Merrill Posted February 24, 2005 Report Share Posted February 24, 2005 Hi, guys. I wish I had better news to report regarding our Dancing Light... but the truth of the matter is that she's still having a really tough time recovering from gall bladder surgery. Last week was a tough one. Her mom writes, " ... she has been weaker and had more dropping blood pressure, near fainting episodes, shakes and nausea. She is staying in bed and trying to be still. Every time she moves, she gets another spell. She isn't doing too well on the eating either. She doesn't have energy for anything--talking on the phone, going on-line, watching television. She feels too miserable to even get herself distracted. She does still enjoy receiving your notes and cards via snail mail...she has a keen ear for hearing when the mailman is at our driveway Emily had a PICC (a peripherally inserted central catheter) put in at the hospital a week ago and then we arranged for home health care services to set-up the IV fluids at home this week. They have instructed us on this procedure and we are struggling to get that figured out. Yesterday, I had the blood coming out of her instead of the fluid going into her!!"This is disappointing news, of course ... I don't know about you, but I really miss Emily's wit and wisdom ... her incredible compassion and capacity to empathize and lend support--and to make us laugh. Whadaya say we send back some o' that love to her ... via snail mail?! If you send a postcard or letter to Emily, c/o DINET, PO Box 55, Brooklyn, MI 49230, Michelle will forward the mail to her. (Thanks, Michelle!!!)And thanks to all of you. Keep thinkin' those good thoughts...Merrill Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted February 24, 2005 Report Share Posted February 24, 2005 Thanks for the update on Em. I actually still have a package of bracelets for her that I've been waiting to mail as I ordered her a small gift I wanted to sent with them--it should get here in the next day or so, so I'm hoping that might cheer her up a bit.Nina Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 24, 2005 Report Share Posted February 24, 2005 Thanks for the update. I am so sorry to hear about what she is going through. It brings back such bad personal memories--I know how hard it is to recover from surgery with POTS. Surgery seems to trigger severe autonomic problems in some of us that can go on for months. I am glad she is getting IV fluids at home--that should really help.I will be sending something to her too, very soon.Katherine Quote Link to comment Share on other sites More sharing options...
Jersey Girl Posted February 24, 2005 Report Share Posted February 24, 2005 I will send Emily a card. I just underwent minor surgery on my shoulder and have been experiencing a great increase in my symptoms too, but not to that extent. I am wondering if the injection of steroid that I had few days prior to surgery to relieve the excruciation pain isn't affecting me adversely as well. I generally feel like crap no matter what I do. Martha Quote Link to comment Share on other sites More sharing options...
Ernie Posted February 24, 2005 Report Share Posted February 24, 2005 I am sorry that Emily is going through a POTS whole. I had the same thing happened to me when I had a surgery. I have no idea what causes this drawback but I wish Emily a good recovery.Ernie Quote Link to comment Share on other sites More sharing options...
yogini Posted February 24, 2005 Report Share Posted February 24, 2005 I am so sorry that it is taking so long for Emily to pull through this. What a bummer! My mom unexpectedly had gallbladder surgery a couple of weeks ago, and I was very thankful to have learned all about the surgery from reading Emily's posts. Get well soon Emily!! Quote Link to comment Share on other sites More sharing options...
geneva Posted February 24, 2005 Report Share Posted February 24, 2005 merrill, thanks so much for getting an update on our emily. i am so sorry to hear that she is having so much difficulty in recovering from her surgery. A card campaign should cheer her up! Quote Link to comment Share on other sites More sharing options...
morgan617 Posted February 24, 2005 Report Share Posted February 24, 2005 Thanks for the address, will get something off asap. morgan Quote Link to comment Share on other sites More sharing options...
DawnA Posted February 24, 2005 Report Share Posted February 24, 2005 Thanks Merrill for updating us on Emily and the suggestion of snailmail. It will be nice for her to feel our love and know she is not forgotten. Being in that POTS pit is not a good place to be. It sounds like her pit is big right now.Dawn A Quote Link to comment Share on other sites More sharing options...
avais1 Posted February 24, 2005 Report Share Posted February 24, 2005 That poor dear. Reading what her Mom wrote brought back my own memories of having to lie immobilized, or have a spell. I will send a note to her. Thank you for posting the information. Quote Link to comment Share on other sites More sharing options...
blackwolf Posted February 25, 2005 Report Share Posted February 25, 2005 i will drop her a note asap.blackwolf Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted February 25, 2005 Report Share Posted February 25, 2005 I'm sorry Emily is not doing well. I check the forum often to look for any news about her recovery. I am praying each day that she gets stronger.I will be sending a card soon. Hang in there Emily----it will get better---I know it will---just hang on a little longer.Blessings to you,Julie :0) Quote Link to comment Share on other sites More sharing options...
Guest GayleP Posted February 25, 2005 Report Share Posted February 25, 2005 Thanks for the update on Emily. I just wish it was better news. I'll drop her a line and send healing thoughts her way.GayleP Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted February 25, 2005 Report Share Posted February 25, 2005 Please send your cards ASAP so I can mail them to Emily soon.Thanks guys!Michelle Quote Link to comment Share on other sites More sharing options...
geneva Posted February 25, 2005 Report Share Posted February 25, 2005 Michelle, mailed mine today....thanks for forwarding!! Quote Link to comment Share on other sites More sharing options...
StaceyYount Posted February 28, 2005 Report Share Posted February 28, 2005 Oh em!Thanks for posting this and I am sending hugs and love to emily!Is it still ok to send cards to you Michelle to forward on to her?Stacey Quote Link to comment Share on other sites More sharing options...
JLB Posted February 28, 2005 Report Share Posted February 28, 2005 My prayers for Emily.I'm embarrassed and sorry, because I don't know that much about her - is she going to be okay? Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted February 28, 2005 Report Share Posted February 28, 2005 Yes, send the cards to DINET and we'll forward them.Michelle Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted February 28, 2005 Report Share Posted February 28, 2005 Michelle,My Card was sent today. I think about Emily all the time. I have had the pleasure to meet with her on her appointments to see Dr. Grubb. I have also met her Mother. They are Both such sweet people. I pray each day for Emily to get Stronger.Julie :0) Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted March 2, 2005 Report Share Posted March 2, 2005 I'm sending the first batch of cards to Emily tomorrow. Thanks Gina, Julie, Martha, Michele and Sarina! There's still time to send a card to Emily for the second batch. Again, the address is:Emilyc/o DINETPO Box 55Brooklyn, MI 49230THANKS!!!! Michelle Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 2, 2005 Report Share Posted March 2, 2005 Michelle, I still haven't made my way to the mailbox and we have so much snow! I expect to have help to get a little note in tomorrow's mail. It will probably take a day or two to get to you. Please don't hold things up, maybe you could do a third mailing too?thank you, tearose Quote Link to comment Share on other sites More sharing options...
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