News About Our Documentary

[Michelle Sawicki]

Hi everyone,

As most of you know, we are in the process of creating a documentary about Orthostatic Intolerance. We are filming a Canadian girl, Shannon Donegan, and her mother today. Last night her local news channel found out that she will be featured in our documentary and they came out to film her and run a story about POTS as well! The newscast may only be up for a couple more hours, but for those of you who catch this quick...you can watch it at:

http://www.cbc.ca/newsatsixottawa/

Click on "latest newscast." Shannon's story is about the 6th one in.

Michelle

[MightyMouse]

Thanks Michelle, that's cool!! Nina

[Sunfish]

VERY cool! thanks for letting us know...

melissa

[worththewords]

I'm glad I got to see it. That's a great way to spread awareness. If only we could all get our own local channels to interview us.. ! I look forward to seeing Shannon and her family on the documentary.

[nadine]

Thanks for the info--- these video clips are worth sharing with our own friends and family. There are so many, as we know-- who just don't get it.

[pickledfairy]

AWESOME!!

[corina]

i?m sorry i missed it!

hope the documentary is going well!!!

corina

[Michelle Sawicki]

Hi everyone,

Shannon's mom just informed me that the video should be accessible until Monday evening...so those of you who have yet to watch it can still catch it today or tomorrow.

Michelle

[Sophia3]

Thanks, Michelle. It took me a bit to find the article/video but I thought for the brief amount of time, they did a good job..how you can LOOK SO NORMAL but the standing and sitting up can bring on symptoms. Racing heart, dizziness, fatigue. How well some of us know.

I remember Shannon's you tube page...very moving.

Can't wait to see the documentary.

[Rachel]

Thanks for letting us know about this, Michelle! I enjoyed watching the news about Shannon. That's really neat that her local news channel helped her to spread awareness!

For those of you who don't want to watch the whole newscast, Shannon's story starts 6 minutes and 50 seconds into the program, so you can just skip ahead.

Rachel

[yogini]

Thanks, Michelle. I agree - she looks so "normal". The story mentions that she has her own Youtube site on POTS. Do you have the adress for it? I'd love to check it out...

[Rachel]

For those who didn't see Shannon's YouTube site, you can check it out at

There are 3 different videos that she and her friends made about POTS.

[yogini]

Thanks, Rachel.

[corina]

heyyyyy thanks lot michelle and rachel for letting us know!!! it was very cool to watch. i am glad that people at this site are so busy with the awareness part of dysautonomia. thanks a lot to all of you!!!

corina

[dawn]

Thank you Michelle.

It was so nice to hear them use the word POTS.

I wish CNN or Fox would pick up the story.

Dawn

[Tessa]

Thank you Michelle

Great work!

Tessa

[doctorguest]

I watched the video and was impressed by the presentation. It was honest and accurate, and Shannon and her mother did a great job in describing the illness and its impact on their lives. Great way to raise awareness and educate the general public and the medical community!

[flop]

Thank you for posting the link. I was just in time to watch the news clip last night. I agree that Shannon came accross very clearly and explained POTS without being overdramatic but whilst informing the viewers about her limitations.

I look forward to seeing her contribution to the DINET documentary when it has been filmed.

Flop

[Michelle Sawicki]

Hi guys!

I just wanted to let you know that Shannon has uploaded the newsclip about the documentary to youtube at:

=

Michelle

[Rachel]

Oh good! I was hoping the newsclip would be put on YouTube! Thanks for uploading it, Shannon. And thanks for letting us know, Michelle.

Rachel