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Everything posted by bebe127

  1. Since being dx'd, I've noticed that I too burp a lot. Don't know what it is all about. Usually, I tend to burp when I'm feeling poorly.
  2. Edin, Sorry to hear that you are going through this. I too bruise easily, unfortunately I do not know why. I always say, "I bruise like a banana." Mostly I notice them on my legs and occasionally on my arms. Sometimes I'll even have a sore spot and a few days later a bruise pops up. I don't know why it happens or even when in my case. Much like you, I just assume I bumped into something and just can't remember. My husband can squeeze my leg (in love) and next thing you know, a few days later, I have five little bruises pop up. I am forever telling him, "Be careful, I don't want to have a brui
  3. Unfortunately I've never heard of one Some on here say that they have improved a bunch either by life style changes or meds or both. Personally, I'm pretty much in the same state I was in back in 2009 when I was dx. It has totally changed my life for the worse in some areas, but I also must add that I have encountered many positive changes in my life as well along the way. Everyone is different and reacts and responds differently to various treatments. Chin up though...there is always HOPE
  4. 1Kate1, I know you just want positive feedback. I have been on Metoprolol for 2+ years, no side effects that I know of I am on 75mg. per day (25mg 3x). I still have ups and downs and I still get "flare ups" but nothing like I did prior to taking it. I am also on .5mg of Xanax 3x a day and I really think that that does the most good for me. You must keep in mind that everyone reacts differently to various drugs. I have never been on anything else. Hope this helps. Good luck with your meds. Blessings, Bebe
  5. Before TheMorning, I'm sorry you are having to deal with this. I have had tinnitus my whole life it seems. Mine has gotten worse over the years, especially after my POTS dx. It seems as though mine gets going in the afternoon too and really bad at night. I either watch my NOOK or listen to music to go to sleep. It is quite annoying. I've also noticed somewhat of a hearing loss as now I have to resort to lip reading (which can be quite awkward depending on with whom I'm speaking!) and I have to put CC on the TV lest my poor family has to repeat everything everyone says. So sorry, I have no
  6. Alison, Glad you found this forum. It has been my saving grace over these last few years. I'm so sorry to hear that you are going through this and hope that some alternative can be found so that you can get a diagnosis and treatment sooner rather than later. You will find lots of useful information as well as some of the most compassionate and caring encouragers I've come across on this forum Just wanted to let you know that you are not alone. Your symptoms sound quite similar to mine. You will find many others on here that are in the same boat (unfortunate, but good at the same time). Wi
  7. Welcome Krys, I hope you find, as I did, that is forum has a wealth of information and so much support. I don't know what I'd do without this group of wonderful people I have had POTS now for 5 years. Your story sounds quite familiar (although I had what seemed like sudden onset, but could have had it most of my life). I am glad to see that your PCP is willing to help. I hope you can find a dr. in your area that specializes though. My PCP treats me as well as he can as I haven't yet found a dr. in my area. Try not to get discouraged about the whole anxiety route, many dr.s it seems go this
  8. Hanice, Thank you so much!! Glad to hear you are doing so much better As you know, I'm on a hiatus from my illness, ha, ha!! In the words of Dr. Phil..."How's that workin' for ya'?" Well, it's working some days and not so much others LOL!! Interesting about the fats. A few years ago, in the spring of 2009 (I began to feel odd shortly after) I was on the "Six Week Body Make-Over Plan". I cut out sugar, salt, and went low fat and basically ate fairly healthy and exercised, riding my bike 9 miles a day. I wanted to lose a few pounds and just be "in-shape", I wasn't overweight or anything, just
  9. Hanice, I'm interested in this dr. Could you pm me please? I know that we live around the same area, but all I can find on this dr. is that he is in NJ? Sounds quite intriguing. Thanks, Bebe
  10. In no particular order: http://bobisdysautonomia.blogspot.com/ http://justmildlymedicated.com/ http://lethargicsmiles.wordpress.com/whats-pots/pots-101/ http://letsfeelbetter.com/ I have a blog as well, but mine is like an online personal diary and I've been on a sort of hiatus for awhile (it's listed below). I've just been busy with the family and kids and school and blah, blah, blah. Hasn't left me much time for writing.
