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worththewords

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About worththewords

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  • Birthday 11/08/1982

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    Florida

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  1. This is a good topic.. I'm getting married in a couple months so this is something my fiance and I go around and around on - basically changing our minds on what is the 'right' thing. My gyn suggested to me that I should go the surrogacy route. He felt I could tolerate the fertility drugs necessary to make it happen but was very concerned about what the actual pregnancy would do to my POTS. He imagined it would make things much worse for me and suggested surrogacy so I wouldn't have to go through the actual pregnancy. Quite the expensive option but it's been an option on the table. Sometimes
  2. Mold isn't good for anyone, even worse if you have allergies. I don't think it would cause POTS, however, it may contribute to you feeling more symptomatic.
  3. I didn't have time to read what everyone else wrote. I have POTS and PCOS. Hypoglycemia goes right along with the PCOS for me. Have you been diagnosed insulin resistant? I have that too.
  4. Personally, if it were for diabetes or any other condition I would still be bothered by the amount of medication I have to take. It's really hard to wrap your mind around it and just be okay with it. The hardest time for me is when I have to tell a new doctor or fill out a form of all the medication I take. Sometimes it just feels ridiculous and even more so since I'm 22. Your husband's suggestion of having your kids label your bottles as a reminder is very cute. You are doing it for them, yourself, and your husband so that the best of you is available to all. Hang in there!
  5. Naples, Florida POTS and hot Florida summers.. what a combination
  6. I'm currently seeing Dr. Stewart for his study. I'm 22 and I didn't get the impression that he primarily focuses on pediatric patients (although I might be mistaken). There is info on his study on this site under 'studies' Dr. Stewart's knowledge on POTS has been very refreshing as most of the doctors I've seen rarely know what I am talking about or experiencing.
  7. I am one of those people that has strange reactions to medications. Florinef kept dehydrating me.
  8. I was wondering if anyone found any vitamins or supplements helpful in increasing energy. I've recently changed my diet drastically (no bad carbs, no soda/juice, red meat) - I have a problem with my insulin/glucose levels. I know this is contributing to the lack of energy but it has actually made some of my POTS symptoms lessen. I realize I should probably be taking something to help with my energy. Any suggestions would be appreciated.
  9. POTS, thyroid problem (I had a toxic thyroid nodule destroyed by radiation treatment - i now take thyroid replacement medication), Polycycstic Ovarian Syndrome (PCOS), Insulin resistance (goes along with the PCOS), Asthma, enviromental allergies, allergic to beta blockers , and I tend to have opposite reactions to medication. That covers it and that's more than I'd like to have.
  10. I was labeled exercise intolerant due to my POTS but I've learned if I do things slowly I can usually condition my body to handle it. I work very hard to stay conditioned. Tilt tables are no longer my worst nightmare - although it still shows that I definitely have POTS - I have somehow got used to it having POTS. Anyone else experience this? I would like to exercise and shed a few pounds. What do you guys do for a form of exercise? I can swim and bike without too many symptoms unless I get hot and then I'm done. I'm looking for some new ideas.. any suggestions would be appreciated.
  11. On the "things to avoid" section on this site, the ablation is the first thing listed. I had a double ablation prior to being diagnosed with the POTS. Although it did help lower my heart rate - it doesn't go above 180 anymore - I actually felt worse and had more POTS symptoms after the ablation. This is just my personal experience. I don't thing POTS just goes away. I think there will be times where you are less symptomatic but I've never heard of it going away. At least that is my understanding anyway. On this board you will find older people that have POTS so I have to disagree with the sta
  12. Does anyone else get headaches from Gatorade? I can't drink too much of it. But occasionally I get cravings for it.
  13. Has anyone come across any books on POTS?
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