nikigrl8883 Posted November 14, 2006 Report Share Posted November 14, 2006 i was just curious as to see how many of us cannot work becasue of this illness? seems alot of people in here can still work at least part time...i dont even wanna think about work right now.. i tried to continue working when i first got ill and didnt know i had pots and i felt as though i were dying and had to leave work twice finally i gave up on it...my boss said when i had to go home and i was standing there she started to see my eyes go back into my head ...how Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted November 14, 2006 Report Share Posted November 14, 2006 I can't work.... Quote Link to comment Share on other sites More sharing options...
Jan Posted November 14, 2006 Report Share Posted November 14, 2006 I haven't worked since I got sick 8 years ago. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted November 14, 2006 Report Share Posted November 14, 2006 I've had periods where I couldn't work, and periods like now, when I can. Quote Link to comment Share on other sites More sharing options...
Gracefulprincess Posted November 14, 2006 Report Share Posted November 14, 2006 I haven't been able to work for about a year and half Quote Link to comment Share on other sites More sharing options...
scarfgirl Posted November 14, 2006 Report Share Posted November 14, 2006 Twice I held down part time jobs for a few months. Both times I lost the job because of flare-ups that kept me out of work for too long. Quote Link to comment Share on other sites More sharing options...
nikigrl8883 Posted November 14, 2006 Author Report Share Posted November 14, 2006 kexia,what do you mean by flare ups? theres periods of time your normal? lucky you lol i guess imno tthe only one who cant work but with me its everyday if i stand i get sick Quote Link to comment Share on other sites More sharing options...
lthomas521 Posted November 14, 2006 Report Share Posted November 14, 2006 I can and do work. I can't play. Quote Link to comment Share on other sites More sharing options...
futurehope Posted November 14, 2006 Report Share Posted November 14, 2006 I pushed to remain part-time for about 1 year after diagnosis. I still couldn't handle a part-time sedentery job with the ability to keep my legs and feet resting on my desk all day (with the boss' permission).I haven't worked for 3 years now and I do not see that changing any time soon. Quote Link to comment Share on other sites More sharing options...
taylortotmom Posted November 14, 2006 Report Share Posted November 14, 2006 I am unable to work full or part-time on an consistent basis. However, I have found other ways to have a meaninful, productive life. I am now a professional songwriter (a lifelong dream) which is something I am able to do primarily at home (and through the internet, thank goodness!). I have my husband and two sweet kids, and when I can, I volunteer in various capacities. So, no I am not the the therapist I went to school to become but I still use that degree everyday in my personal life. My point is that life did not turned out as planned (it rarely does) but I am still pleased with where I'm at (minus the stinky health). So, keep faith.Carmen Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 14, 2006 Report Share Posted November 14, 2006 Hi,I have been disabled for the past 6-7 years, bedridden for 3 years and mostly homebound. Quote Link to comment Share on other sites More sharing options...
lalalisa Posted November 14, 2006 Report Share Posted November 14, 2006 I've been unable to work since this illness started after getting mono 4 years ago.Lisa Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted November 14, 2006 Report Share Posted November 14, 2006 hmmm good question. i don't have an actual job, and even when i was in the marine corps, truthfully i really didn't really work after i really started passing out. i would go to work if i felt like it and if not then i would just nap in my 1st Sgt's office or the staff NCO lounge.\. they knew i wasn't a maligering type and that i really did feel bad. at this time, i help people out when i feel like it and i get paid sometimes but i don't ask for pay. just odd job type things when i feel like it. but no i don't have a "real job". there is no way i would be able to really work. yesterday for example, i was helping my aunt with her business and i was there 12 hours but i slept 8 hours and only helped 3 hours. no job would let me do that when i felt bad. i get bad migraines which cause me to sleep a lot or to have insomnia. if i am having insomnia i am no good cause i can't think, and if i am asleep i am no good because well you know, i am asleep.dionna Quote Link to comment Share on other sites More sharing options...
ellepee Posted November 14, 2006 Report Share Posted November 14, 2006 I tried to work as long as I could- this was about a month off and on. I have now been unable to work for almost 2 years.-Elle Quote Link to comment Share on other sites More sharing options...
tiger Posted November 14, 2006 Report Share Posted November 14, 2006 I haven't been able to work for 8 months now. I didn't even imagine it would be this long and I don't think I will be able to return for a very long time, if at all. I had a very high stress job-registered nurse. Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted November 14, 2006 Report Share Posted November 14, 2006 I can go to school part-time because the University's made so many accomidations for me. However, I won't be able to work when I graduate unless I improve considerably. Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted November 14, 2006 Report Share Posted November 14, 2006 I take care of my 3 kids and watch another full time but I wouldn't be able to work out of the home or without the help of my husband.Dayna Quote Link to comment Share on other sites More sharing options...
