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yogini

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Everything posted by yogini

  1. If your blood pressure is dropping when standing you can boost ir. Your doctor can best advise you but you can try water and salt and/or compression hose. Compression hose helped when walking and it has the added bonus that you can take it off when you don’t need it.
  2. I makes sense to let the dr know. Is she taking meds to boost her BP or what meds is she taking? I suspect a doctor would not prescribe medication to lower for 134/90 BP. This is marginally higher than a normal BP of 120/80. I sm not a doctor but based on what I know with family BP issues this is not that far outside the normal range as probably isn’t what’s causing the sluggishness. You could try reducing salt, eliminating caffeine and drinking more plain water which would help to slightly bring down BP.
  3. If the 20/30 don’t bother you then going up one grade likely would not, it’s slightly more pressure. Each brand also feels different and tge thinner dompression garments feel different than the thick. I wouldn’t overthink it. It you feel you could benefit from more compression and your doctor is supportive just try and see.
  4. Can you find out from your employer what the specific concern is? Like do you operate heavy machinery or lift heavy items as part of your job? Are you fainting? Even healthy people have a fluctuating heart rate and millions of people with very high blood pressure - in danger of having a heart attack - all work. So it seems strange that your employer would need a letter from you.
  5. I can’t speak to SVTs, which are usually considered separate from dysautonomia. However if you are experiencing ups and downs as part of dysautonomia it doesn’t mean your medication is failing. They are a normal part of our condition and no medication can prevent them. You may want to keep track of your heart rate and blood pressure when your symptoms act up to see if you notice a pattern. Fludrocortisone has the side effect of anxiety/adrenaline so if you are taking and feeling anxious that is also one thing to explore. But ultimately if you felt better on another medication combo and your doctor refuses to put you back on it and refuses to listen, thar is concerning. I would spend a bit of time asking him why. You could also get a second opinion from another doctor.
  6. Background information about your condition, the origin and the treatments you’ve explored to date would inform the best next steps for you.
  7. This is a disappointing response from your doctor. It seems that he or she is allowing patients to flood the ER at a time when there is low hospital capacity for a symptom the ER likely cannot help with. Rather, the doctor could provide a referral to a cardiologist, prescribe a beta blocker etc, Most POTS patients are told their tachycardia is typically not dangerous, but it depends on your particular issues. a cardiologist can run the tests and best advise you.
  8. Sorry just seeing this. I would definitely see a sleep specialist as they can best get to the bottom of the issue and they will know a whole range of treatments you many not. It may also feel like adrenaline is keeping you awake but it might actually be something else
  9. Yes I had symptoms with first and second shot but none that I could tell with the booster. It might be better to rely on data than one off stories. Another thing to keep in mind with the booster is that it’s usually only half a dose. Best wishes on your decision.
  10. Have you measured your blood pressure at night? Often the heart is beating too fast to maintain blood pressure. For me I couldn’t fall asleep when my blood pressure was too low. Drinking a large cup of broth followed by several glasses of water right before sleep helped.
  11. It is not unusual to have confusion or even misdiagnosis between dysautonomia and inner ear conditions since there is a large overlap in symptoms, and both conditions can be hard to diagnose. One way to know if your dysautonomia is acting up is to keep track of your heart rate and blood pressure, and you can be more careful at times when they are off.
  12. I couldn’t hold down salt tablets, so I began drinking chicken broth. It’s much easier to have natural foods (olives, pickles etc) than to have salt tablets or to pour salt on my food .
  13. Is your heart rate normal? A high heart rate can cause lightheadedness. But it’s also extremely common for dysautonomia patients to have normal stats, including blood pressure and blood volume, and still feel dizzy. This is because your autonomic nervous system isn’t working properly and not enough blood is going to your brain. The blood is staying in your lower body.
  14. As long as your blood pressure isn’t high you may still benefit from water and salt. Check with your doctor. Blood doesn’t go to the brain which is the problem. Yes, having your period makes things worse
  15. Being in a reclining position is a big help. Honestly I can’t believe that doctors didn’t figure all this out for us. POTS is triggered by being upright.
