extra time I'm just not up to it right now. When I get quite ill, everything that I normally enjoy just makes me feel sicker. I have no POTS doctor atm and getting psychological help is being a very slow process. My parents despise me and I feel like my mind is beyond saving at this point. I just...I don't know. I
  14. That's exactly it, statesof. Crazy mood swings. It's very unlike me normally so that's part of why I'm finding it so disturbing. Don't feel in control of myself, and I'm also getting the weird fluctuations between sweating buckets and not being able to sweat a drop that I get when my POTS gets bad. So it's almost certainly related, but the 'adrenaline swings' as I call them have never affected me mentally this badly before. One thing I have noticed though is that it's a lot worse when I'm feverish and paracetamol is helping me feel more sane.
  15. Thanks for the replies everyone. I'm getting help arranged. Unfortunately the public system might require me to go back to this http://forums.dinet.org/index.php?/topic/24449-horrible-psychiatrist/ guy, which is not an option, but hopefully my parents will pay for privately otherwise. I have some benzos to tide me over until my appointment. This flu still isn't going away so I think my adrenaline is still nuts.
  • Create New...