JenniferInOhio Posted November 14, 2006 Report Share Posted November 14, 2006 I can and do work. I can't play.Haha. I like that!!I can work, but I don't (I am lucky enough to be a stay-at-home mom).I can't play either. Quote Link to comment Share on other sites More sharing options...
Suzanne Posted November 14, 2006 Report Share Posted November 14, 2006 I kept working for 18 months after diagnosis due to finances and the belief that I was going to get better. Eventually my body just gave up and I have been at home for 10 months. My doctor is pushing for me to return to help with mood etc, but I just can't see how I can hold down a job. I have 3 kids and it is nice to be around for them, but I would prefer to be working or volunteering on some basis. Quote Link to comment Share on other sites More sharing options...
lmbutare Posted November 15, 2006 Report Share Posted November 15, 2006 i haven't been able to work since i got sick 2.5 years ago... Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted November 15, 2006 Report Share Posted November 15, 2006 I work, but I have days when I dont know if Im going to make it through. I can usually tell when I get up if its going to be one of those days. Luckily I was off today. I had a very rough night last night and I know I wouldnt have made it in today. I kept Gabby home from school and we just lounged around all day. Quote Link to comment Share on other sites More sharing options...
2manyfurkids Posted November 15, 2006 Report Share Posted November 15, 2006 I was a stay at home mom for 12 years and thought since my kids were getting older I might get a part-time job. I had to quit after less than a yr in March 06 because of POTS symptoms. That is when my crusade began to figure out what was wrong with me. Now that I know I have POTS, I think the way the doctors treat the disease(not taking it seriously)makes me feel like I SHOULD be able to work. We really need the money and despite the fact that I was only making $7.50/hr, it was a little extra. Funny, though after not working for so many years I was real tentative about whether I wanted a job or not(way before I got sick). Some friends told me, your husband will be begging you to quit in no time; by the time you pay for gas to get there, meals out, cooking less, time away from 3 kids, etc. is really isn't worth it. But, I did make friends and enjoyed being around the animals. I've thought about going back to work part-time but I'm honestly scared to death. Like someone said on this post, what if I'm having a really bad day. Last night for example, I couldn't sleep. Was up till 2am so slept until 1pm. Didn't want to, it just happened.It is really nice to have that luxury to do that. I'm afraid that it may not work out and then I'll feel guilty about quitting, feel like I failed, etc., so I just choose to stay home. Don't you guys agree though that no one, even family that lives far away and doesn't see you often, has no idea how life changing this disease can be? I sometimes wish I had what they originally thought, cardiomyopathy or Addisons. Nothing more serious than POTS, just something that at least most doctors know what the heck it is and consider it a real disease.A little sympathy wouldn't hurt either. Sorry for rambling, Karen Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted November 15, 2006 Report Share Posted November 15, 2006 I've been unable to work since my diagnosis over a year and a half ago. I tried to work at first, but the stress made me significantly worse (which i didn't think was possible at the time!). I finished my degree from home thanks to an understanding boss.Kristen Quote Link to comment Share on other sites More sharing options...
scarfgirl Posted November 15, 2006 Report Share Posted November 15, 2006 kexia,what do you mean by flare ups? theres periods of time your normal? lucky you lol i guess imno tthe only one who cant work but with me its everyday if i stand i get sickI don't think I've felt normal in years, but I go through periods of time where fatigue and a little morning dizziness are my biggest complaints. During those times I am capable of working. However, if I catch a cold or push just a little too hard I am right back in that bed for weeks at a time. Because of that I can't keep a job, no matter how understanding my employer is. And don't count yourself out just yet. I've had this for years and was completely bedridden at first. It takes a while to find a treatment that works, even now I'm still hoping for a miracle drug to come along and grant me some stability. Quote Link to comment Share on other sites More sharing options...
nikigrl8883 Posted November 15, 2006 Author Report Share Posted November 15, 2006 karen, yes i know how you feel about the doctors thinking pots is not a big deal its awful when i go there the doctor always says are you working now and i always say no then he says gee i wonder how much of this is pots and how much is depression or anxiety and i wanna scream when he says that yes obviously now i have depression and i am anxious about this illness but thats not what stops me from working its the physical symtpoms of pots i am dying to work but i know i cant in this position not normally anyway...so i just dont do itkaren, yes i know how you feel about the doctors thinking pots is not a big deal its awful when i go there the doctor always says are you working now and i always say no then he says gee i wonder how much of this is pots and how much is depression or anxiety and i wanna scream when he says that yes obviously now i have depression and i am anxious about this illness but thats not what stops me from working its the physical symtpoms of pots i am dying to work but i know i cant in this position not normally anyway...so i just dont do itand i know what you mean about fmaily not understanding to they just cant really understand becasue there not in our bodies Quote Link to comment Share on other sites More sharing options...
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