  11. I'm so sorry you are having to deal with this. I've been married for almost 22 years. This is where we might differ...When we married, I always liked to say "we've left and cleft", that means that we are now a family, my husband and I and our children of course. There have been times in the past when my in-laws have driven me mad with all the "gee you don't look sick" and "oh, you went on vacation, you must be feeling better" and on and on. There was a case where I was at my wits end because they like to spring visits on us, like emailing me on a Thurs. evening to say they are coming for the w
  12. Kayjay, Yes, I'm looking into encasing everything except Big Handsome (aka: Hubby)!!!
  13. Hubs just got back from ENT appt. Dr. asked how old our mattress was (since my husband had a reaction to dust mites). Husband responded, "Funny you should ask. My wife and I just figured out that my symptoms began about a week and a half after purchasing a new mattress". The dr. said that they preserve new mattresses in formaldehyde and that might be why my husband had a reaction. Hubs has gotten progressively better, albeit slowly. The dr. said to give it one more month as he didn't want to start shots or meds if this is something that will fade with time. I'm just so glad that it appears to
  14. Thank you Bellgirl Blessings to you!!
  15. Looks like mattress covers all around and more frequent dusting and vacuuming all around...insert sarcasm here! I think he'll be better off with pills or shots
  16. I cringe as I type this, but we did get it from a discount mattress place locally. My husband did some research before making the decision to go to them. I think it's a Beautyrest and it was bagged with the original tags and all.
  17. Hey there Bellgirl, Hubs did go in for allergy testing. When he told me the dr. suggested inhalant allergy testing, I guess we both got the impression that he would be smelling various things. Well....not so! Poor thing came home the other day with a total of 54 needle marks split between both upper arms and another 40 some pricks split between his inner forearms. He looked like he'd been used for a pin cushion!! Anyhoo, thankfully he's not allergic to any food stuffs. He is allergic to the normal dust mites, roach droppings, some grasses and oak pollen (doesn't really bode well for him as we
  18. MK girl, I'm sorry you are having to deal with this. Please try not to feel sad, I know it's easier said than done. I hope you can find a doctor that can truly diagnose you and treat you. There are many on here that have gotten better over time. That is certainly not to say that there will be periods of sadness, fear and anxiety. I know for me, my anxiety (which I never really had before being dx) hit the roof when I was first dx. In fact, the EMT's said it was in fact anxiety. It was only after a hospital stay (my one and only) that I met an Electrophysiologist that then put me on a 21 day he
  19. When you're lying in bed with insomnia and you suddenly begin to smell the coffee start brewing for the next morning...
  20. Thanks Bellgirl, Husband is still suffering some days worse than others, but he's a trooper and hasn't missed any more work even though he had to get some paperwork filled out in case he needs to miss. Dr. now thinks it might be positional, although positional testing was negative ??? Hubs goes in tomorrow for inhalant allergen testing. Who knows??? I guess that's why "they" call it "practicing medicine" Good note...bad note...he can now relate to me and the feeling when something is wrong and nary a dr. can figure it out Thanks for the well wishes.
  21. I have to say that I agree with "ask" on this one. I, myself am looking into a holistic dr. that is an MD. I've heard she spends tons of time during the first appt. to get a complete history (something I've found to be a rarity with the western dr.s, they seem to just concur with the original dx. and go no further. Maybe they don't want to step on toes??) then decides on what tests. True that many don't accept insurance, but from what I've hear and read, many of the tests are covered by insurance, so that helps. Best of luck to you in finding a dr. that will listen and attempt to put the piece
  22. Northerndarlene, I am so sorry you are dealing with this. I know it is completely frustrating. Your experience sounds a lot like many of mine, and unfortunately quite similar to many others' I would hazard to guess. Know that you are not alone. Keep pushing and trying to find someone to help you. I know this is easier said than done. I'm currently at a crossroads myself after being untreated for two years then getting semi-treatment for the last 2+ years. I am just now beginning to attempt to get back on the horse and begin searching yet again for someone to help me. I know it is so exhausting
  23. Thanks for the suggestions. I know this might sound really lazy and silly, but are there people out there I could hire to "clean" my pantries and get me some recipes and such or a nutritionist that could help me to transfer over?
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