Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Libby

  • Rank
    Advanced Member

Recent Profile Visitors

2,379 profile views
  1. I haven't been around the forum in quite a while, but I hope you guys don't mind me popping back in to complain to people who understand. 😂 The temperature is in the single digits, my bathroom remodel just finished up a few days ago, so I decided that a bath in my new tub would be the perfect way to warm up. LOL. Silly girl. The bath itself was great. But then it was over and I had to stand up. Heart rate went through the roof, b/p dropped low enough for my vision to start to go white. I couldn't think straight enough to run cold water over my legs so I just pushed through th
  2. Hi Susan, Thanks for the response. Ouch. None of that is fun. Did the esophageal stretching help with the dysphagia? Our experiences do seem similar - I had my endoscopy a few weeks ago. I haven't been back to the GE yet, but he mailed me the results. No h pylori, barrett's or celiacs, but I did have and irregular Z line and mild hyperemia (redness) in my stomach. I had multiple tiny lympoid follicles in my stomach too. I searched pubmed and 99% of all the papers which mentioned gastric lymphoid follicles associated them with h pylori, so I was shocked when I tested negative. The onl
  3. But just that morning I had woken up at 3am, still full from dinner and painfully nauseous. After I ate the egg (which had a HAIR in it - I'm still traumatized), I could feel my stomach churning/actually working. Something that doesn't happen when I eat other high fat/high fiber foods. It would have been great at any other time. It looks like it's fairly common to have a false negative - has it happened to anyone else? Will there be more tests? Will I just be diagnosed with gastroparesis based on symptoms? Or told nothing is wrong...
  4. Ooo, rama, yes, please post it! I was diagnosed by my POTS neuro but just through a physical exam. She pressed a bit of cold metal at various points on my skin, starting at my toes and moving upward, and asked me to tell her when I felt the cold (halfway up my shin). I had also suddenly developed this really awful burning in my feet at night. They would get very hot, swell, turn an awful shade of red, and usually wake me up at least once a night - I'd have to put an icepack on them or go walk on the cold kitchen tile. But I suspected that it might be because of the prozac I was taking (
  5. Nope, not dangerous at all. Apparently, a lot of people have PVCs and just don't notice. I don't know HOW they don't notice them, lol, because mine leave me kind of stunned for a second or two, but they don't. The v tach can be dangerous if it doesn't stop after a few seconds, but in people with otherwise healthy hearts (and those with mild MVP, for what it's worth) it's benign 99.9% of the time. Regarding holters, I know that my first was ordered by my PCP. I had to go to the cardio's office to get it put on, but the cardio just wrote out a report and faxed it over to my primary's offic
  6. I definitely know what you're talking about with the bottom-drops-out description. It's been happening to me all night - I forgot to update my insurance info on the mail-order prescription website so now I'm stuck without my metoprolol for a few days. Not happy. Anyway. Those, for me, are just premature ventricular contractions (holter confirmed it). I'll also get what feels like fluttering - that's a string of 3 or more PVCs, otherwise known as ventricular tachycardia. Both, according to my cardio, are harmless. Some of the research that I've read on v-tach doesn't quite agree that it
  7. Ha. You know, it's funny how much this sounds like my life. Driven parents (dentist and head nurse), accusations of hypochondria - my mother threatened to take me to see her severely asthmatic friend so I could 'see what REAL asthma looked like' when I complained about SOB (and then, after a sports coach made her take me to the allergist - where I WAS diagnosed with exercise-induced asthma - she told him, point blank, that I was a hypochondriac) - just being so used to always feeling bad that you push through it. I'm working 45 hours a week, finishing my masters and applying to med school.
  8. I have a friend who used to ask you "How ya doin". I knew he didn't care and that was just something he said. I looked him in the eye and asked him if he REALLY wanted to know and waited for his response. It made him pay better attention. Of course, I didn't REALLY tell him how I was doing - but, he thinks about it before he uses it as a greeting now. LOL Issie I had a teacher back in high school - crotchety old woman who was INCREDIBLY blunt and liked to rant about things - who said something that really stuck with me. She said that when someone asks you how you are, the ONLY socially
  9. This is just a rant. It would sound so, so stupid to anyone who doesn't know POTS. Feel free to ignore me - it was either write a rant or scream, so... I live at my mom's for now. One of the things that I do is empty the dishwasher. Not a huge job, but I'm standing in one place for 10-15 minutes (depending on how many dishes need to be loaded), so can be triggering. This weekend wasn't the greatest, symptom-wise, so I'm already not in a great mood when my mother comes up to me and starts going on about how I need to clean out my car today or she won't pick me up from the mechanics when I
  10. Going a second time? More power to you. It's been over a year since I had mine and I still get nauseous thinking about it. I know that a while back there was some talk about being given saline after the test is over (the line is in while the test is going on, though). It seemed like clinics generally gave it while hospitals were hit or miss, if I recall. If you can get it, definitely go with the saline. Helped a lot with my recovery, at least.
  11. For me, it hurts. Aches, really, from my mid thighs all the way down. From the pressure of the blood in the veins, I think. The skin feels tight and when I walk, my legs will ache a bit more when my foot hits the ground and the motion forces more blood into my legs. If I pat the skin, it will ache too. My feet swell. The skin turns either red or blue (mostly down at my feet), depending on the time of day (red in the mornings/evenings - blue during the day), and if I press down on it, besides being kind of...squishy, ew, it acts like a bad sunburn would - goes completely white for a few
  12. Hi Nicole! That's such an interesting story about how you were diagnosed! Reality TV is good for something. And I totally hear you on the low blood sugar thing. I was the same. And it looks like you're right because you sit down or lie down while you're eating the sugar, so the POTS backs off... I'm glad you've found us and that you've decided to come out of the woodwork. It's really, really nice to have a place where other people get it. Welcome!
  • Create New...