  16. I personally think the POTS protocols where patients are forced to push themselves to the limit exercising in an upright position make no sense. The exercise hangovers from cardio were awful with me, with migraines and tachycardia lasting for days after. I switched to doing floor exercises/stretches and gradually moved into advanced yoga without any side effects to my pots. I think this is a much better for exercise for me personally.
  17. The gastro is telling you how it may affect your stomach. Have you consulted a cardiologist? I am not sure an integrative doctor would be best positioned to help with heart rate/beat issues.
  18. Hi. I am so sorry you are experiencing lightheadedness. How is your blood pressure? If it is low increasing water and salt intake usually helps. There are also several medications to increase BP, depending on what is going on with your body. Hope you feel better soon.
  19. I am glad you decided to get the booster because once any short term symptoms are over you will have long term peace of mind. I know several people who were extremely careful and don’t even know how they contracted omicron. For some reason the booster was much easier for me than the first two shots. Just a sore arm. It is only a half dose, maybe that’s why. Let us know how yours goes.
  20. Hi, this is a common symptom of dysautonomia and is usually not considered dangerous as long as you’ve had a full cardiac exam which confirms you have no other cardiac issues. if you haven’t already had an exam, I’d call on Monday and try to get the soonest appointment
  21. I think this is not so different than what many of us go through when we first get dysautonomia, obsessively checking our heart rate and blood pressure and freaking out when they are the least bit off. Every pain or sensation seems like a crisis. Even though it seems strange I’d guess 90% people with dysautonomia have done this and it’s a normal reaction to an unusual situation. With dysautonomia I finally realized that even though my HR was sky high, I didn’t die, I didn’t need to go to the ER, life went on, and all the time I’d spent obsessing was a waste and probably made my health worse. I think it is about acceptance of how things will be going forward, which will be different than what they were in the past. If you are struggling counseling might also be helpful. For me the pandemic seems easy compared to what I went through for dysautonomia. I also know my body so well, that I can sense when anything is off. I don’t need to check my temperature because I can feel it. Staying home is also not a big deal for me, since I spent a couple years almost entirely at home with POTS. It’s actually a relief that there isn’t so much pressure to run around, which is better for my health.
  22. Check your heart rate and blood pressure then call your doctor to let him/her know.
  23. By way of an update, unlike the first two shots I didn’t have any symptoms from the Moderna booster. I’m glad I went through with it as I will be traveling a bit between now and January, including overseas. If I didn’t have travel plans I probably would have waited until the booster shots were recommended for the general public.
  24. Scientitsts believe that the booster is needed because the antibodies wane over time and don’t protect against new strains. Immunity isn’t a black and white thing and having sone immunity and sone antibodies isn’t going to be enough to prevent hospitalization and/or death if for whatever reason one’s body reacts poorly to a new case of COVID. There are other viruses that require periodic booster shots for the same reason. There are a lot of non-scientists in the public discussing antibodies when there isn’t good medical guidance on when you can rely on them. This seems like a time consuming, stressful and complicated path to go down when the booster is perfectly safe and free to get. For one day of symptoms I will generally be able to go about my life, not worry about getting COVID and also protect my loved ones and my community. Seems like a no brainer.
  25. I just called my doctor to ask about this yesterday, since I am well below the recommended age and my dysautonomia is not that severe. I feel guilty about taking a booster shot away from someone who needs it more. However I will be taking a few plane trips, including internationally. My doctor recommended it and said it is better to get it now, since it’s relatively easy to get and there isn’t very strict criteria. My appointment is Tuesday so I can report back on how it goes With each of the Moderna shots I was fine immediately but woke up the next morning with terrible symptoms. The symptoms lasted less than 24 hrs. Ii figure experiencing those in the safety of my home is better than getting COVID overseas, ruining my family’s holidays etc. Both of my parents got the Moderna booster and had zero symptoms so I am optimistic it will be easier this time around. I believe it’s a smaller dose.
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