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About Gena

  • Rank
    Advanced Member
  • Birthday 05/07/1968

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  • Gender
  • Location
    Western North Carolina Mtns
  • Interests
    Holistic nutrition, gardening, birding, hiking

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  1. Hi Tearose, Wow, it's been a looooong time since I've posted here, but thought I'd stop in and see what's going on. Unfortunately I can TOTALLY relate to your poor sleeping spells and high HR. It's one of the worst feelings in the world. I also get arrhythmias in my heart...and the longer I go without sleep the worse it gets. I'm just a dysfunctional mess during the day. Brain is mush. Since I was dx'd with dysautonomia several years ago, I've taken 1/2 of the smallest dose of Klonopin they make at bedtime. I do not take it every night, and I'll go for months without taking anything at all. Ho
  2. I get this symptom often. I attribute it to be anxious about something and not realizing how tight my diaphragm has gotten. I get weird sensitive spots on and around my rib cage and sternum too. I found that lying down on top of a rolled up towel (or very small pillow) under the middle of my back and doing some breathing exercises helps those muscles relax and opens your heart. (The rolled towel is positioned on the back so that it opens the chest and pushes it upward and forward). I read about this in one of my health magazines. I try to do this and other relaxation techniques first. If all e
  3. Bump... Can anyone with cardia knowledge provide me any insight on this? Thanks!
  4. Lena, I weigh less than your boy does, but I started out at 30mg, then went to 60mg and now I'm at 100mg per day. I take Vitacost brand. Here is the link http://www.vitacost.com/products/ToCoQ10.cfm Very absorbable and they have great prices and high quality. Gena
  5. Melissa, My heart and prayers go out to you God Speed! This may sound a little new age, but just try to visualize your body(or God or a warm, white light, whatever you prefer) attacking or dissolving the bacteria that's causing the sepsis. In you can muster the time or energy, focus on this frequently several times throughout the day. Also, you may want to focus on a time when you were perfectly well and healthy. Remember what it felt like, what you looked like. There is so much scientific evidence now that proves we have a profound influence over our bodies - positive visualization really doe
  6. HI everyone, I went to the ER about 2 weeks ago after having chest pain for two days that wouldn't go away. It would subside during the day, but get worse at night when I went to bed. This was a little different than other chest pain I've had in the past. It was definitely confined to the left side of my chest, sometimes radiating in left arm and in my back along my shoulder blade. I had no nausea or sweating, but it hurt worse any time I took a deep breath. My heart was squeezing hard and going along at a pretty good beat. I could not sleep. At the ER, All blood work and my EKG was normal. Th
  7. Tearose, I am sorry that you are in such a deep place right now physically and emotionally. I understand completely about the FEAR part and worrying how the illness affects the marriage. I live that every day. I hate to express any of my fears to my husband. In regards to your statement about "I need the living with chronic illness and maintaining a healthy marriage helpbook. " I have not read any books specifically on that topic, but I'm sure someone on the board has. Maybe after we ponder, meditate and read some books to gain further understanding and insight about how to deal with this, the
  8. Gena


    Tearose, I can't tell you how wonderful your thoughtful message made me feel. It's so good to see you post as well. I know both of us kind of drifted off the board for a while. I am sorry to hear you are going through a rough patch too and sorry for your losses. My husband and I moved to north Georgia in early summer and we are going to move AGAIN soon (just an hour up the road this time though). I think that leaving my job and friends and family in Florida and having to find new ways to earn an income up here caused too much long-term stress for me. In a nutshell, I've had been doing fairly w
  9. Studies show that women taking synthetic estrogen alone have a 30-40 percent increase of developing breast cancer. Estrone is the main estrogen type in Premarin and is much stronger stimulant of cell growth (i.e., cancerous growths) than estriol. Human estrogen is composed mostly of estriol, which is regarded as the weak estrogen that does not cause cells to proliferate as readily as the other forms of estrogen. Studies also show that women on combined (Premarin and Provera) HRT are more likely to develop blood clots (stroke) and have a much higher risk of gall bladder disease and uterine canc
  10. Just wanted to add, that some research show that too much dietary salt MAY leach calcium from bones...so if you have low bone density, just make sure you are getting plenty of calcium and Vit. D (both essential to bone health). Increased protein MAY create a more acidic environment in the body (it's best to be more alkaline), so be sure to eat lots of fruits and veggies to that are more alkaline. High protein diets are not good for those with kidney disease either. I used to eat hardly any meat and now I eat a lot more animal protein and fat in my diet and feel much better. Gena
  11. Linda Joy, I had your exact same symptoms after eating and went to many doctors about it. One neuro I saw said I was just overly anxious and prescribed Xanax. I wanted to scream at him. This was about 6 years ago. Many many doctors later, I was finally dx'd with celiac disease (gluten intolerance). When I went on a gluten free diet, these symptoms went away entirely. With you having so many food allergies and POTS, it's a possibility you might have celiac too, which is an autoimmune disorder. It can be triggered later in life by stress, trauma, surgery, etc. (mine was triggered by major stress
  12. Hi Tammy, I started taking Di-ribose about 3 weeks ago (it also has magnesium and malic acid in it). It does help with energy and does ease my aches and pains. I also take a low dose coq-10 and l-carnitine separately but not every day. I do not notice any BP lowering effects with the Di-Ribose. My body seems to tolerate it and like it. Gena
  13. I get this often Mary. Welcome to the board by the way. There's another post on here somewhere that talked about this recently. My carotid artery on the left side of my neck will sometimes feel like its going to burst. There's just a lot of pressure feeling. I had a carotid ultrasound and everything was normal. I think I read somewhere that the arteries will expand when trying to force blood to your brain if you aren't getting enough bloodflow/oxygen to your head. So my pain normally comes when my blood pressure is low. It's kind of a scary feeling though! Gena
  14. Hi Maxine, I have to be very careful what I eat and how much I eat or otherwise I get symptomatic too. My main symptoms are tummy bloating, very slow digesting, burping and a very forceful heartbeat, often with arrhythmias. It can take up to a few hours for me to feel better sometimes. I really have to eat very small portions throughout the day and limit refined carbs and sugars. I basically don't even eat them anymore. If I eat too much meat protein in one setting that will set me off too. Yes, you're correct that a lot of it has to do with abdonminal pooling. Sharp rises in blood sugar can s
  15. Tammy, I was anxious and all worked up before I had my test, because I'm so sensitive to meds. However, it wasn't bad at all. I really didn't feel anything. Good luck, Gena
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