NeverGiveUpOnLife Posted April 10, 2013 Report Share Posted April 10, 2013 Well my doctor has been confused lately, and today is the day I find out what's wrong with me. For 9 days I've had symptoms that I wasn't used to when I have a dysautonomia episode. I've been having night sweats, more tired than normal, went from 126lbs to 116lbs in 9 days without trying, and 2 days ago started having this pressure/squeezing pain in my upper left stomach under my ribs, doctor said it was my spleen and that it was enlarged. So she told my mom and me to go to the outpatient children's hospital to get blood work done and we did. She called yesterday night and told my mom and me to come to her office at the hospital at 10 AM she wouldn't tell my mom any news on the phone she just said for us to be at her office so we can talk. I know she suspected Hodgkin's lymphoma- but I never accepted that, I'm 17 I don't want to hear about cancer and I told my mom I don't feel sick enough to have cancer. My mom has been stressed all night and so have I, neither of us got much sleep. Has anyone experienced this or have any advice? Quote Link to comment Share on other sites More sharing options...
corina Posted April 10, 2013 Report Share Posted April 10, 2013 Years ago my doctor told me that he suspected me to have a form of cancer and was going to do a test to prove it. I was devastated, came to the hospital on my own as I really didn't expect much. Long story short he couldn't find any tumors and I was considered healthy. It had quite an impact.I really hope that you don't get bad news, but have to admit that it seems worrying. Will be thinking of you and IF it is bad news I really hope they will be able to offer you good treatment. Warm wishes Quote Link to comment Share on other sites More sharing options...
Chaos Posted April 10, 2013 Report Share Posted April 10, 2013 Really hope you get good news when you see your doctor but even if it is Hodgkin's lymphoma, I guess the sort-of bright side there is that it is certainly a lot more treatable/curable than it was in the past. I know several people who have had it and are doing well now. So while I'm really hoping and praying that it's nothing nearly that serious, there is still a positive outlook even if you do get bad news. Sending you lots of hugs!!!! Please keep us posted. Quote Link to comment Share on other sites More sharing options...
Hope Posted April 10, 2013 Report Share Posted April 10, 2013 My brother's friend had Hodgkin's Lymphoma when he was in his early twenties and was cured. Now he is old and gray and still cancer free. I hope you don't have to go through the battle of cancer though. I will pray for you. Quote Link to comment Share on other sites More sharing options...
misstraci Posted April 10, 2013 Report Share Posted April 10, 2013 Thinking of you! I pray it's nothing serious like cancer. maybe it's something with your spleen that can be fixed more easily. I've been having discomfort on my left upper side, under the ribs lately like you describe. I haven't had it checked out because it isn't constant but it is concerning. Hope you feel better, let us know how it goes!!!!!! good luck Quote Link to comment Share on other sites More sharing options...
lejones1 Posted April 10, 2013 Report Share Posted April 10, 2013 I had sudden onset POTS and my symptoms were extreme fatigue, sudden weight loss, night sweats and swollen lymph nodes, so among other things, I was looked at for lymphoma. I'm not sure why your doctor specifically suspected HL, maybe you have other suggestive symptoms, but your symptoms are also consistent with some viral infections, like mononucleosis. There are also a few autoimmune disorders that can cause a swollen spleen, fatigue, etc. Even if there are abnormalities on your blood test and they don't point to a virus, that's not a definitive diagnosis for lymphoma. From what I was told, It can only really be diagnosed through a bone marrow biopsy or lymph node biopsy.Good luck this morning, I hope you get positive news! And if not, everyone above is right - HL is one of the most curable cancers, very high treatment rates. Will be praying for you! Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 10, 2013 Report Share Posted April 10, 2013 Sending positive thoughts your way! Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted April 10, 2013 Report Share Posted April 10, 2013 Prayers for u and ur mom...hoping to hear positive news from u and know we all are here for u. Quote Link to comment Share on other sites More sharing options...
puppylove Posted April 10, 2013 Report Share Posted April 10, 2013 Thinking of you. Sending positive vibes! Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted April 10, 2013 Report Share Posted April 10, 2013 Sending good thoughts your way. Don't expect the worst! Sometimes the doctor just needs to tell you complex things in person it doesn't nec mean serious or bad. Quote Link to comment Share on other sites More sharing options...
hholmes13 Posted April 11, 2013 Report Share Posted April 11, 2013 Prayers for you! I hope your doctor is wrong and you hear some positive news! Quote Link to comment Share on other sites More sharing options...
cupcakemomma5 Posted April 11, 2013 Report Share Posted April 11, 2013 Sending you positive vibes and lots of {{{{hugs}}}}Keep us posted. Quote Link to comment Share on other sites More sharing options...
Leigh8 Posted April 11, 2013 Report Share Posted April 11, 2013 Sending good thoughts your way! Quote Link to comment Share on other sites More sharing options...
Susanhs Posted April 11, 2013 Report Share Posted April 11, 2013 Sending positive energy your way for good results!! Quote Link to comment Share on other sites More sharing options...
Ash Posted April 13, 2013 Report Share Posted April 13, 2013 Sending positive thoughts your way. Quote Link to comment Share on other sites More sharing options...
jkoconne Posted April 13, 2013 Report Share Posted April 13, 2013 Thinking of you! Ive been tested for Charsinoma (spelling?) cancer 4 times...The docs were sure they had finally figured it out. I understand the scary feeling of wait for those results...and then them not telling you over the phone. Talk about a serious flare up of symptoms In all honesty all i did was pray, and meet with my counsleor to try to cope until I had results...It was a rough few weeks (they were all spread out becasue they kept retesting me). Im sorry you are dealing with this.Hugs Quote Link to comment Share on other sites More sharing options...
Chaos Posted April 13, 2013 Report Share Posted April 13, 2013 Any news yet? Still thinking of you and hoping all is as well as can be for you!! Quote Link to comment Share on other sites More sharing options...
Libby Posted April 14, 2013 Report Share Posted April 14, 2013 Thinking of you. Quote Link to comment Share on other sites More sharing options...
tpapik Posted April 17, 2013 Report Share Posted April 17, 2013 <3 praying for you Quote Link to comment Share on other sites More sharing options...
bebe127 Posted April 17, 2013 Report Share Posted April 17, 2013 Hoping all goes well. Gentle hugs for you and your mom! Quote Link to comment Share on other sites More sharing options...
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