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Gena

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About Gena

  • Rank
    Advanced Member
  • Birthday 05/07/1968

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  • Gender
    Female
  • Location
    Western North Carolina Mtns
  • Interests
    Holistic nutrition, gardening, birding, hiking

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3,362 profile views
  1. Hi Tearose, Wow, it's been a looooong time since I've posted here, but thought I'd stop in and see what's going on. Unfortunately I can TOTALLY relate to your poor sleeping spells and high HR. It's one of the worst feelings in the world. I also get arrhythmias in my heart...and the longer I go without sleep the worse it gets. I'm just a dysfunctional mess during the day. Brain is mush. Since I was dx'd with dysautonomia several years ago, I've taken 1/2 of the smallest dose of Klonopin they make at bedtime. I do not take it every night, and I'll go for months without taking anything at all. However, when my ANS is out of whack or I'm stressed out the Klonopin is a life saver. For the past several months I've been out of my Klonopin prescription so I have tried taking a very small dose of my Inderol beta blocker before bed. This seems to help calm my ANS too. I have tried natural sleep aids. Melatonin helps me sleep but I found it seemed to make my arrhythmias worse if I take it for more than one night in a row. 5-HTP or Tryptophan are helpful natural alternatives you might try as well. I'm sending hugs and the sandman your way! Gena
  2. I get this symptom often. I attribute it to be anxious about something and not realizing how tight my diaphragm has gotten. I get weird sensitive spots on and around my rib cage and sternum too. I found that lying down on top of a rolled up towel (or very small pillow) under the middle of my back and doing some breathing exercises helps those muscles relax and opens your heart. (The rolled towel is positioned on the back so that it opens the chest and pushes it upward and forward). I read about this in one of my health magazines. I try to do this and other relaxation techniques first. If all else fails, then I take a small amount of Klonopin. I had so many cardio tests b/c of the pain. Sometimes my heart will actually hurt from squeezing so hard and I'll get very localized pain from that. But most of the time it's just tightness in my ribs and chest. Hugs, gena
  3. Bump... Can anyone with cardia knowledge provide me any insight on this? Thanks!
  4. Lena, I weigh less than your boy does, but I started out at 30mg, then went to 60mg and now I'm at 100mg per day. I take Vitacost brand. Here is the link http://www.vitacost.com/products/ToCoQ10.cfm Very absorbable and they have great prices and high quality. Gena
  5. Melissa, My heart and prayers go out to you God Speed! This may sound a little new age, but just try to visualize your body(or God or a warm, white light, whatever you prefer) attacking or dissolving the bacteria that's causing the sepsis. In you can muster the time or energy, focus on this frequently several times throughout the day. Also, you may want to focus on a time when you were perfectly well and healthy. Remember what it felt like, what you looked like. There is so much scientific evidence now that proves we have a profound influence over our bodies - positive visualization really does work. Our body naturally wants to heal itself. Our cells are greatly influenced by our thoughts and emotions. Our thoughts send out different chemicals in our bodies, and our cells receive and act upon them, which in turn influences our organs, immune system, nervous system, etc. t's so easy to focus on everything that is going wrong, especially when the simple act of living takes such a tremendous effort. I admire you for facing the possibility of death and for maintaining a sense of humor and kindess through it all. I know you must be simply exhausted from fighting this, both physically and emotionally. But as everyone else has suggested, miracles can and do happen. Hey little fish -- if you are not ready to quit swimming yet, then don't!! You have been an inspiration to me and hundreds of others on this board. One website to check out if you have a moment http://www.brucelipton.com/store/biology-of-belief You can read some excerpts from his book online. P.S. Did you ever get my PM I sent about the use of L-glutamine against sepsis? I pray that you are free from this sepsis very soon. Sending so many hugs and healing thoughts, Gena
  6. HI everyone, I went to the ER about 2 weeks ago after having chest pain for two days that wouldn't go away. It would subside during the day, but get worse at night when I went to bed. This was a little different than other chest pain I've had in the past. It was definitely confined to the left side of my chest, sometimes radiating in left arm and in my back along my shoulder blade. I had no nausea or sweating, but it hurt worse any time I took a deep breath. My heart was squeezing hard and going along at a pretty good beat. I could not sleep. At the ER, All blood work and my EKG was normal. The ER doc tested my cardiac enzymes, which can indicate a heart attack and heart muscle damage. My CPK was normal. = 76 My CKMB was normal = .9 My Troponin I was .06 (normal values according to my lab printout indicate anything above .04 is high/abnormal) I plan to see a cardiologist soon, but wanted to know if anyone has any knowledge of this or if you have ever had elevated cardiac enzymes without myocardial infarction (heart attack). The ER doc did not seem concerned at all about my Troponin levels and did not even suggest that I follow up with a cardiologist!!! Thanks for listening, Gena
  7. Tearose, I am sorry that you are in such a deep place right now physically and emotionally. I understand completely about the FEAR part and worrying how the illness affects the marriage. I live that every day. I hate to express any of my fears to my husband. In regards to your statement about "I need the living with chronic illness and maintaining a healthy marriage helpbook. " I have not read any books specifically on that topic, but I'm sure someone on the board has. Maybe after we ponder, meditate and read some books to gain further understanding and insight about how to deal with this, then the "E" can stand for "enlightened!" I hope you have a blessed day. Hugs, Gena
  8. Gena

