wareagle Posted February 28, 2006 Report Share Posted February 28, 2006 Hey Emily...are you okay? I haven't seen you on the boards for awhile and was wondering how you are...Don't mean to be nosey ....it's just not normal for you to be gone for so long...I hope everything is okay..check in when you can!! Love and hugs to you all...M Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 28, 2006 Report Share Posted February 28, 2006 Emily--I have also been thinking of you and hope things are stable/going ok for you. Katherine Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted February 28, 2006 Report Share Posted February 28, 2006 I've been thinking of you too. In fact, I just asked Melissa about you the other day. Hope you can come back to join the group soon.Michelle Quote Link to comment Share on other sites More sharing options...
Poohbear Posted February 28, 2006 Report Share Posted February 28, 2006 Yep....me too, in fact you are on my list of people to contact...it's just my energy doesn't hold out long enough for me to stay on top of things. I know you know how that is.I hope you are okay though. Check in with us when you are up for it! Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted February 28, 2006 Report Share Posted February 28, 2006 hope that your Ok emily!! we miss you!! Quote Link to comment Share on other sites More sharing options...
morgan617 Posted February 28, 2006 Report Share Posted February 28, 2006 Emily, I was thinking about you yesterday. I guess you are on everyone's mind right now. How did the lyme tests go? We all miss you....morgan Quote Link to comment Share on other sites More sharing options...
Laura Posted February 28, 2006 Report Share Posted February 28, 2006 We are all thinking of you, Emily! Missing your posts! Laura Quote Link to comment Share on other sites More sharing options...
Roselover Posted March 1, 2006 Report Share Posted March 1, 2006 Yes, I've been wondering about you too! My hard drive crashed and I lost all my email contacts so I couldn't email you.... hope you can check in and let us know how you are.... WE LOVE YOU!!!!!!~Roselover Quote Link to comment Share on other sites More sharing options...
corina Posted March 1, 2006 Report Share Posted March 1, 2006 i guess everybody already said everything what i was thinking about so there's nothing left than think of a suitable idiom which, of course, i can't think of . i hope you are doing okay em, lovecorina Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 1, 2006 Report Share Posted March 1, 2006 Em, are you alright? Check in when you can. Nina Quote Link to comment Share on other sites More sharing options...
DancingLight Posted March 1, 2006 Report Share Posted March 1, 2006 THANK YOU ALL FOR THINKING ABOUT ME...Melissa is going to post for me and give you all an update...things are super duper rough.I am finding it hard to believe we are back to me feeling as bad and as sick as I was after surgery a year ago. It's like really bad re-runs....I am overwhelmed and humbled by your love and kindness in thinking about me and noticing my absence. I haven't even been able to log on and that makes me so very sad.You are all, as always, in my thoughts and I miss you.Okay....falling back over now...Love, Em Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 1, 2006 Report Share Posted March 1, 2006 Please take care and don't overdo Em!Streaming more hugs and healing light!!!love, tearose Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted March 1, 2006 Report Share Posted March 1, 2006 oh em.. you poor dear!!I am so sorry that you are feeling so bad.. I really wish there were something that somebody could do to help you!!Sending lots of hugs your way.. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 1, 2006 Report Share Posted March 1, 2006 Love and hugs to you! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 2, 2006 Report Share Posted March 2, 2006 Hugs to you dear. I am so sorry you are struggling so. Are you on antibiotics for Lyme--could there be a link to feeling so much worse there?Please write when you can and know that even when you can't you are in our thoughts.Katherine Quote Link to comment Share on other sites More sharing options...
Sunfish Posted March 2, 2006 Report Share Posted March 2, 2006 hi all - sorry it took me a bit to chime in. i wanted to check with em first to see if she wanted me to post an update (as we'd emailed not long before this post started) & then i've been a bit boggled down the past few days. but...here goes.most importantly, i know, em checked in herself to let you all know that she's hanging in....however tough it's been.but to fill you in a bit more...Emily/Dancinglight has been having a super rough time, likely related to the fact that she did start on antibiotics for lyme treatment. she REALLY tried to stick it out but after consult with her POTS doc & Lyme doc & a day at the ER due to dehydration she had to stop them earlier this week in hopes that she can at least get back to being able to stay better hydrated. the home IV folks haven't been able to get access so likely there will be more ER trips to try and get things settled down.even before trying the antibiotics she and her POTS doc have been (understandibly!) frustrated with the lack of help that various treatments have been. while he's used to the challenges of dysautonomia he is also used to most of his patients having at least some improvement from something that he & em have tried.so....bottom line for now is that the try on the antibiotics didn't go so well. em's limited energy/upright time/ computer time became even more limited than her recent "normal"...more and more so...which is why she hasn't been around on the forum. she has been able to brouse occassionally on the forum or check/write an email here or there but not much at all. in terms of where to go from here treatment-wiseplans for going forward are a bit unknown at this point but for now things just have to get more stabilized. WE LOVE YOU EM! keep on keepin on...somehow things are going to take a turn for the better one of these days.... melissap.s. if anyone is super confused or has other questions feel free to PM/email me & i can fill in/ clarify as best as i can... Quote Link to comment Share on other sites More sharing options...
wareagle Posted March 2, 2006 Author Report Share Posted March 2, 2006 Thanks so much for the update Melissa...I was really getting worried.Em,I know you don't have a lot of energy right now and things seem really "dark"...Just know that you are in my thoughts and even though things are tough I KNOW that you will get through this....hang on hon...better days are coming.Sending lots of love and ((((hugs)))) your way..Michele Quote Link to comment Share on other sites More sharing options...
Gena Posted March 3, 2006 Report Share Posted March 3, 2006 Oh Em,I am so sorry to hear about this. I pray that you and your doc will find the best course of action to get you back on track and to keep you hydrated. We're all here for you. Take it easy and rest. I'm sending positive thoughts and healing energy your way! Hugs,Gena Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted March 3, 2006 Report Share Posted March 3, 2006 Emily, Sorry it took me so long to chime in. I've been thinking about you lately, and was hoping you were feeling okay. I'm sorry to hear that's not the case. If you PM me your address, I'd love to send you a card ((((((((((HUGS))))))))))))Lauren Quote Link to comment Share on other sites More sharing options...
goldicedance Posted March 3, 2006 Report Share Posted March 3, 2006 Em, I kept looking for you on the forum. I am so so sorry that you are not doing well with the lyme treatment. Were you taking Roceptin? I tried that at home but we could never keep the access vein open. Have you tried doxiciclan? That may be easier on your system.I miss you. Hugs of support and hope!Lois Quote Link to comment Share on other sites More sharing options...
Poohbear Posted March 3, 2006 Report Share Posted March 3, 2006 Hey Em!Just want you to know I think about you a lot and I'm sending well wishes your way. I can only imagine the frustration you feel!!!I hope you are surrounded by support locally and I hope you know how much you are loved and missed here on the boards. We're all rootin for you!Take care of yourself the best you can.I'm sending you a BIG ((((HUG)))) Quote Link to comment Share on other sites More sharing options...
yogini Posted March 5, 2006 Report Share Posted March 5, 2006 I missed this b/c I don't usually check the off topic forum. I hadn't realized that Emily had been diagnosed with Lyme. Emily, get well soon! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 5, 2006 Report Share Posted March 5, 2006 Melissa--thanks so much for the update. Emily--I think about you every day! I am so sorry the antibiotic trial has not helped. So frustrated for you and believe there is an answer out there.Katherine Quote Link to comment Share on other sites More sharing options...
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