    Gena

    Tearose, I can't tell you how wonderful your thoughtful message made me feel. It's so good to see you post as well. I know both of us kind of drifted off the board for a while. I am sorry to hear you are going through a rough patch too and sorry for your losses. My husband and I moved to north Georgia in early summer and we are going to move AGAIN soon (just an hour up the road this time though). I think that leaving my job and friends and family in Florida and having to find new ways to earn an income up here caused too much long-term stress for me. In a nutshell, I've had been doing fairly well in spite of all the upheavels - until now. My body decided to crash. But this too shall pass! You've always had a knack for putting beautiful and caring thoughts into just the right words at just the right time. Thanks for thinking of me. I'm going to clean out that inbox of mine right now, so feel free to email any time! P.S. Hello to all the other "old-timers" on the board. It's always good to come "home" again to visit with friends. Gena
  9. Studies show that women taking synthetic estrogen alone have a 30-40 percent increase of developing breast cancer. Estrone is the main estrogen type in Premarin and is much stronger stimulant of cell growth (i.e., cancerous growths) than estriol. Human estrogen is composed mostly of estriol, which is regarded as the weak estrogen that does not cause cells to proliferate as readily as the other forms of estrogen. Studies also show that women on combined (Premarin and Provera) HRT are more likely to develop blood clots (stroke) and have a much higher risk of gall bladder disease and uterine cancer. The longer you are on these hormones, the greater your risk!! I work in a nutrition store and we have many menopausal women who find relief with the natural progesterone cream (at small doses every day) used in conjunction with the natural estriol cream (they use 2-3 times a week). Black cohosh is also good for hot flashes and night sweats. Waterbaby - I had the same situation happen. I have also taken the natural progesterone cream by itself (to alleviate PMS and fibrocystic breast symptoms) and it caused a flare up of symptoms. A nutritionist recommende I try pregnenolone instead (which is the pre-cursor to all hormones). So I'm going to try that. I'm all for taking bio-identical and natural hormone therapies rather than the synthetic. Suggested REading - Before the Change by Ann Louise Gittleman, PHD and CNS (great insights to natural therapies for women in perimenopause and menopause) gena
  10. Just wanted to add, that some research show that too much dietary salt MAY leach calcium from bones...so if you have low bone density, just make sure you are getting plenty of calcium and Vit. D (both essential to bone health). Increased protein MAY create a more acidic environment in the body (it's best to be more alkaline), so be sure to eat lots of fruits and veggies to that are more alkaline. High protein diets are not good for those with kidney disease either. I used to eat hardly any meat and now I eat a lot more animal protein and fat in my diet and feel much better. Gena
  11. Linda Joy, I had your exact same symptoms after eating and went to many doctors about it. One neuro I saw said I was just overly anxious and prescribed Xanax. I wanted to scream at him. This was about 6 years ago. Many many doctors later, I was finally dx'd with celiac disease (gluten intolerance). When I went on a gluten free diet, these symptoms went away entirely. With you having so many food allergies and POTS, it's a possibility you might have celiac too, which is an autoimmune disorder. It can be triggered later in life by stress, trauma, surgery, etc. (mine was triggered by major stress). You may want to ask your doctor to do a blood test (it tests for gliadin anitbodies). This would help determine if gluten might be the culprit. Normally food allergy testing would not reveal if you had an intolerance to gluten. Best wishes, gena
  12. Hi Tammy, I started taking Di-ribose about 3 weeks ago (it also has magnesium and malic acid in it). It does help with energy and does ease my aches and pains. I also take a low dose coq-10 and l-carnitine separately but not every day. I do not notice any BP lowering effects with the Di-Ribose. My body seems to tolerate it and like it. Gena
  13. I get this often Mary. Welcome to the board by the way. There's another post on here somewhere that talked about this recently. My carotid artery on the left side of my neck will sometimes feel like its going to burst. There's just a lot of pressure feeling. I had a carotid ultrasound and everything was normal. I think I read somewhere that the arteries will expand when trying to force blood to your brain if you aren't getting enough bloodflow/oxygen to your head. So my pain normally comes when my blood pressure is low. It's kind of a scary feeling though! Gena
  14. Hi Maxine, I have to be very careful what I eat and how much I eat or otherwise I get symptomatic too. My main symptoms are tummy bloating, very slow digesting, burping and a very forceful heartbeat, often with arrhythmias. It can take up to a few hours for me to feel better sometimes. I really have to eat very small portions throughout the day and limit refined carbs and sugars. I basically don't even eat them anymore. If I eat too much meat protein in one setting that will set me off too. Yes, you're correct that a lot of it has to do with abdonminal pooling. Sharp rises in blood sugar can stimulate our symptoms too. I'm so sorry you're going through such a bad time. I know others on the board who have the pooling in the legs and they get dark when showering too. My veins poke out all the time. I hate it! Maybe you and hubby can take turns cooking --- or you can order out once in a while -- or cook up a big crock pot of something that will last for several days, so you don't have to cook every night. Best wishes, Gena
  15. Tammy, I was anxious and all worked up before I had my test, because I'm so sensitive to meds. However, it wasn't bad at all. I really didn't feel anything. Good luck, Gena
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